Extending Support for Publishing Sensitive Research Data at the University of Bristol

Zosia Beckles
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Abstract

The University of Bristol Research Data Service was set up in 2014 to provide support and training for academic staff and postgraduate researchers in all aspects of research data management. As part of this, the data.bris Research Data Repository was developed to provide a publication platform for research data generated at the University of Bristol. Initially launched in 2015 to provide open access to data, since 2017 it has also been possible to publish access-controlled datasets containing sensitive data via this platform. The vast majority (90%) of datasets published are openly accessible, but there has been steady demand for access-controlled release of datasets containing information that is ethically or commercially sensitive. These cases require careful management of additional risk: for example, where datasets contain information on human participants, balancing the risk of re-identification with the need to provide robust data that maximises research value through re-use. Many groups within the University of Bristol (for example, the Avon Longitudinal Study of Parents and Children) have extensive experience and expertise in this area, but it became apparent that there was a need to provide additional support for researchers who were not able to draw on the experience of these established groups. This practice paper describes the process of setting up a dedicated service to provide training and basic disclosure risk assessments in order to address these skills gaps, and outlines lessons learnt and future directions for the service.
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扩展对布里斯托尔大学出版敏感研究数据的支持
布里斯托大学研究数据服务成立于2014年,为学术人员和研究生研究人员提供研究数据管理各方面的支持和培训。作为其中的一部分,数据。bris研究数据存储库的开发是为了为布里斯托尔大学生成的研究数据提供一个出版平台。最初于2015年推出,旨在提供对数据的开放访问,自2017年以来,也可以通过该平台发布包含敏感数据的访问控制数据集。绝大多数(90%)已发布的数据集是可公开访问的,但对于包含道德或商业敏感信息的数据集的访问控制发布一直存在稳定的需求。这些情况需要仔细管理额外的风险:例如,当数据集包含有关人类参与者的信息时,需要平衡重新识别的风险与提供通过重用最大化研究价值的可靠数据的需要。布里斯托尔大学的许多小组(例如,雅芳父母和孩子的纵向研究)在这一领域有丰富的经验和专业知识,但很明显,有必要为那些无法利用这些既定小组经验的研究人员提供额外的支持。本实践文件描述了建立专门服务以提供培训和基本披露风险评估的过程,以解决这些技能差距,并概述了该服务的经验教训和未来方向。
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30 weeks
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