The Effect of Applying Self- and Family-Oriented Written Education on the Management of Medicamentose, Clinical Exposure, and Quality of Life of Patient with Epilepsy

Endang Kustiowati, Samsudi Samsudi, J. Widodo, Kurnia Kusumastuti
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引用次数: 1

Abstract

Epilepsy is a brain disorder characterized by a tendency to induce a continuous epileptic recurrence and neurobiological, cognitive, psychological, as well as social consequences. Epilepsy seizures are a series of signs and/or symptoms caused by abnormal neuronal activities in the brain. The purpose of this study was to prove the benefits of applying self- and family-oriented educational management to clinical outcomes, self-management, and impact of epilepsy on family, patient’s quality of life, family support, and the role of doctors and family of the epilepsy patient. This is an experimental research using two groups pre and posttest design. The subjects were 80 epilepsy patients ranging from 18 to 70 years of age. All subjects had never had any epilepsy surgery. The subjects were randomly assigned to treatment and control groups; 40 subjects in the treatment group received treatment and self- as well as family-oriented education while the other 40 subjects in the control group received treatment only. Family-oriented education was conducted using written materials on pathophysiology and epilepsy management, psychological effects of epilepsy, and information about the epilepsy community. All of the subjects answered the questionnaires prior to and 3 months after treatment. The questionnaires include information on seizure frequency and seizure-free status, medication adherence, self-management, epilepsy impact on patient and family, and quality of life. The results show that self- and family-oriented education can improve medication adherence, self-management, and family roles. Family-oriented education reduces the frequency of seizures as well as the impact of epilepsy on patients and families. It was concluded that self- and family-oriented education had a positive effect on medical management, clinical outcomes, self-management, and the quality of life of patients with epilepsy.
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应用自我和家庭为导向的书面教育对癫痫患者用药管理、临床暴露和生活质量的影响
癫痫是一种脑部疾病,其特点是有诱发持续癫痫复发的倾向,并具有神经生物学、认知、心理和社会后果。癫痫发作是由大脑中异常神经元活动引起的一系列体征和/或症状。本研究的目的是证明以自我和家庭为导向的教育管理在临床结果、自我管理、癫痫对家庭的影响、患者的生活质量、家庭支持以及医生和癫痫患者家属的作用方面的益处。这是一项采用前后两组设计的实验研究。研究对象为80例癫痫患者,年龄在18 ~ 70岁之间。所有受试者从未做过任何癫痫手术。受试者被随机分为治疗组和对照组;治疗组40例接受治疗,同时进行自我教育和家庭教育,对照组40例仅接受治疗。以家庭为导向的教育采用书面材料,包括病理生理和癫痫管理、癫痫的心理影响以及癫痫社区信息。所有受试者在治疗前和治疗后3个月分别填写问卷。问卷包括癫痫发作频率和无发作状态、药物依从性、自我管理、癫痫对患者和家庭的影响以及生活质量等信息。结果显示,以自我和家庭为导向的教育可以改善药物依从性、自我管理和家庭角色。面向家庭的教育减少了癫痫发作的频率以及癫痫对患者和家庭的影响。结论:自我教育和家庭教育对癫痫患者的医疗管理、临床结局、自我管理和生活质量均有积极影响。
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