Nutrigenomics, Mass Media and Commercialization Pressures

T. Bubela, Ben Taylor
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引用次数: 2

Abstract

In 2004, the International Human Genome Sequencing Consortium published its scientifi c description of the fi nished human genome sequence containing 20,000 to 25,000 protein-coding genes. 1 The Human Genome Project (HGP), through political rhetoric and publicity, was portrayed as an end in itself, which, in the near term, would produce an explosion of new genomics products, services and therapeutics. Most have yet to materialize and some of those that have, especially in the area of genetic testing targeted directly at consumers, raise considerable ethical, regulatory and legitimacy issues. In particular, the fi eld of nutrigenomics illustrates many of these concerns in the context of direct-to-consumer (DTC) advertising and delivery of genetic testing services, related products (such as nutritional supplements) and associated media coverage. This article presents preliminary data from a study of how the media translate knowledge about nutrigenomics to the public. Specifi cally, we are interested in whether media coverage of nutrigenomics is of suffi cient quality for the public to understand the risks and benefi ts associated with genetic testing. We have considered three main sources of information: peerreviewed science journals, media coverage and, more briefl y, promotional material from nutrigenomic company websites. A fuller understanding of the media’s role has policy implications as countries deal with regulating the provision of genetic testing services and the sale of nutritional supplements and personalized diet plans. It also has implications for regulating commercial representations of nutrigenomics, especially DTC advertising by genetic testing companies and the claims they can make about health benefi ts.
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营养基因组学,大众传媒和商业化压力
2004年,国际人类基因组测序联盟公布了包含20,000至25,000个蛋白质编码基因的完整人类基因组序列的科学描述。人类基因组计划(HGP),通过政治辞令和宣传,被描绘成一个目的本身,在短期内,将产生新的基因组产品,服务和治疗方法的爆炸。大多数尚未实现,其中一些已经实现,特别是在直接针对消费者的基因检测领域,引发了相当大的伦理、监管和合法性问题。特别是,营养基因组学领域在直接面向消费者(DTC)的广告和提供基因检测服务、相关产品(如营养补充剂)和相关媒体报道的背景下说明了许多这些问题。本文介绍了一项关于媒体如何将营养基因组学知识传递给公众的初步研究数据。具体来说,我们感兴趣的是,媒体对营养基因组学的报道是否足以让公众了解与基因检测相关的风险和益处。我们考虑了三个主要的信息来源:同行评议的科学期刊、媒体报道,以及更简单地说,营养基因组公司网站上的宣传材料。在各国管理基因检测服务的提供、营养补充剂和个性化饮食计划的销售时,更全面地了解媒体的作用会对政策产生影响。它还对规范营养基因组学的商业表述产生了影响,尤其是基因检测公司的DTC广告,以及它们对健康益处的宣称。
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Discussion on Several Problems Worth Discussing in the Work of Health Examination Media Representations of Genetic Discoveries: Hype in the Headlines? Nutrigenomics, Mass Media and Commercialization Pressures Media Portrayal of Conflicts of Interest in Biomedical Research Public Trust and Regulatory Governance as represented through the Media
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