Revisión del manejo dietético y nutricional de los pacientes con esclerosis lateral amiotrófica

Amelia Romero Merlos , Rita Bonet Bolós
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Abstract

Amyotrophic lateral sclerosis (ALS) is a progressive degenerative disease that affects the central nervous system, which entails the gradual loss of the motor independence, the capacity to communicate orally, breathing (respiration) and swallowing (deglutition). The patient affected by ALS goes through different phases throughout the course of the disease, in each one of which he needs to be directed and guided to optimize the food intake through dietetic advice, nutritional supplementation and enteral tube feeding, preferably by gastrostomy, always taking into consideration the importance of making every possible effort to maintain the patient's independence and capacity to choose.

The objective of this review is to contribute to the updated knowledge on the dietetic and nutritional management of the patient affected by ALS, highlighting the importance of the dietician-nutritionist figure as a professional specialized in the subject and a member of any multi-disciplinary or inter-disciplinary treatment team focused on the patient with ALS to obtain an ideal treatment symptomatic of the problems related with nutritional deficits and dysphagia.

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肌萎缩性侧索硬化症患者的饮食和营养管理综述
肌萎缩性侧索硬化症(ALS)是一种影响中枢神经系统的进行性退行性疾病,它导致运动独立性、口头交流能力、呼吸(呼吸)和吞咽(吞咽)的逐渐丧失。ALS患者在整个病程中会经历不同的阶段,在每个阶段都需要指导和指导,通过饮食建议、营养补充和肠内管喂养(最好是胃造口术)来优化食物摄入,同时始终考虑到尽一切可能保持患者的独立性和选择能力的重要性。本综述的目的是为ALS患者的饮食和营养管理提供最新的知识,强调营养师-营养学家作为该学科的专业人员和任何多学科或跨学科治疗团队的成员的重要性,他们专注于ALS患者,以获得与营养不足和吞咽困难相关问题的理想治疗症状。
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