加拿大医疗延误和预防措施对乳腺癌经历的影响:一场被COVID-19大流行掩盖的无声战斗。

Justine Fortin, Marjolaine Rivest-Beauregard, Clarisse Defer, Mélissandre Leblanc, Lunie Anne Thamar Louis, Carol-Anne Roy, Isabelle Lapierre, Alain Brunet, Marjorie Montreuil, Marie-France Marin
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引用次数: 2

摘要

背景:2019冠状病毒病大流行导致乳腺癌服务优先面向正在治疗或诊断为晚期乳腺癌的患者,并对肿瘤生长和治疗副作用进行自我评估。除了与癌症本身相关的压力外,COVID-19造成的延误和并发症也可能影响患者的心理健康。目的:描述在大流行期间接受诊断和/或治疗的加拿大乳腺癌患者的经历,并确定他们对在未来大流行期间改善患者福祉的建议。方法:采用半结构式访谈法对18名乳腺癌患者进行访谈,并对其填写“痛苦温度计”问卷。使用描述性主题内容方法分析抄本。结果:与大流行期间开始的妇女相比,在大流行之前开始乳腺癌筛查或治疗的妇女报告的延误和心理困扰更少。参与者报告说,在接受医疗护理时感到失去人性,在就医时无法陪伴,并担心在大流行期间治疗中断。患者对改善护理和心理支持的建议包括在接受诊断和第一次治疗时有家庭照顾者在场。结论:研究结果为大流行期间的医疗保健限制如何影响乳腺癌筛查和治疗期间的患者体验和福祉提供了新的见解。确定了癌症护理实践和护理提供战略的必要性,以促进在未来大流行期间提供富有同情心、以患者为中心的护理和心理支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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The Impact of Canadian Medical Delays and Preventive Measures on Breast Cancer Experience: A Silent Battle Masked by the COVID-19 Pandemic.

Background: The COVID-19 pandemic led to the prioritization of breast cancer services towards patients who are currently in treatment or diagnosed with advanced stages of breast cancer, and the self-assessment of both tumor growth and treatment side effects. Alongside the stress associated with cancer itself, delays and complications due to COVID-19 may impact patients' mental health.

Purpose: To describe the experiences of Canadians living with breast cancer who received a diagnosis and/or treatment during the pandemic, and to identify their recommendations for improving patients well-being during future pandemics.

Methods: Semi-structured interviews were conducted with eighteen women living with breast cancer who also completed the Distress Thermometer questionnaire. The transcripts were analyzed using a descriptive thematic content methodology.

Results: Women who started their breast cancer screening or treatment before the pandemic reported fewer delays and less psychological distress than those who started during the pandemic. Participants reported feeling dehumanized while receiving their medical care, being unable to be accompanied during medical visits, and fearing treatment interruption during the pandemic. Patient recommendations for improving care and psychological support included the presence of family caregivers at consultations to receive the diagnosis and for the first treatment session.

Conclusion: Study findings provide new insights on how healthcare restrictions during the pandemic impacted on patient experiences and their well-being during screening and treatment for breast cancer. The need for cancer nursing practices and care delivery strategies that promote the delivery of compassionate, patient-centred care and the provision of psychological support during future pandemics are identified.

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来源期刊
CiteScore
4.00
自引率
4.80%
发文量
32
期刊介绍: We are pleased to announce the launch of the CJNR digital archive, an online archive available through the McGill University Library, and hosted by the McGill University Library Digital Collections Program in perpetuity. This archive has been made possible through a Richard M. Tomlinson Digital Library Innovation and Access Award to the McGill School of Nursing. The Richard M. Tomlinson award recognizes the ongoing contribution and commitment the CJNR has made to the McGill School of Nursing, and to the development and nursing science in Canada and worldwide. We hope this archive proves to be an invaluable research tool for researchers in Nursing and other faculties.
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