为印度尼西亚日惹市Gunungkidul的“Mitra Ananda”社区组织提供关于脑瘫儿童营养和癫痫控制的教育

T. M. Widagdo, Matahari Bunga Indonesia, W. C. Manus
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摘要

脑瘫(CP)患者由于肌肉骨骼系统紊乱而残疾,通常伴有各种其他严重程度不同的症状,如癫痫发作、智力残疾、骨骼畸形、学习障碍等。这些人有更高的营养不良和癫痫发作的风险,特别是患有脑瘫的儿童。Mitra Ananda是一个由脑瘫患者的父母组成的组织,旨在增强脑瘫患者家庭的权能。了解问题、了解解决办法和有信心实施解决办法是建立一个有权能的社区的关键,这个社区后来将成为在卫生问题上增强他人权能的推动力。通过向米特拉·阿南达组织的成员介绍和讨论,提供了关于营养和癫痫控制的教育。对项目进行定量和定性评价。制定了一份定量方法的调查问卷,以评估护理人员的营养知识。评估结果表明,对受益人的了解有所增加。焦点小组讨论和访谈显示了对营养和癫痫控制的态度和行为的变化。Mitra Ananda成员也是CP儿童的照顾者,他们将新获得的知识分享给其他成员。除了倍增效应,它还创造了一个社区,成为赋予他人权力的驱动力。
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Education on Nutrition and Seizure Control in Children with Cerebral Palsy for “Mitra Ananda” Community Organization in Gunungkidul, Yogyakarta, Indonesia
Persons with Cerebral Palsy (CP) have disabilities due to disorders of the musculoskeletal system that were often accompanied by various other symptoms with different degrees of severity, such as seizures, intellectual disabilities, bone deformities, learning disorders, etc. Those people have a higher risk of malnutrition and seizures, especially children with CP. Mitra Ananda, an organization of parents of persons with CP that aimed to empower families of persons with CP Gunungkidul Regency. Understanding of a problem, knowledge of the solution and confidence to implement the solution are the keys to create an empowered community that will later become a driving force to empower others in health issues. Education on nutrition and seizure control was delivered through presentations and discussions to the members of Mitra Ananda Organization. Program evaluation was carried out quantitatively and qualitatively. A questionnaire for the quantitative method was developed to assess caregivers' knowledge on nutrition. The assessment results presented increased knowledge of the beneficiaries. Focus group discussions and interviews showed changes in attitudes and behavior on nutrition and seizure control. Mitra Ananda members who were also caregivers of children with CP shared the newly acquired knowledge to other members. In addition to the multiplication effect, it also creates a community that becomes a driving force to empower others.
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