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引用次数: 2

摘要

疾病叙事——关于患病经历的第一人称故事——已经成为非常流行的研究数据和实用工具,并在许多与健康相关的环境中被使用和利用。然而,当这些故事被视为对所发生事件的直接表征时,它们的认识论性质和关于其内容与事件和现实的关系的问题往往被忽视。本章揭示了为什么这些属性的反映及其在研究或实际环境中的使用关系是至关重要的。它扩展了处理认识论和方法问题的三种不同方法:“自然主义”方法,经验方法和行为方法。每一种方法都需要不同的标准和准则来处理真实或真实的问题,并根据用户所考虑的目的遵守其起源背景。
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Illness narratives in practice
Illness narratives—first-person stories about experiences with illness—have become highly popular as research data and as practical instruments, and are used and exploited in many health-related contexts. However, their epistemological properties and problems concerning the relation of their content to events and realities are often neglected when these stories are taken as direct representations of what happened. This chapter exposes why the reflection of these properties and their relation to their use in research or practical contexts is crucial. It expands on three different approaches of handling the epistemological and methodical questions: a ‘naturalistic’ approach, an experiential approach, and a performative approach. Each approach demands different criteria and guidelines to deal with the questions of truth or authenticity as well as with the observance of their context of origin according to the purposes users have in mind.
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