Francielle Brum dos Santos de Siqueira, Eliane Tatsch Neves, Aline Cammarano Ribeiro, Andressa da Silveira, Francielle Morais de Paula, Diúlia Calegari de Oliveira
{"title":"在阿格尼斯·海勒的光照下，青少年和年轻人接受血液透析治疗的日常生活:一个案例研究","authors":"Francielle Brum dos Santos de Siqueira, Eliane Tatsch Neves, Aline Cammarano Ribeiro, Andressa da Silveira, Francielle Morais de Paula, Diúlia Calegari de Oliveira","doi":"10.1590/1980-265x-tce-2023-0043en","DOIUrl":null,"url":null,"abstract":"ABSTRACT Objective: to understand the everyday life of adolescents and young people with chronic kidney disease undergoing hemodialysis treatment. Method: a qualitative research study of the Single Case Study type developed in a Renal Clinic from southern Brazil. Eight adolescents and young people aged between 18 and 24 years old undergoing hemodialysis treatment from February 5th, 2021, to January 26th, 2022. Data production was through semi-structured interviews, data from electronic medical records and participant observation through data triangulation. The observation was based on a script and field diary. The data were submitted to inductive thematic analysis and interpreted in the light of Agnes Heller's concept of everyday life. Results: the everyday life of adolescents and young people experiencing chronic kidney disease is impacted from the moment they receive the diagnosis until they understand their health situation. The changes imposed by the treatment and maintenance of the care measures have repercussions as limits faced in their everyday life. As for self-care, the major concern refers to the laboratory test levels. Conclusion: the everyday life of adolescents and young people on hemodialysis is permeated by unique changes in their existence and the construction of their own identity, added to the impact of the disease and the new condition imposed by the treatment. It is believed that the time they remain at the Clinic constitutes a strategy for health education, meeting the needs for diverse information about their chronic condition and treatment and contributing to the externalization of their humanity as a whole in this everyday routine.","PeriodicalId":51188,"journal":{"name":"Texto Contexto Enfermagem","volume":"150 1","pages":"0"},"PeriodicalIF":0.0000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"EVERYDAY LIFE OF ADOLESCENTS AND YOUNG PEOPLE UNDERGOING HEMODIALYSIS TREATMENT IN THE LIGHT OF AGNES HELLER: A CASE STUDY\",\"authors\":\"Francielle Brum dos Santos de Siqueira, Eliane Tatsch Neves, Aline Cammarano Ribeiro, Andressa da Silveira, Francielle Morais de Paula, Diúlia Calegari de Oliveira\",\"doi\":\"10.1590/1980-265x-tce-2023-0043en\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"ABSTRACT Objective: to understand the everyday life of adolescents and young people with chronic kidney disease undergoing hemodialysis treatment. Method: a qualitative research study of the Single Case Study type developed in a Renal Clinic from southern Brazil. Eight adolescents and young people aged between 18 and 24 years old undergoing hemodialysis treatment from February 5th, 2021, to January 26th, 2022. Data production was through semi-structured interviews, data from electronic medical records and participant observation through data triangulation. The observation was based on a script and field diary. The data were submitted to inductive thematic analysis and interpreted in the light of Agnes Heller's concept of everyday life. Results: the everyday life of adolescents and young people experiencing chronic kidney disease is impacted from the moment they receive the diagnosis until they understand their health situation. The changes imposed by the treatment and maintenance of the care measures have repercussions as limits faced in their everyday life. As for self-care, the major concern refers to the laboratory test levels. Conclusion: the everyday life of adolescents and young people on hemodialysis is permeated by unique changes in their existence and the construction of their own identity, added to the impact of the disease and the new condition imposed by the treatment. It is believed that the time they remain at the Clinic constitutes a strategy for health education, meeting the needs for diverse information about their chronic condition and treatment and contributing to the externalization of their humanity as a whole in this everyday routine.\",\"PeriodicalId\":51188,\"journal\":{\"name\":\"Texto Contexto Enfermagem\",\"volume\":\"150 1\",\"pages\":\"0\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Texto Contexto Enfermagem\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1590/1980-265x-tce-2023-0043en\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Texto Contexto Enfermagem","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1590/1980-265x-tce-2023-0043en","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"Nursing","Score":null,"Total":0}
EVERYDAY LIFE OF ADOLESCENTS AND YOUNG PEOPLE UNDERGOING HEMODIALYSIS TREATMENT IN THE LIGHT OF AGNES HELLER: A CASE STUDY
ABSTRACT Objective: to understand the everyday life of adolescents and young people with chronic kidney disease undergoing hemodialysis treatment. Method: a qualitative research study of the Single Case Study type developed in a Renal Clinic from southern Brazil. Eight adolescents and young people aged between 18 and 24 years old undergoing hemodialysis treatment from February 5th, 2021, to January 26th, 2022. Data production was through semi-structured interviews, data from electronic medical records and participant observation through data triangulation. The observation was based on a script and field diary. The data were submitted to inductive thematic analysis and interpreted in the light of Agnes Heller's concept of everyday life. Results: the everyday life of adolescents and young people experiencing chronic kidney disease is impacted from the moment they receive the diagnosis until they understand their health situation. The changes imposed by the treatment and maintenance of the care measures have repercussions as limits faced in their everyday life. As for self-care, the major concern refers to the laboratory test levels. Conclusion: the everyday life of adolescents and young people on hemodialysis is permeated by unique changes in their existence and the construction of their own identity, added to the impact of the disease and the new condition imposed by the treatment. It is believed that the time they remain at the Clinic constitutes a strategy for health education, meeting the needs for diverse information about their chronic condition and treatment and contributing to the externalization of their humanity as a whole in this everyday routine.
期刊介绍：
Texto & Contexto Enfermagem provides space for reflection and deepening of knowledge about issues of practice, teaching and research in health and nursing, at national and international levels.
The journal is published quarterly in the rolling pass or Continuous flow mode, accepting manuscripts in Portuguese, English or Spanish, in the categories original article, reflection, experience report and review. Contributions designated to the dissemination of unpublished original research results are prioritized for publication. Special issues are published at the discretion of the Board of Directors and Associate Editors. All manuscripts are published in two versions, one of which is English, aiming to cover the largest number of readers worldwide.
The editorial policy of Texto & Contexto Enfermagem is based on rigorous quality criteria for indexing and publishing (including technical and normative aspects, graphic and textual quality and excellence in scientific content); on responsibility for shared management between the Board of Directors, Editorial Board and Internal and External Editors Associates; and on the rigorous and constructive peer review, preserving the anonymity of authors and reviewers (double blinded).
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