测量多发性硬化症患者的疲劳程度--应使用哪种问卷?通俗易懂的出版物摘要。

IF 2.3 Q3 CLINICAL NEUROLOGY Neurodegenerative disease management Pub Date : 2024-02-01 Epub Date: 2024-03-19 DOI:10.2217/nmt-2023-0034
Paul Kamudoni, Jeffrey Johns, Karon F Cook, Rana Salem, Sam Salek, Jana Raab, Rod Middleton, Christian Henke, Dagmar Amtmann
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引用次数: 0

摘要

本摘要说明了近期一项研究的结果,该研究比较了医生用于测量多发性硬化症(MS)患者疲劳程度的不同问卷。这项研究的目的是找出医生今后应该使用哪种问卷来测量多发性硬化症患者的疲劳程度。疲劳可以被描述为一种难以承受的疲倦或精疲力竭的感觉,是多发性硬化症的一种非常常见的症状。对于大多数多发性硬化症患者来说,疲劳是多发性硬化症最严重的症状之一,因此医生必须对其进行准确测量。目前,多发性硬化症患者需要填写调查问卷,以便护理团队了解疲劳对其日常生活的影响。用于测量多发性硬化症患者疲劳程度的问卷有很多。根据本研究等研究的证据,就哪种问卷最适合在研究和医疗环境中测量疲劳达成一致是非常有价值的。本研究将 PROMIS® 疲劳(MS)8a(在本摘要中称为 PROMIS® MS 疲劳简表)问卷与两种最常用的问卷:疲劳严重程度量表(FSS)和改良疲劳影响量表(MFIS)进行了比较。对这两种问卷进行了比较,以确定应向医生推荐哪一种问卷来测量多发性硬化症患者的疲劳程度:研究发现,虽然这三种问卷都不错,但在显示多发性硬化症患者疲劳程度差异方面,PROMIS® 多发性硬化症疲劳简表问卷优于其他两种问卷。在显示多发性硬化症患者疲劳程度的变化方面,PROMIS® 多发性硬化症疲劳简表也优于疲劳严重程度量表(FSS)。PROMIS®多发性硬化症疲劳简表问卷可以帮助多发性硬化症患者更好地向医生表达他们在疲劳方面遇到的挑战:研究表明,PROMIS® 多发性硬化症疲劳简表问卷是医生和多发性硬化症患者测量疲劳的有效工具。
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Measuring fatigue in people with multiple sclerosis - which questionnaire should be used? A Plain Language Summary of Publication.

What is this summary about?: This summary explains the findings of a recent study that compared different questionnaires used by doctors to measure levels of fatigue in people with multiple sclerosis (MS). The aim of the study was to find out which questionnaire doctors should use to measure fatigue in people with MS in the future. Fatigue, which can be described as the overwhelming feeling of tiredness or exhaustion, is a very common symptom of MS. For the majority of people with MS, fatigue is one of the worst symptoms of MS, so it is essential that doctors can measure it accurately. Currently, people with MS are asked to complete questionnaires so that their care team can see the effect of fatigue on their day-to-day lives. There are many questionnaires that are used to measure fatigue in people with MS. It would be valuable to come to an agreement, based on evidence from research like this study, on which questionnaire is the most appropriate for measuring fatigue in both research and healthcare settings. This study compared a questionnaire called the PROMIS® Fatigue (MS) 8a, referred to throughout this summary as the PROMIS® MS Fatigue Short Form, with two of the most commonly used questionnaires: the Fatigue Severity Scale (FSS) and the Modified Fatigue Impact Scale (MFIS). The questionnaires were compared to see which one should be recommended to doctors for measuring fatigue in people with MS.

What are the key takeaways?: It was found that while all three questionnaires were good, the PROMIS® MS Fatigue Short Form questionnaire was better than the other two questionnaires at showing differences in levels of fatigue between people with MS. The PROMIS® MS Fatigue Short Form was also found to be better than the Fatigue Severity Scale (FSS) at showing changes in the person with MS's level of fatigue. The PROMIS® MS Fatigue Short Form questionnaire may help people with MS to better communicate challenges with their fatigue to their doctors.

What was the main conclusion reported by the researchers?: The study suggests that the PROMIS® MS Fatigue Short Form questionnaire is a helpful tool for doctors and people with MS to measure fatigue.

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