非亲缘造血干细胞捐献志愿者家庭支持系统建设研究

Wenjie Ge, Yi Zheng
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引用次数: 0

摘要

我国有数百万急需造血干细胞移植的患者,但非亲缘造血干细胞的配型成功率仅为1/400~1/10000。自 1992 年中华骨髓库成立以来,配型成功的患者仅有 14000 多人。调查显示,我国大量志愿者最终会选择拒绝捐献造血干细胞,这与公众对造血干细胞捐献缺乏了解密切相关。与有亲缘关系的造血干细胞捐献者相比,无亲缘关系的志愿者从家庭成员那里得到的支持更少,这导致他们的捐献率更低。因此,研究非亲缘造血干细胞捐献志愿者的家庭支持系统具有重要的现实意义。
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Study on the Construction of Family Support System for Unrelated Hematopoietic Stem Cell Donation Volunteers
There are millions of patients in urgent need of hematopoietic stem cell transplantation in China, but the matching success rate of unrelated hematopoietic stem cells is only 1/400 ~ 1/10000. Since the establishment of China Bone Marrow Bank in 1992, only more than 14,000 patients have been successfully matched. According to the survey, a large number of volunteers in China will eventually choose to refuse to donate hematopoietic stem cells, which is closely related to the public's lack of understanding of hematopoietic stem cell donation. Unrelated volunteers can get less support from family members than related hematopoietic stem cell donors, which leads to their lower donation rate. Therefore, it is of great practical significance to study the family support system of unrelated hematopoietic stem cell donation volunteers.
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