满足 21 世纪严重四肢瘫痪患者的需求:植入式脑机接口的案例。

Neurorehabilitation and neural repair Pub Date : 2024-12-01 Epub Date: 2024-09-27 DOI:10.1177/15459683241282783
Abbey Sawyer, Lily Cooke, Erica Breyman, Steve Spohn, Sandy Edelman, Krisha Saravanan, David Putrino
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引用次数: 0

摘要

背景:近几十年来,数字设备在非残疾人口中得到了广泛应用。数字设备的普遍集成彻底改变了大多数人管理日常活动的方式。现在,我们大多数人都依赖数字平台和服务来开展通信、金融、医疗保健和工作等领域的活动。然而,对于严重四肢瘫痪的患者来说,他们在很大程度上无法获得能让他们以数字方式完成日常任务并与周围环境进行有效沟通的工具,这其中存在着明显的差距:本文的目的是:(i)强调严重四肢瘫痪患者尚未满足的需求(包括医疗必要性案例和社区观点);(ii)介绍严重四肢瘫痪患者辅助技术的现状;(iii)说明植入式生物识别(BCI)的优势(如何满足需求,以及为什么相对于其他辅助技术,植入式BCI是一个很好的解决方案);(iv)介绍未来的发展方向:目前有一些技术可供残疾人使用,但这些技术在易用性、效率或自主性方面肯定无法与为非残疾人设计的技术相提并论。这阻碍了严重四肢瘫痪者实现数字自主的能力,使他们长期处于社会孤立状态,并限制了他们表达需求、意见和喜好:最重要的是,数字平等方面的差距从根本上损害了严重四肢瘫痪者的基本人权。
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Meeting the Needs of People With Severe Quadriplegia in the 21st Century: The Case for Implanted Brain-Computer Interfaces.

Background: In recent decades, there has been a widespread adoption of digital devices among the non-disabled population. The pervasive integration of digital devices has revolutionized how the majority of the population manages daily activities. Most of us now depend on digital platforms and services to conduct activities across the domains of communication, finance, healthcare, and work. However, a clear disparity exists for people who live with severe quadriplegia, who largely lack access to tools that would enable them to perform daily tasks digitally and communicate effectively with their environment.

Objectives: The purpose of this piece is to (i) highlight the unmet needs of people with severe quadriplegia (including cases for medical necessity and perspectives from the community), (ii) present the current landscape of assistive technology for people with severe quadriplegia, (iii) make the case for implantable BCIs (how they address needs and why they are a good solution relative to other assistive technologies), and (iv) present future directions.

Results: There are technologies that are currently available to this population, but these technologies are certainly not usable with the same level of ease, efficiency, or autonomy as what has been designed for the non-disabled community. This hinders the ability of people with severe quadriplegia to achieve digital autonomy, perpetuating social isolation and limiting the expression of needs, opinions, and preferences.

Conclusion: Most importantly, the gap in digital equality fundamentally undermines the basic human rights of people with severe quadriplegia.

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