数字叙事:Instagram® 对先天性弓形虫病患儿母亲的影响。

IF 2 4区 医学 Q2 PEDIATRICS Children-Basel Pub Date : 2024-10-19 DOI:10.3390/children11101267
Gabrielle Gonçalves Veloso, Giovanna Cristina Machado-Kayzuka, Rhyquelle Rhibna Neris, Ana Carolina Andrade Biaggi Leite, Nayara Gonçalves Barbosa, Heloísa Cristina Figueiredo Frizzo, Gabrielle Vedoveto Escaliante, Adriana Moraes Leite, Beatriz Volpin Gomes Beato, Poliane da Silva Santos, Flávia Gomes-Sponholz, Lucila Castanheira Nascimento
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引用次数: 0

摘要

背景:先天性弓形虫病会导致儿童期严重并发症,给全球健康带来重大挑战。在巴西,孕期弓形虫病和先天性弓形虫病的发病率为每千名活产婴儿中 0.3 到 8 例。先天性弓形虫病的临床表现可能包括神经系统和眼部损伤,以及其他健康问题,这给受影响的家庭带来了沉重负担:本研究旨在调查先天性弓形虫病患儿的母亲在社交媒体(尤其是 Instagram)上分享自己心路历程的经历和动机:本研究采用定性虚拟民族志的方法,对确诊患有先天性弓形虫病儿童的母亲所分享的内容进行探讨,旨在了解社交媒体如何帮助她们制定应对策略以及她们所创建的支持网络:我们分析了 15 个 Instagram 账户,并对 12 位母亲进行了深入访谈。专题分析揭示了三大主题:最初寻找信息和支持、社交媒体在宣传和教育中不断发展的作用以及创建支持性网络社区:本研究强调了社交媒体在提供情感支持、传播信息以及在面临类似挑战的母亲之间建立社区方面的潜力,最终有助于制定更好的护理策略和提高专业意识,为患有先天性弓形虫病的家庭提供支持。
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Digital Narratives: The Impact of Instagram® on Mothers of Children with Congenital Toxoplasmosis.

Background: Congenital toxoplasmosis leads to severe complications in childhood and presents significant global health challenges. In Brazil, the prevalence of toxoplasmosis during pregnancy and congenital cases ranges from 0.3 to 8 per 1000 live births. The clinical manifestations of congenital toxoplasmosis can include neurological and ocular damage, among other health issues, which place significant burdens on affected families.

Objective: This study aims to investigate the experiences and motivations of mothers of children with congenital toxoplasmosis who share their journeys on social media, particularly Instagram.

Methods: A qualitative virtual ethnography was used that explored the content shared by mothers of children diagnosed with congenital toxoplasmosis, aiming to understand how social media aids in their coping strategies and the support networks they create.

Results: Fifteen Instagram accounts were analyzed, and twelve mothers participated in in-depth interviews. Thematic analysis revealed three main themes: the initial search for information and support, the evolving role of social media in advocacy and education, and the creation of a supportive online community.

Conclusions: This study highlights the potential of social media to provide emotional support, disseminate information, and foster communities among mothers facing similar challenges, ultimately contributing to better care strategies and professional awareness for supporting families dealing with congenital toxoplasmosis.

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来源期刊
Children-Basel
Children-Basel PEDIATRICS-
CiteScore
2.70
自引率
16.70%
发文量
1735
审稿时长
6 weeks
期刊介绍: Children is an international, open access journal dedicated to a streamlined, yet scientifically rigorous, dissemination of peer-reviewed science related to childhood health and disease in developed and developing countries. The publication focuses on sharing clinical, epidemiological and translational science relevant to children’s health. Moreover, the primary goals of the publication are to highlight under‑represented pediatric disciplines, to emphasize interdisciplinary research and to disseminate advances in knowledge in global child health. In addition to original research, the journal publishes expert editorials and commentaries, clinical case reports, and insightful communications reflecting the latest developments in pediatric medicine. By publishing meritorious articles as soon as the editorial review process is completed, rather than at predefined intervals, Children also permits rapid open access sharing of new information, allowing us to reach the broadest audience in the most expedient fashion.
期刊最新文献
Decoding Apelin: Its Role in Metabolic Programming, Fetal Growth, and Gestational Complications. Development and Validation of a Diagnostic Algorithm for Down Syndrome Using Birth Certificate and International Classification of Diseases Codes. Parenting in the Face of Trauma: Music Therapy to Support Parent-Child Dyads Affected by War and Displacement. Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review. Digital Narratives: The Impact of Instagram® on Mothers of Children with Congenital Toxoplasmosis.
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