拉美裔肾衰竭患者的家庭透析:对跨学科透析临床医生的定性研究。

IF 3.2 Q1 UROLOGY & NEPHROLOGY Kidney360 Pub Date : 2024-11-12 DOI:10.34067/KID.0000000642
Katherine Rizzolo, Rebeca Gonzalez Jauregui, Jade Teakell, Michel Chonchol, Sushrut S Waikar, Lilia Cervantes
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引用次数: 0

摘要

背景:拉美裔人的肾衰竭发病率是非拉美裔人的 2 倍,而且不太可能使用家庭透析疗法。在这项定性研究中,我们对跨学科的家庭透析临床医生进行了访谈,以了解临床医生为提高拉美裔社区的家庭透析率而采用的关键因素和策略:方法:2021 年 11 月至 2023 年 3 月期间,对科罗拉多州丹佛市和德克萨斯州休斯敦市的 25 名跨学科家庭透析临床医生进行了一对一的半结构化访谈。对访谈进行了录音、转录,并采用主题分析法进行了分析:结果:我们确定了三个主题,分别关注临床医生在拉美裔社区家庭透析患者中的不同宣传层面:(1) 患者个人层面的宣传(帮助患者克服家庭透析所面临的社会挑战、培养个性化关系、通过面对面与电话语言翻译对患者进行教育、了解沟通中的文化差异),(2) 了解患者对透析方式决策的影响(认识到与临床教育者和患者同伴保持文化一致的重要性,结合患者的生活经历、与患者建立联系),(3) 患者个人层面的宣传(帮助患者克服家庭透析所面临的社会挑战、培养个性化关系、通过面对面与电话语言翻译对患者进行教育、了解沟通中的文化差异)、结合患者的生活经历,与患者的社会支持网络建立联系,强调就业的更大灵活性,强调与文化相符的食物的灵活性),以及 (3) 改变透析机构层面的教育方式(规范常规和重复的方式教育,促进以患者为中心的早期教育)。结论:临床医生概述了在患者和系统层面为改善拉丁裔群体的家庭透析机会所做的努力;特别是,个人和系统层面的宣传是以信任关系和个性化教育为基础的。未来如果能采取干预措施,提高透析方式教育的质量和个性化程度,并将拉丁裔的文化价值观融入其中,就能改善拉丁裔肾病患者获得家庭透析的机会。
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Home Dialysis for Latinx Individuals Living with Kidney Failure: A Qualitative Study of Interdisciplinary Dialysis Clinicians.

Background: Latinx individuals experience 2 times the incidence of kidney failure compared to non-Latinx individuals and are less likely to utilize home dialysis therapies. In this qualitative study, interdisciplinary home dialysis clinicians were interviewed to understand the key factors and strategies used by clinicians to improve home dialysis uptake among the Latinx community.

Methods: One-to-one, semi-structured interviews were conducted between November 2021 and March 2023 with 25 home dialysis interdisciplinary clinicians in Denver, Colorado and Houston, Texas. Interviews were audio-recorded, transcribed, and analyzed using thematic analysis.

Results: We identified three themes that focus on different levels of clinician advocacy in home dialysis uptake for the Latinx community: (1) Individual patient-level advocacy (helping patients overcome social challenges to home dialysis, cultivating personalized relationships, educating patients with in-person versus phone language interpretation, understanding cultural differences in communication), (2) Understanding patient influences on modality decision-making (acknowledging the importance of cultural concordance with clinician educator and patient peers, incorporating the patient lived experience, connecting with a patient's social support network, highlighting greater flexibility for employment, underscoring flexibility with culturally concordant foods) and (3) Changes to education at the dialysis facility level (standardizing routine and repeated modality education, promoting early and patient-centered education).

Conclusions: Clinicians outlined efforts to improve access to home dialysis for Latinx groups on the patient and system level; in particular, individual and system level advocacy was grounded in trusting relationships and personalized education. A future intervention that improves the quality and personalization of dialysis modality education incorporating Latinx cultural values may improve access to home dialysis for Latinx people with kidney disease.

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Kidney360
Kidney360 UROLOGY & NEPHROLOGY-
CiteScore
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