为智障及/或自闭症儿童家庭提供正面家庭关系的计划受助人及促进者经验。

IF 2.1 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL Journal of Applied Research in Intellectual Disabilities Pub Date : 2024-12-19 DOI:10.1111/jar.70003

Daniel Sutherland, Samantha Flynn, Joanna Griffin, Richard P. Hastings

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引用次数: 0

摘要

背景：发育性残疾儿童的家庭成员平均报告家庭功能和心理健康较差。积极的家庭联系是一个共同制作的，面向积极的家庭系统支持计划，为8-13岁发育性残疾儿童的家庭提供支持。我们调查了积极家庭关系的经验，以及改变所涉及的过程。方法：对8名参与“积极家庭联系”的家庭照顾者和9名辅导员进行半结构化访谈。数据采用框架分析法进行分析。结果：项目接受者和促进者普遍报告了积极家庭关系的积极经历，并描述了对健康和家庭关系的有益影响。我们开发了一个模型，显示促进者的生活经验和积极的方法如何导致孤立的减少和心态的感知变化，这些变化被描述为改善家庭照顾者的福祉和家庭关系。结论：积极的家庭关系似乎是一个可接受的方案，方案接受者和促进者认为是有益的。

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Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children With Intellectual Disabilities and/or Who Are Autistic

Background

Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8–13. We investigated experiences of Positive Family Connections, and the processes involved in change.

Method

We conducted semi-structured interviews with eight family carers who took part in Positive Family Connections and nine facilitators. Data were analysed using framework analysis.

Results

Programme recipients' and facilitators generally reported positive experiences of Positive Family Connections and described beneficial effects on wellbeing and family relationships. We developed a model showing how the lived experience of facilitators and positive approach led to reductions in isolation and perceived changes in mindset that were described as improving family carers' wellbeing and family relationships.

Conclusions

Positive Family Connections appears to be an acceptable programme which programme recipients and facilitators perceive to be beneficial.

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.