医疗家长式作风的时代?——19世纪德国对医疗信息披露和患者同意的反思]。

Karen Nolte
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摘要

德国医学伦理学的历史研究仍然认为19世纪是医学家长制的时代。德国医生的专制态度被特别强调,他们假设病人通常不参与有关严重治疗措施的决定。本文将分析19世纪上半叶,医生是否以及如何处理医疗披露和患者同意有关手术和其他痛苦干预的问题。医生很少在他们关于医学伦理的文章中处理这个问题,而是在描述有风险的治疗干预措施时反映了披露和同意的问题。他们相当重视对决策过程的描述,特别是在危及生命的手术的医疗病例报告中。期望的好处和手术干预的风险经常被详细解释。对他们来说,重要的是不仅要通过获得患者的同意来使他们的冒险行动合法化,而且要证明重病患者实际上在决定是否进行危及生命的手术方面发挥了积极的、有要求的作用。值得注意的是,即使是社会阶层较低的病人,医生们也强调有必要征得他们的同意进行有风险的手术干预。然而,如果患者被医生全面告知所涉及的风险,就不能确定。然而,医生们意识到这种披露的必要性,正如他们在发表的病例报告中所表达的修辞“自我塑造”,是毋庸置疑的。
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[An age of medical paternalism?--Reflections on medical disclosure and patient consent in 19th century Germany].

Research on the history of medical ethics in Germany still regards the nineteenth century as the age of medical paternalism. The authoritarian manner of German physicians is particularly emphasised by assuming that patients were normally not involved in decisions about serious therapeutic measures. This paper will analyse if and how physicians dealt with the issues of medical disclosure and of patient consent concerning surgery and other painful interventions in the first half of the nineteenth century. Physicians rarely dealt with this problem in their articles on medical ethics but reflected, instead, on the issues of disclosure and consent in descriptions of risky therapeutic interventions. They devoted considerable attention to the description of the decision making process, particularly in medical case reports on life-threatening surgery. The benefits hoped for and the risks of the surgical intervention were frequently explained in detail. It was important for them not only to legitimise their adventurous course of action by obtaining patients' consent but also to demonstrate that the seriously ill patients in reality played the active, demanding part in the decision on life-threatening surgery. It is remarkable that, even where patients from lower social classes were concerned, physicians stressed the necessity of obtaining their consent for risky surgical interventions. However, it cannot be established with certainty if the patients were comprehensively informed by the physicians about the risks involved. Nevertheless, physicians' awareness of the necessity of such disclosure, as expressed by their rhetorical "self-fashioning" in the published case reports, is beyond doubt.

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