寻找口吃的生物学解释的希望的残废本质

IF 2.1 3区 医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY Journal of Fluency Disorders Pub Date : 2022-06-01 DOI:10.1016/j.jfludis.2022.105906
Prabhat , Ellen Rombouts , Pascal Borry
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引用次数: 2

摘要

发现发育性口吃的生物学解释一直是人们关注的焦点。基因组学和神经科学的新进展使分离和查明与口吃有关的基因和大脑差异成为可能。这给人们带来了希望,如果能更好地理解口吃的生物学基础,未来就能更好地控制语言障碍。与此同时,还有另一种希望正在兴起:希望未来不同的流利程度不会通过生物学和相关病理的简化镜头来看待。这篇论文的中心目的是消除对口吃生物学解释的新研究的伦理影响。在这样做的过程中,本文建议超越残疾的医学和社会模式所描绘的分歧。这篇论文展示了发现口吃的生物学解释的科学希望如何成为残疾的附属品,因为在报告科学发现时使用了“缺乏”和“缺陷”的语言,并建议对口吃者进行参与性研究,作为管理这种残疾的解毒剂。
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The disabling nature of hope in discovering a biological explanation of stuttering

Discovering developmental stuttering’s biological explanation has been an enduring concern. Novel advances in genomics and neuroscience are making it possible to isolate and pinpoint genetic and brain differences implicated in stuttering. This is giving rise to a hope that, in the future, dysfluency could be better managed if stuttering’s biological basis could be better understood. Concurrent to this, there is another hope rising: a hope of a future where differing fluencies would not be viewed through a reductive lens of biology and associated pathologies. The central aim of this paper is to edge out ethical implications of novel research into stuttering’s biological explanation. In doing so, the paper proposes to look beyond the bifurcation sketched by the medical and social model of disability. The paper demonstrates how the scientific hope of discovering stuttering’s biological explanation acts as an accessory of disablement due to the language of ‘lack’ and ‘deficit’ employed in reporting scientific findings and proposes participatory research with people who stutter as an antidote to manage this disablement.

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来源期刊
Journal of Fluency Disorders
Journal of Fluency Disorders AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
3.70
自引率
14.30%
发文量
23
审稿时长
>12 weeks
期刊介绍: Journal of Fluency Disorders provides comprehensive coverage of clinical, experimental, and theoretical aspects of stuttering, including the latest remediation techniques. As the official journal of the International Fluency Association, the journal features full-length research and clinical reports; methodological, theoretical and philosophical articles; reviews; short communications and much more – all readily accessible and tailored to the needs of the professional.
期刊最新文献
Corrigendum to "Do dyslexia and stuttering share a processing eficit?", [Journal of Fluency Disorders, 67 (2021) 105827]. Editorial Board A theory building critical realist evaluation of an integrated cognitive-behavioural fluency enhancing stuttering treatment for school-age children. Part 1: Development of a preliminary program theory from expert speech-language pathologist data. Public attitudes toward stuttering and cluttering in Chinese and Japanese speech-language pathology students Mitigating stuttering self-stigma: How do we start and where do we go? Using a Participative Concept Mapping Approach to develop a local framework of principles
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