{"title":"寻找口吃的生物学解释的希望的残废本质","authors":"Prabhat , Ellen Rombouts , Pascal Borry","doi":"10.1016/j.jfludis.2022.105906","DOIUrl":null,"url":null,"abstract":"<div><p><span>Discovering developmental stuttering’s biological explanation has been an enduring concern. Novel advances in genomics and neuroscience<span> are making it possible to isolate and pinpoint genetic and brain differences implicated in stuttering. This is giving rise to a hope that, in the future, dysfluency could be better managed if stuttering’s biological basis could be better understood. Concurrent to this, there is another hope rising: a hope of a future where differing fluencies would not be viewed through a reductive lens of biology and associated pathologies. The central aim of this paper is to edge out ethical implications of novel research into stuttering’s biological explanation. In doing so, the paper proposes to look beyond the bifurcation sketched by the medical and </span></span>social model of disability. The paper demonstrates how the scientific hope of discovering stuttering’s biological explanation acts as an accessory of disablement due to the language of ‘lack’ and ‘deficit’ employed in reporting scientific findings and proposes participatory research with people who stutter as an antidote to manage this disablement.</p></div>","PeriodicalId":49166,"journal":{"name":"Journal of Fluency Disorders","volume":"72 ","pages":"Article 105906"},"PeriodicalIF":2.1000,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"2","resultStr":"{\"title\":\"The disabling nature of hope in discovering a biological explanation of stuttering\",\"authors\":\"Prabhat , Ellen Rombouts , Pascal Borry\",\"doi\":\"10.1016/j.jfludis.2022.105906\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><p><span>Discovering developmental stuttering’s biological explanation has been an enduring concern. Novel advances in genomics and neuroscience<span> are making it possible to isolate and pinpoint genetic and brain differences implicated in stuttering. This is giving rise to a hope that, in the future, dysfluency could be better managed if stuttering’s biological basis could be better understood. Concurrent to this, there is another hope rising: a hope of a future where differing fluencies would not be viewed through a reductive lens of biology and associated pathologies. The central aim of this paper is to edge out ethical implications of novel research into stuttering’s biological explanation. In doing so, the paper proposes to look beyond the bifurcation sketched by the medical and </span></span>social model of disability. The paper demonstrates how the scientific hope of discovering stuttering’s biological explanation acts as an accessory of disablement due to the language of ‘lack’ and ‘deficit’ employed in reporting scientific findings and proposes participatory research with people who stutter as an antidote to manage this disablement.</p></div>\",\"PeriodicalId\":49166,\"journal\":{\"name\":\"Journal of Fluency Disorders\",\"volume\":\"72 \",\"pages\":\"Article 105906\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2022-06-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"2\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Fluency Disorders\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0094730X22000110\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Fluency Disorders","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0094730X22000110","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY","Score":null,"Total":0}
The disabling nature of hope in discovering a biological explanation of stuttering
Discovering developmental stuttering’s biological explanation has been an enduring concern. Novel advances in genomics and neuroscience are making it possible to isolate and pinpoint genetic and brain differences implicated in stuttering. This is giving rise to a hope that, in the future, dysfluency could be better managed if stuttering’s biological basis could be better understood. Concurrent to this, there is another hope rising: a hope of a future where differing fluencies would not be viewed through a reductive lens of biology and associated pathologies. The central aim of this paper is to edge out ethical implications of novel research into stuttering’s biological explanation. In doing so, the paper proposes to look beyond the bifurcation sketched by the medical and social model of disability. The paper demonstrates how the scientific hope of discovering stuttering’s biological explanation acts as an accessory of disablement due to the language of ‘lack’ and ‘deficit’ employed in reporting scientific findings and proposes participatory research with people who stutter as an antidote to manage this disablement.
期刊介绍:
Journal of Fluency Disorders provides comprehensive coverage of clinical, experimental, and theoretical aspects of stuttering, including the latest remediation techniques. As the official journal of the International Fluency Association, the journal features full-length research and clinical reports; methodological, theoretical and philosophical articles; reviews; short communications and much more – all readily accessible and tailored to the needs of the professional.