Journal of Fluency Disorders最新文献

Development of a stand-alone eHealth treatment: iCamperdown 独立电子健康治疗的发展：iCamperdown

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-12-16 DOI: 10.1016/j.jfludis.2025.106189

Constance Alateras , Susan O’Brian , Mark Onslow , Anna Hearne , Brenda Carey , Ross Menzies , Ann Packman , Robyn Lowe

Purpose

eHealth treatments have been developed for a range of conditions. They provide an accessible, cost-effective, and convenient model for clients and families to access treatment. The aim of this paper is to provide details and results of user testing of an eHealth speech treatment for adults who stutter: iCamperdown.

Method

An iterative user-testing process was conducted using a think-aloud method and structured questionnaires. End users were adults who stutter and speech-language pathologists (SLPs).

Results

Based on user feedback, the program underwent several modifications. Changes made to the program included functional enhancements. These include automatic activation of audio instructions on each page to improve navigation, aesthetic modifications to improve acceptability such as rearranging of information, changes to instructions provided to users to improve clarity, and enhancing the quality of audio recordings to increase efficiency.

Conclusion

The iCamperdown program is now ready to be evaluated with a Phase I clinical trial, focussing on evaluating safety, compliance, and preliminary outcomes. Further clinical trialing could investigate baseline predictors and treatment moderators to identify which individuals are most likely to benefit from the program. iCamperdown has advantages and disadvantages, which we explore. We explore the prospect of automating iCamperdown with advanced machine learning techniques. Potentially, the iCamperdown Program for stuttering reduction, with translation into other world languages besides English, could be a transformative change to SLP practices internationally.

目的针对一系列疾病已经开发出保健治疗方法。它们为客户和家庭提供了一种可获得、具有成本效益和方便的治疗模式。这篇论文的目的是提供电子健康治疗成人口吃的细节和结果。方法采用有声思考法和结构化问卷进行迭代用户测试过程。最终用户是口吃的成年人和语言病理学家（slp）。基于用户反馈，程序进行了几次修改。对程序所做的更改包括功能增强。这些措施包括在每个页面上自动激活音频指令以改进导航，对美学进行修改以提高可接受性，如重新排列信息，更改提供给用户的指令以提高清晰度，以及提高音频记录的质量以提高效率。iCamperdown项目现在已经准备好进行I期临床试验，重点是评估安全性、依从性和初步结果。进一步的临床试验可以调查基线预测因子和治疗调节因子，以确定哪些个体最有可能从该计划中受益。我们将探讨iCamperdown的优点和缺点。我们探索了用先进的机器学习技术自动化iCamperdown的前景。iCamperdown减少口吃的项目，通过翻译成英语以外的其他世界语言，可能会对国际上的口吃实践产生革命性的变化。

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引用次数: 0

Stuttering and neurodiversity: A question of ableism or anti-ableism? One central premise: The person who stutters 口吃和神经多样性：残疾歧视还是反残疾歧视的问题？一个中心前提是：口吃的人。

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-12-12 DOI: 10.1016/j.jfludis.2025.106188

Martine Vanryckeghem

Purpose

The purpose of this position statement is to lay the foundation for an open-minded discourse by embracing neurodiversity in assessment and treatment of the person who stutters and to bring attention to the central premise: the person who stutters.

Method

A reflection on recent publications and conference presentations that discuss an unnuanced and narrow-minded ableist versus anti-ableist approach to the assessment and treatment of people who stutter. Many of those are not data-bound and lead to confusion and a perception of professional failure, certainly among junior speech-language pathologists.

Conclusions

This is an appeal for a discussion of what is being portrayed as opposing approaches to the clinical management of people who stutter. Starting with a solid operational definition, an open-minded discourse needs to take place aiming for a balanced, client-centered approach that respects the aspiration of the individual who stutters and supports their self-defined goals. This is an appeal to reclaim the middle ground where acceptance and change are not mutually exclusive, and therapeutic practice is guided by autonomy, inclusivity, and shared decision-making.

目的：本立场声明的目的是通过在口吃者的评估和治疗中采用神经多样性，为一种开放的话语奠定基础，并引起人们对中心前提的关注：口吃者。方法：对最近的出版物和会议报告进行反思，这些出版物和会议报告讨论了评估和治疗口吃者的不细致和狭隘的残疾主义者与反残疾主义者的方法。其中许多都没有数据约束，导致混乱和专业失败的感觉，尤其是在初级语言病理学家中。结论：这是一个呼吁讨论什么是被描绘为对立的方法来临床管理口吃的人。从一个可靠的操作定义开始，需要进行一个开放的讨论，以一种平衡的、以客户为中心的方法为目标，尊重口吃者的愿望，并支持他们自己定义的目标。这是一种重新寻求中间立场的呼吁，在中间立场上，接受和改变不是相互排斥的，治疗实践是由自主、包容和共同决策指导的。

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引用次数: 0

Brain stimulation in stuttering: Participant experiences with transcranial Direct Current Stimulation (tDCS) 脑刺激治疗口吃：经颅直流电刺激（tDCS）的参与者体验

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-12-07 DOI: 10.1016/j.jfludis.2025.106187

Feyzanur Ocak , Özlem Oğuz

There is growing interest in non-invasive brain stimulation techniques such as transcranial direct current stimulation (tDCS) in stuttering therapy. However, limited information is available on how such innovative interventions are perceived by target participants. The aim of this study was to qualitatively examine the acceptability and social validity of tDCS in individuals with developmental stuttering in the context of participants’ experiences and perceptions of the intervention process and changes in their social lives. The study was based on semi-structured interviews with 10 adults with developmental stuttering who had previously participated in the active tDCS stimulation group. Data were analyzed using inductive thematic analysis. Five main themes were identified: (1) reasons for participation; (2) perception of the intervention and emotional responses; (3) experiences related to the intervention process; (4) perceived effects of tDCS and (5) recommendations for the future. Participants reported temporary fluency improvements and increased self-confidence, emphasizing that the intervention was generally manageable and acceptable. These subjective evaluations offer insight into how tDCS was experienced without implying clinical efficacy. Results should be interpreted with caution, as interviews were conducted without blinding and responses may have been influenced by social desirability or complicity bias. Importantly, despite prior quantitative measurements from the same intervention showing no significant objective improvements in speech fluency, participants still described positive subjective experiences. This contrast between quantitative outcomes and experiential reports highlights the importance of incorporating individuals’ perceptions into evaluations of novel therapeutic approaches. Participants’ hopes and suggestions provide valuable guidance for future developments in the field.

非侵入性脑刺激技术如经颅直流电刺激（tDCS）在口吃治疗中的应用越来越受到关注。然而，关于目标参与者如何看待这种创新干预措施的信息有限。本研究的目的是在被试对干预过程和社会生活变化的经历和感知的背景下，定性地检验发展性口吃患者对tDCS的接受度和社会效度。这项研究基于对10名患有发育性口吃的成年人的半结构化访谈，这些人之前都参加过主动tDCS刺激组。数据分析采用归纳专题分析。确定了五个主要主题：(1)参与的原因；(2)干预知觉与情绪反应；(3)干预过程的相关经验；(4) tDCS的感知效应和(5)对未来的建议。参与者报告说，他们的流利程度有了暂时的提高，自信心也增强了，强调干预总体上是可以管理和接受的。这些主观评价提供了对tDCS如何经历的见解，而不暗示临床疗效。结果应谨慎解释，因为访谈是在没有盲法的情况下进行的，回答可能受到社会期望或同谋偏见的影响。重要的是，尽管先前来自同一干预的定量测量显示，在语言流利性方面没有显着的客观改善，但参与者仍然描述了积极的主观体验。定量结果和经验报告之间的对比突出了将个体感知纳入新治疗方法评估的重要性。与会者的希望和建议为该领域的未来发展提供了宝贵的指导。

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引用次数: 0

Content validity of AI-generated stuttering assessment and intervention programs based on expert review: A comparative analysis across age groups and language versions 基于专家评审的人工智能生成的口吃评估和干预方案的内容效度：跨年龄组和语言版本的比较分析

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-12-03 DOI: 10.1016/j.jfludis.2025.106186

Ayşe Nur Koçak , Melis Buse Arslan

Purpose

This study aimed to evaluate the content validity and inter-rater reliability of stuttering assessment and intervention programs generated by artificial intelligence (GPT-4) in both Turkish and English for preschool, school-age, and adult populations. It also examined whether linguistic or cultural differences affected expert evaluations.

Methods

Twelve AI-generated programs (six in Turkish, six in English) were reviewed by twelve certified speech-language pathologists specializing in fluency disorders. Each item was rated using a 5-point Likert scale. Descriptive statistics, Cronbach’s Alpha, and Intraclass Correlation Coefficients (ICC) were calculated to assess consistency and reliability.

Results

The majority of items were rated as appropriate or highly appropriate (M = 4.6–4.9). The overall reliability among raters was poor (ICC = 0.45), while single-rater reliability was higher (ICC = 0.65). Only a small number of items were flagged for revision, typically involving emotional or contextual components. Experts noted that English versions tended to be more detailed and literature-consistent, whereas certain Turkish terms required clearer cultural adaptation.

Conclusion

GPT-4 can produce clinically relevant and linguistically accurate stuttering materials when paired with expert review. However, human validation remains essential to refine affective and culture-specific elements. These findings support the integration of AI-assisted tools in multilingual clinical content development.

目的本研究旨在评估人工智能生成的口吃评估和干预方案（GPT-4）在土耳其语和英语中的内容效度和量表间信度，该方案适用于学龄前、学龄和成年人群。它还研究了语言或文化差异是否会影响专家的评估。方法12个人工智能生成的程序（6个土耳其语，6个英语）由12位专业从事流利性障碍的认证语言病理学家进行审查。每个项目都使用5分李克特量表进行评分。计算描述性统计、Cronbach’s Alpha和类内相关系数（ICC）来评估一致性和可靠性。结果大多数项目被评为适宜或高度适宜（M = 4.6 ~ 4.9）。评分者的整体信度较差（ICC = 0.45），而单评分者的信度较高（ICC = 0.65）。只有少数项目被标记为需要修改，通常涉及情感或上下文成分。专家指出，英文版本往往更详细和文献一致，而某些土耳其语术语需要更明确的文化适应。结论pt -4配合专家评语，可获得临床相关、语言准确的口吃材料。然而，人类验证对于完善情感和文化特定元素仍然至关重要。这些发现支持将人工智能辅助工具整合到多语言临床内容开发中。

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引用次数: 0

Mental well-being, emotional-cognitive processing, and attention skills in individuals with cluttering 杂乱个体的心理健康、情绪认知处理和注意力技能

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-11-27 DOI: 10.1016/j.jfludis.2025.106184

Yasmin Horev Nahum, Gil Zukerman, Michal Icht

Background

Cluttering is a fluency disorder marked by a rapid and irregular speech rate and articulation difficulties such as “slurred” speech and sound omissions. These speech disruptions reduce intelligibility and negatively impact communication. Treatment for individuals with cluttering typically focuses on improving their speech clarity and fluency. In contrast, while addressing speech disruptions, treatment for stuttering, a related fluency disorder, extends to include psychological and emotional aspects. This broader approach is based on research linking stuttering to mental health indicators such as depression, anxiety, and attention disorders, as well as to psychological flexibility. These emotional and psychological aspects and their associations remain underexplored in the context of cluttering.

Objective

To examine mental well-being, emotional-cognitive processing, and attention abilities in individuals with cluttering and to explore the relationships between these measures.

Method

Thirty-one adults diagnosed with cluttering completed questionnaires designed to assess mental well-being (i.e., anxiety, depression, somatic complaints), emotional-cognitive processing (alexithymia, psychological flexibility), and attention skills.

Results

High rates of anxiety symptoms, somatic complaints, reduced emotional-cognitive processing (high alexithymia), and attention difficulties were found among the study participants. Typical levels of psychological flexibility were observed. Alexithymia was associated with lower well-being.

Conclusions

Our results suggest that lower mental well-being levels and higher rates of alexithymia symptoms and attention difficulties characterize individuals with cluttering. Accordingly, we recommend including an assessment of these factors in cluttering diagnosis. In treating cluttering, similar to stuttering treatment, it is advisable to address emotional aspects, specifically by methods designed to enhance emotional-cognitive processing.

语言混乱是一种语言流利障碍，其特征是语速过快且不规则，发音困难，如“口齿不清”和声音遗漏。这些言语中断降低了可理解性，并对沟通产生了负面影响。对口吃患者的治疗通常侧重于提高他们的语言清晰度和流利度。相比之下，在解决语言障碍的同时，对口吃（一种相关的流利障碍）的治疗扩展到包括心理和情感方面。这种更广泛的方法是基于将口吃与心理健康指标（如抑郁、焦虑、注意力障碍）以及心理灵活性联系起来的研究。这些情感和心理方面以及它们之间的联系在杂乱的背景下仍然没有得到充分的探索。目的研究杂乱症患者的心理健康状况、情绪认知加工和注意力能力，并探讨这些指标之间的关系。方法31名被诊断为杂乱的成年人完成了心理健康（焦虑、抑郁、躯体抱怨）、情绪认知加工（述情障碍、心理灵活性）和注意力技能的问卷调查。结果在研究参与者中发现了高比例的焦虑症状、躯体抱怨、情绪认知加工减少（述情障碍高）和注意力困难。观察到典型的心理灵活性水平。述情障碍与较低的幸福感有关。结论杂乱症患者的心理健康水平较低，述情障碍症状和注意力困难发生率较高。因此，我们建议在混乱诊断中包括对这些因素的评估。在治疗杂乱的过程中，与治疗口吃类似，建议解决情绪方面的问题，特别是通过旨在增强情绪认知处理的方法。

{"title":"Mental well-being, emotional-cognitive processing, and attention skills in individuals with cluttering","authors":"Yasmin Horev Nahum, Gil Zukerman, Michal Icht","doi":"10.1016/j.jfludis.2025.106184","DOIUrl":"10.1016/j.jfludis.2025.106184","url":null,"abstract":"<div><h3>Background</h3><div>Cluttering is a fluency disorder marked by a rapid and irregular speech rate and articulation difficulties such as “slurred” speech and sound omissions. These speech disruptions reduce intelligibility and negatively impact communication. Treatment for individuals with cluttering typically focuses on improving their speech clarity and fluency. In contrast, while addressing speech disruptions, treatment for stuttering, a related fluency disorder, extends to include psychological and emotional aspects. This broader approach is based on research linking stuttering to mental health indicators such as depression, anxiety, and attention disorders, as well as to psychological flexibility. These emotional and psychological aspects and their associations remain underexplored in the context of cluttering.</div></div><div><h3>Objective</h3><div>To examine mental well-being, emotional-cognitive processing, and attention abilities in individuals with cluttering and to explore the relationships between these measures.</div></div><div><h3>Method</h3><div>Thirty-one adults diagnosed with cluttering completed questionnaires designed to assess mental well-being (i.e., anxiety, depression, somatic complaints), emotional-cognitive processing (alexithymia, psychological flexibility), and attention skills.</div></div><div><h3>Results</h3><div>High rates of anxiety symptoms, somatic complaints, reduced emotional-cognitive processing (high alexithymia), and attention difficulties were found among the study participants. Typical levels of psychological flexibility were observed. Alexithymia was associated with lower well-being.</div></div><div><h3>Conclusions</h3><div>Our results suggest that lower mental well-being levels and higher rates of alexithymia symptoms and attention difficulties characterize individuals with cluttering. Accordingly, we recommend including an assessment of these factors in cluttering diagnosis. In treating cluttering, similar to stuttering treatment, it is advisable to address emotional aspects, specifically by methods designed to enhance emotional-cognitive processing.</div></div>","PeriodicalId":49166,"journal":{"name":"Journal of Fluency Disorders","volume":"87 ","pages":"Article 106184"},"PeriodicalIF":2.1,"publicationDate":"2025-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145625369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Comparison of Fear of Missing Out (FoMO) in Adults with and without Stuttering: Exploring the Relationship between FoMO and Psychological Resilience 有和无口吃成人错失恐惧（FoMO）的比较：FoMO与心理弹性的关系探讨

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-11-27 DOI: 10.1016/j.jfludis.2025.106185

Vildan Şen , Nurcan Alpüran Kocabıyık

Fear of Missing Out (FoMO) refers to the anxiety of missing potential experiences or opportunities. This study examined FoMO levels between people who stutter (PWS) and people who do not stutter (PWNS), explored the relationship between FoMO and psychological resilience in PWS and PWNS, and assessed the influence of age and gender on FoMO. The sample of this study consisted of 145 adults, including 65 PWS, 80 PWNS. Data were collected using a Personal Information Form, the Fear of Missing Out Scale for University Students, and the Brief Resilience Scale (BRS). Analyses were conducted using IBM SPSS 26.0 with a multivariate Generalized Linear Model (GLM) and correlation analyses. PWS scored significantly higher in the social dimension of FoMO, suggesting that PWS may experience greater anxiety about missing out in social contexts compared to PWNS. No significant differences were found between PWS and PWNS in terms of their total or private FoMO scores. Age and gender did not significantly affect FoMO scores. In contrast, PWS exhibited significantly lower psychological resilience compared to PWNS. While age had no significant impact on resilience, gender showed a significant effect on resilience in both groups. Men had significantly higher levels of psychological resilience than women. Additionally, a negative correlation was observed between FoMO and psychological resilience in both groups, suggesting that higher FoMO is associated with lower resilience. These results underscore the importance of addressing social challenges faced by PWS and enhancing psychological resilience through targeted psychosocial interventions. Promoting inclusive social participation may help mitigate FoMO-related anxiety and improve overall well-being in PWS.

错失恐惧症（Fear of Missing Out，简称FoMO）指的是对错过潜在经历或机会的焦虑。本研究考察了口吃者（PWS）和非口吃者（PWNS）的FoMO水平，探讨了PWS和PWNS中FoMO与心理弹性的关系，并评估了年龄和性别对FoMO的影响。本研究的样本包括145名成年人，其中PWS 65名，PWNS 80名。数据采用个人信息表、大学生错失恐惧量表和简短弹性量表（BRS）收集。采用IBM SPSS 26.0进行分析，采用多元广义线性模型（GLM）和相关分析。PWS在FoMO的社会维度上的得分明显更高，这表明与PWNS相比，PWS可能对错过社交环境感到更大的焦虑。PWS和PWNS在总FoMO得分和私人FoMO得分方面没有显著差异。年龄和性别对FoMO得分没有显著影响。与PWNS相比，PWS的心理弹性显著降低。年龄对心理弹性没有显著影响，性别对心理弹性有显著影响。男性的心理弹性水平明显高于女性。此外，在两组中，FoMO与心理弹性之间呈负相关，表明FoMO越高，心理弹性越低。这些结果强调了通过有针对性的社会心理干预来解决PWS面临的社会挑战和增强心理弹性的重要性。促进包容性社会参与可能有助于减轻fomo相关焦虑，改善PWS患者的整体幸福感。

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引用次数: 0

Concurrent cognitive load and lexical-semantic similarity judgments for action verbs and object nouns in Persian-speaking adults who stutter 波斯语口吃成人动作动词和客体名词的并发认知负荷和词汇语义相似性判断

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-11-19 DOI: 10.1016/j.jfludis.2025.106176

Tabassom Azimi , Zahra Sadat Ghoreishi , Reza Nilipour , Morteza Farazi , Akram Ahmadi , Pedram Aliniaye Asli

Purpose

This study examined whether lexical-semantic processing of action verbs versus object nouns is differentially affected by concurrent cognitive load in Persian-speaking adults who stutter (AWS), compared with adults who do not stutter (AWNS), using a dual-task paradigm.

Methods

Twenty-nine AWS and 29 matched AWNS performed a Semantic Similarity Judgment Task (SSJT) while simultaneously completing a tone-decision task. Tones were presented at short or long stimulus onset asynchronies (SOAs) relative to SSJT onset. SSJT stimuli included action verbs and non-action nouns. Reaction times (RTs) and accuracy were recorded.

Results

AWS exhibited slower overall RTs than AWNS (p = .04). A significant Group × Task interaction (p = .03) and Group × Task × SOA interaction (p = .04) revealed greater dual-task costs for AWS on the tone task, particularly under high cognitive load. Moreover, a significant group difference in SSJT RTs was observed (p = .03), especially for action verbs at short SOA (p = .04).

Conclusion

These findings indicate that AWS are more susceptible to interference from concurrent cognitive demands and may require greater attentional resources for processing action verbs. This highlights the role of cognitive-linguistic interactions in stuttering and the potential influence of cognitive load on speech fluency.

目的本研究采用双任务范式，考察波斯语口吃成人（AWS）与非口吃成人（AWNS）并发认知负荷对动作动词和客体名词词汇语义加工的影响。方法29个匹配的网络语音助手和29个匹配的网络语音助手在完成语调判断任务的同时执行语义相似性判断任务。音调呈现在短刺激或长刺激启动异步（soa）相对于SSJT启动。SSJT刺激包括动作动词和非动作名词。记录反应时间（RTs）和准确度。结果saws的总RTs比AWNS慢（p = .04）。组× 任务交互（p = .03）和组× 任务× SOA交互（p = .04）显示AWS在音调任务上的双任务成本更高，特别是在高认知负荷下。此外，SSJT RTs组间差异显著（p = ）。03)，特别是对于短SOA中的动作动词（p = .04）。结论脑动功能更容易受到并发认知需求的干扰，可能需要更多的注意资源来处理动作动词。这凸显了认知-语言相互作用在口吃中的作用，以及认知负荷对言语流畅性的潜在影响。

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引用次数: 0

Amelioration of acquired stuttering following thalamic deep brain stimulation 丘脑深部脑刺激后获得性口吃的改善

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-11-19 DOI: 10.1016/j.jfludis.2025.106174

Phoebe Matthews , Intouch Sopchokchai , Aisha Alkubaisi , Benjamin Ho , Stefan Lang , Christopher R. Honey

Purpose

Stuttering is a speech disorder that can have debilitating effects on quality of life. We present a case report of a patient with near complete resolution of acquired stuttering following thalamic deep brain stimulation (DBS) for essential tremor. A literature review of neuromodulation for both developmental and acquired stuttering is presented with proposed insights into the pathophysiology of acquired stuttering.

Method

A case report of a patient with acquired stuttering receiving thalamic DBS for essential tremor is presented. Clinical data on their stuttering severity and its impact on quality of life was prospectively collected before and six months after thalamic DBS for their essential tremor. Additional data on tremor severity, mood, cognition and overall quality of life are presented.

Results

At six months follow-up, there were significant improvements in the patient’s tremor and overall quality of life (as expected). There was also near complete resolution of their acquired stuttering and a resultant improvement in voice-related quality of life.

Conclusion

This case report details a patient with near complete resolution of acquired stuttering following thalamic deep brain stimulation for essential tremor. The Vim nucleus of the thalamus may play an important role in the pathophysiology of acquired stuttering. Additional studies will be needed to confirm the usefulness of thalamic DBS in acquired stuttering.

目的口吃是一种语言障碍，会对生活质量造成严重影响。我们报告一位病患在接受丘脑深部脑刺激（DBS）治疗特发性震颤后，获得性口吃几乎完全消失。对发育性和获得性口吃的神经调节进行了文献综述，并提出了对获得性口吃的病理生理学的见解。方法报告1例获得性口吃患者接受丘脑DBS治疗特发性震颤的病例。前瞻性收集他们的口吃严重程度及其对生活质量影响的临床数据，并在丘脑DBS治疗特发性震颤前和6个月后进行。另外还提供了震颤严重程度、情绪、认知和整体生活质量方面的数据。结果随访6个月，患者震颤症状及整体生活质量均有明显改善（如预期）。他们的后天口吃也几乎完全得到了解决，与语音相关的生活质量也得到了改善。结论本病例报告详细介绍了一例在丘脑深部脑刺激治疗特发性震颤后获得性口吃几乎完全消失的病例。丘脑Vim核可能在获得性口吃的病理生理中起重要作用。需要进一步的研究来证实丘脑起搏器在获得性口吃中的有效性。

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引用次数: 0

A professional perspective on EBP in stuttering: How far have we come in 20 years? 从专业角度看口吃患者的EBP: 20年来我们取得了多大进展？

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-11-17 DOI: 10.1016/j.jfludis.2025.106171

Nan Bernstein Ratner , Shelley B. Brundage

This article reviews a critique by Bernstein Ratner (2005) to identify progress made in applying EBP to stuttering intervention and areas in which less progress has been observed. Among indices of progress are plentiful basic science and therapy outcomes reports, broader views of effectiveness, and increased representation of people who stutter in program development and evaluation. Among concerns we discuss are: (1) continued disconnects between basic science to understand the nature of stuttering and the therapies we employ with our clients; (2) a need for better understanding of causal mechanisms and mediators of change in stuttering interventions; and (3) specific challenges that make it difficult to know if therapies for early stuttering work significantly better than spontaneous recovery. We also discuss the (4) merits of broadening goals for preschool-aged children and their families; and (5) discuss potential negative ramifications of weakly supported interventions and recommendations for children whose stuttering persists past preschool. We conclude with a section on (6) important questions and populations that we believe remain under- investigated.

本文回顾了Bernstein Ratner（2005）的一篇评论，以确定将EBP应用于口吃干预的进展以及进展较少的领域。进步的指标包括大量的基础科学和治疗结果报告，更广泛的有效性观点，以及在项目开发和评估中口吃者的代表性增加。我们讨论的问题包括：(1)理解口吃本质的基础科学与我们对客户使用的治疗方法之间的持续脱节；(2)需要更好地了解口吃干预措施变化的因果机制和中介因素；(3)具体的挑战使得很难知道早期口吃治疗是否比自然恢复效果更好。我们还讨论了(4)扩大学龄前儿童及其家庭目标的优点；(5)讨论弱支持的干预措施和建议对学龄前儿童口吃的潜在负面影响。我们以(6)重要的问题和我们认为仍有待调查的人群的部分结束。

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引用次数: 0

Working life experiences of people who stutter in Finland: Recommendations for enhancing inclusive communication at work 芬兰口吃者的工作生活经验：加强工作中包容性沟通的建议。

IF 2.1 3区医学 Q1 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY

Journal of Fluency Disorders

Pub Date : 2025-11-16 DOI: 10.1016/j.jfludis.2025.106175

Johanna Nissinen, Nelly Penttilä, Melisa Stevanovic, Veera Pirinen

Purpose

People who stutter (PWS) face public stigma, characterized by negative societal beliefs and stereotypes. Due to lack of awareness, PWS may be perceived as inferior and less intelligent, capable, and social, affecting their psychological well-being. While some aspects of the impact of stuttering—such as income, role entrapment, and discrimination—have been explored in previous research, less is known about the deeper personal experiences of PWS in working life. This study highlights the workplace experiences of PWS, their personal aspirations, and ideas for improvement. By understanding more of PWS' experiences and emotions related to communication at work, it is possible to create a more inclusive working life.

Method

Data were collected through an online survey from 45 Finnish participants over the age of 18 who stutter and have work experience. The data were analyzed using Interpretative Phenomenological Analysis (IPA) and thematic analysis.

Results

Over half the participants (n = 25, 56 %) reported that they do not speak openly about their stuttering within their current or previous work community. PWS described their experiences in terms of fears of public stigma, internalized stigma, and resisting stigma-driven assumptions. PWS expressed a desire for increased awareness of stuttering and for the promotion of greater inclusivity in working life.

Conclusion

Negative experiences of PWS often reflect broader societal attitudes. Participants suggested implementing flexible communication strategies to create inclusive workplaces, reducing microaggressions, supporting productivity, and enhancing job satisfaction. Embracing communication diversity can unlock employee potential and foster inclusivity. Respecting privacy and not requiring disclosure of personal information is crucial.

目的：口吃者面临着公众的耻辱感，其特征是负面的社会信仰和刻板印象。由于缺乏意识，PWS可能会被认为是低人一等、不聪明、不能干、不善于社交，从而影响他们的心理健康。虽然先前的研究已经探讨了口吃影响的某些方面，如收入、角色陷阱和歧视，但对PWS在工作生活中更深层次的个人经历知之甚少。这项研究强调了PWS的工作经历，他们的个人愿望和改进的想法。通过更多地了解PWS在工作中与沟通相关的经历和情绪，可以创造一个更具包容性的工作生活。方法：通过在线调查收集了45名18岁以上的芬兰口吃者和有工作经验的人的数据。采用解释现象学分析（IPA）和专题分析对数据进行分析。结果：超过一半的参与者（n = 25,56 %）报告说，他们不会在现在或以前的工作社区中公开谈论自己的口吃。PWS从恐惧公众污名、内化污名和抵制污名驱动的假设方面描述了他们的经历。PWS表示希望提高对口吃的认识，并在工作生活中促进更大的包容性。结论：PWS的负面经历往往反映了更广泛的社会态度。与会者建议实施灵活的沟通策略，以创造包容的工作场所，减少微侵犯，支持生产力，提高工作满意度。拥抱沟通多样性可以释放员工的潜力，促进包容性。尊重隐私和不要求披露个人信息是至关重要的。

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