通过将共享数据转化为数据资源,走向开放数据文化的旅程

IF 1.8 Q3 PUBLIC ADMINISTRATION Data & policy Pub Date : 2022-09-06 DOI:10.1017/dap.2022.22
Scott D. Kahn, A. Koralova
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引用次数: 0

摘要

向开放数据实践的过渡是直截了当的,尽管在很大程度上由于文化和政策问题而令人惊讶地具有挑战性。本文提出了一个通用的数据共享框架,以及两个案例研究,突出了这些挑战,并提供了切实可行的解决方案,这些解决方案可以根据收集的数据类型、开展研究的国家和流行的研究文化进行调整。在联邦和/或州一级制定数据隐私法之前,必须强调美国以外的数据必须接受数据隐私考虑所施加的限制,特别是对生物医学数据。
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A journey toward an open data culture through transformation of shared data into a data resource
Abstract The transition to open data practices is straightforward albeit surprisingly challenging to implement largely due to cultural and policy issues. A general data sharing framework is presented along with two case studies that highlight these challenges and offer practical solutions that can be adjusted depending on the type of data collected, the country in which the study is initiated, and the prevailing research culture. Embracing the constraints imposed by data privacy considerations, especially for biomedical data, must be emphasized for data outside of the United States until data privacy law(s) are established at the Federal and/or State level.
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3.10
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审稿时长
12 weeks
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