Self-advocate perspectives on COVID-19 in Urban Los Angeles: impacts on autonomy and access to supports

ABSTRACT Background Adults with disabilities in low-income communities of colour are disproportionately affected by the COVID-19 pandemic. Method We interviewed 14 self-advocates with intellectual and developmental disabilities (IDD) to learn more about their experiences during the peak of infections, hospitalisations, and deaths in Los Angeles, between December 2020 and March 2021. Results A modified grounded theory analysis revealed major themes of family, making choices & going places, formal services, and employment, which are discussed in relation to the participants' sense of autonomy and access to goods and services. Conclusions Implications for practice include increased access and training for adults with IDD in computer skills to maintain social engagement with video conferencing, and to utilise grocery delivery services.