Parents' initiative in community-based support for children with intellectual and developmental disabilities: The Ahada non-profit model.

Abstract

Background: The birth of a child with an intellectual or developmental disability inherently presents challenges to parents regarding the child's long-term future. This qualitative study examined the perceptions of parents who are kibbutz members, focusing on the non-profit organisation they established and the socioeconomic model they developed to ensure the future wellbeing of their children with intellectual and developmental disabilities.

Method: In-depth interviews were conducted with 12 participants and used a thematic analysis based on case study methodology.

Results: The socioeconomic model developed by kibbutz parents helps alleviate their concerns, but also gave rise to challenges related to kibbutz privatisation and the requirement for programs to be tailored to individual needs. The study highlighted how cooperation among families, the community, and government institutions can contribute to individual and collective solutions for people with disabilities.

Conclusion: These insights expand our understanding of parental social entrepreneurship within intentional communities and other contexts.