COVID-19与葡萄牙智力残疾成年人

Cristina P Albuquerque
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引用次数: 1

摘要

2019冠状病毒病大流行改变了包括葡萄牙在内的世界各地人民的生活。本研究探讨了流行病对葡萄牙智力残疾成年人及其家庭的几个生活领域的影响;确定有身份证的成年人实施最常见预防措施的困难程度;处理卫生当局的指导方针对在残疾人日托中心开展的活动的影响。共有33个日托中心参与了这项研究;在研究进行时(2020年9月15日至2020年10月15日),共有1192名成年人参加了这项研究,日托中心的一名专业人员回答了一项在线调查。结果表明:1)与会者一致认为,大流行对患有本病症的成年人及其家庭产生了负面影响,尽管只有一部分人这样认为;(2)在发生负面影响的成人和家庭中,负面影响是普遍化的,表现在各个生活领域;3)几乎所有的预防措施被认为难以适用于有身份证的成年人;4)参与者一致认为,卫生当局的指导方针影响了日托中心的活动,即活动减少了,现有的活动种类较少,更久坐,更经常在室内进行。必须处理大流行病对患有身份证的成年人、他们的家庭以及所提供的服务的负面影响。
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COVID-19 and Portuguese Adults with Intellectual Disabilities
The COVID-19 pandemic has changed the lives of people all over the world, including in Portugal. This study explores the impact of the pandemic on several life domains of Portuguese adults with Intellectual Disabilities (ID) and their families; identifies the difficulty level in the implementation of the most common preventive measures by adults with ID; addresses the consequences of health authorities’ guidelines in the activities carried out in daycare centers for people with disabilities. A total of thirty-three daycare centers participated; they were attended by a total of 1192 adults at the time the study took place (between the 15th of September 2020 and the 15th of October 2020), and a professional belonging to the daycare center answered an online survey. The results showed that: 1) participants agreed that the pandemic had a negative impact on adults with ID and their families, although only in a percentage of them; 2) in the cases of the adults and families where that negative impact occurred, it was generalized, expressing itself in various life domains; 3) almost all of the preventive measures where considered difficult to apply by adults with ID; 4) the participants agreed that the health authorities' guidelines influenced the activities that were performed in the daycare centers, i.e., there were less activities, and the existing ones were less diversified, more sedentary and occurring indoors more often. The implications of the negative impact of the pandemic on adults with ID, their families, and the services provided have to be addressed.
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来源期刊
Journal of Intellectual Disability - Diagnosis and Treatment
Journal of Intellectual Disability - Diagnosis and Treatment Social Sciences-Health (social science)
CiteScore
1.00
自引率
0.00%
发文量
29
期刊介绍: The journal aims to describe the research work on Intellectual Disability Diagnosis and Treatment in children and adults. It covers not just the technical aspects of the procedures in prenatal, newborn and postnatal screening, but also the impact which the process of testing and treatment has on individuals, parents, families and public-health in general. The journal seeks to publish, but is a not restricted to, Genetic Intellectual Disability Syndromes, using a range of approaches from medicine, psychiatry, psychology, pharmacy, biology, epidemiology, bioinformatics, biopharmaceutical to association and population studies as well as sociological, ethical, philosophical, legal and quality control issues with the ultimate goal of advancing the knowledge on the diagnosis, prevention, and treatment of the Intellectual Disabilities. The journal publishes original research articles, review articles, case reports and short communications(Letter article).
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