{"title":"漫长而曲折的道路:与癌症儿童一起度过他们的旅程","authors":"M. Hugo","doi":"10.14456/JUCR.2013.9","DOIUrl":null,"url":null,"abstract":"The WHO de!nes pediatric palliative care as a global model of attention to children with a disease that limits and/or threatens their life and their family life. This care should start with the diagnosis, even if this doesn’t imply a bad prognosis in a short time. It’s a comprehensive care strategy and philosophy and a life-af!rming approach. The music therapy approach is focused in helping children to walk through their disease contacting them with health, with empowerment, with life. Making music in different moments and scenarios, along with a supportive and empathic relationship, helps them !nd joy, meaning and hope. This paper will show different moments of this journey, and will try to convey the intensity and the richness that, as music therapists at the Pelluffo Giguens Foundation since 1999, we receive as music therapists sharing musical experiences with these children.","PeriodicalId":40637,"journal":{"name":"Journal of Urban Culture Research","volume":"6 1","pages":"92-97"},"PeriodicalIF":0.4000,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A Long and Winding Road: Musicing Along with Children with Cancer Through their Journey\",\"authors\":\"M. Hugo\",\"doi\":\"10.14456/JUCR.2013.9\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"The WHO de!nes pediatric palliative care as a global model of attention to children with a disease that limits and/or threatens their life and their family life. This care should start with the diagnosis, even if this doesn’t imply a bad prognosis in a short time. It’s a comprehensive care strategy and philosophy and a life-af!rming approach. The music therapy approach is focused in helping children to walk through their disease contacting them with health, with empowerment, with life. Making music in different moments and scenarios, along with a supportive and empathic relationship, helps them !nd joy, meaning and hope. This paper will show different moments of this journey, and will try to convey the intensity and the richness that, as music therapists at the Pelluffo Giguens Foundation since 1999, we receive as music therapists sharing musical experiences with these children.\",\"PeriodicalId\":40637,\"journal\":{\"name\":\"Journal of Urban Culture Research\",\"volume\":\"6 1\",\"pages\":\"92-97\"},\"PeriodicalIF\":0.4000,\"publicationDate\":\"2013-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Urban Culture Research\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.14456/JUCR.2013.9\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"0\",\"JCRName\":\"HUMANITIES, MULTIDISCIPLINARY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Urban Culture Research","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.14456/JUCR.2013.9","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"0","JCRName":"HUMANITIES, MULTIDISCIPLINARY","Score":null,"Total":0}
A Long and Winding Road: Musicing Along with Children with Cancer Through their Journey
The WHO de!nes pediatric palliative care as a global model of attention to children with a disease that limits and/or threatens their life and their family life. This care should start with the diagnosis, even if this doesn’t imply a bad prognosis in a short time. It’s a comprehensive care strategy and philosophy and a life-af!rming approach. The music therapy approach is focused in helping children to walk through their disease contacting them with health, with empowerment, with life. Making music in different moments and scenarios, along with a supportive and empathic relationship, helps them !nd joy, meaning and hope. This paper will show different moments of this journey, and will try to convey the intensity and the richness that, as music therapists at the Pelluffo Giguens Foundation since 1999, we receive as music therapists sharing musical experiences with these children.