成功的在线合唱团为痴呆症患者:定性的案例研究

Rebecca MacDonald, A. Zumbansen
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引用次数: 0

摘要

集体歌唱作为一种社交音乐活动,可以用来改善痴呆症患者和照顾者的生活质量、幸福感和整体健康。自2019冠状病毒病大流行以来,在线唱诗班的知名度有所提高;然而,在一个在线合唱团唱歌是一个不满意的经验,大多数合唱团成员在一般人群。为了报告为痴呆症患者创建在线合唱团的可行性,我们研究了一个成功的合唱团案例。这个合唱团在网上成立并持续了一年多,维持着一个大约十人的小组。目的是了解参与者的经验,并探讨促成其成功的因素。我们用封闭式和开放式的问题调查了12名成员(5名患有痴呆症的唱诗班成员、5名护理人员、唱诗班指挥和一名志愿者)。对响应的主题分析显示:(1)对痴呆症参与者来说,在线合唱团比没有合唱团好;(2)参与者在在线合唱团中寻找并发现了一种易于社交和享受唱歌的方式;(3)参加在线合唱团的障碍(主要与技术有关)与参加面对面合唱团的障碍(主要与旅行有关)不同。这个在线合唱团的成功可能部分归功于它最初是在网上开始的(成员们没有将这种经历与以前的面对面排练进行比较,并且有更灵活的期望);大多数痴呆患者有轻微的认知症状,并且有丰富的合唱经验。
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Successful Online Choir for People Living with Dementia: A Qualitative Case Study
Group singing as a social musical activity can be used to improve the quality of life, well-being, and overall health of people with dementia and caregivers. Online choirs have gained awareness since the COVID-19 pandemic; however, singing in an online choir is an unsatisfying experience for most choir members in the general population. In order to report on the feasibility of creating an online choir for people with dementia, we studied a successful case of such a choir. This choir began and continued online for over a year, maintaining a group of about ten people. The objectives were to understand the participants' experience and explore factors contributing to its success. We surveyed 12 members using closed and open-ended questions (5 choristers with dementia, 5 caregivers, the choir director, and a volunteer). The thematic analysis of the responses revealed that (1) an online choir is better than no choir for participants with dementia, (2) participants sought and found in the online choir an accessible way to socialize and enjoy singing, and (3) obstacles to participate in an online choir (mostly technology-related) are not the same as those to participate in an in-person choir (mostly travel related). The success of this online choir may in part be attributed to the fact that it first started online (the members did not compare the experience to previous in-person rehearsals and had more flexible expectations); most participants with dementia had mild cognitive symptoms and had extensive previous choral singing experience.
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