多发性硬化症患者对生活心理影响的看法

Q2 Social Sciences Illness Crisis and Loss Pub Date : 2021-04-07 DOI:10.1177/10541373211006883
Chrysoula Baka, K. Chatira, E. Karademas, K. Kafetsios
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引用次数: 2

摘要

多发性硬化症是一种慢性自身免疫性疾病,严重影响患者的身体和心理健康。本研究的目的是调查希腊被诊断为多发性硬化症的人(N = 30)的经历,包括他们应对诊断和症状的方式,疾病的心理影响以及他们归因于它的意义。通过半结构化访谈收集数据,并使用扎根理论对其进行分析。研究结果表明,尽管这种疾病有负面影响,而且很难诊断和控制症状,但有一半的患者认为这种疾病有积极意义。照顾好自己,重新评估生活和解放感被描述为经历多发性硬化症的积极结果。
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Patients’ Perspective on the Psychological Impact of Multiple Sclerosis on Their Life
Multiple sclerosis is a chronic autoimmune disorder that greatly impacts on patients’ physical and psychosocial wellbeing. The purpose of this study is to investigate the experiences of people diagnosed with multiple sclerosis in Greece (N = 30), with regard to the way they coped with the diagnosis and the symptoms, the psychological implications of the disorder and the meaning they attributed to it. Data were collected through semi-structured interviews and they were analyzed using grounded theory. The findings showed that despite the negative implications of the disorder and the difficulty in managing the diagnosis and the symptoms, half of the patients attributed positive meaning to the disorder. Taking care of oneself, re-evaluation of life and a sense of liberation were described as the positive outcomes of experiencing multiple sclerosis.
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来源期刊
Illness Crisis and Loss
Illness Crisis and Loss Social Sciences-Sociology and Political Science
CiteScore
1.80
自引率
0.00%
发文量
28
期刊介绍: When dealing with issues of grief, crisis, or loss as a counselor, medical professional, or researcher, it can be difficult to find resources to help you in your work. Receiving the most current research on the latest topics in the field from Illness, Crisis & Loss can help. Illness, Crisis & Loss is the resource that furthers your understanding and knowledge of the psychosocial and ethical issues associated with life-threatening illness, traumatic human crises, grief, and loss.
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