封锁生活--后天性脑损伤患者伴侣在 COVID-19 大流行期间的经历:一项定性研究。

IF 1.1 4区 医学 Q4 CLINICAL NEUROLOGY Brain Impairment Pub Date : 2023-09-01 Epub Date: 2023-03-20 DOI:10.1017/BrImp.2023.7
Erin M Beal, Cara Pelser, Peter Coates
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引用次数: 0

摘要

研究目的本研究旨在调查在 COVID-19 大流行的第一个封锁期内与后天性脑损伤(ABI)患者伴侣共同生活的个人经历:对七名后天性脑损伤患者的伴侣进行了半结构化访谈。访谈内容被逐字记录,两位研究人员对独特的叙述进行了主题分析:ABI 发生在一个关系框架内,这意味着它不仅会对个人产生影响,还会对整个家庭系统产生影响。COVID-19 使家庭系统(分开居住)无法聚在一起,这对他们产生了负面影响;然而,它也减缓了生活节奏,许多人在家工作,并做出了灵活的安排,参与者认为这是有益的。从访谈数据中得出了三大主题:关注伴侣、放慢生活节奏和支持网络。访谈者在叙述中指出了在面对面服务无法上门的情况下必须继续其伴侣的康复治疗所带来的挣扎、建立常规生活的重要性、生活节奏放慢(由于 COVID-19)所带来的积极因素,这使他们能够与伴侣建立更牢固的关系,以及与家人和亲人分离所带来的困难:这项研究表明,必须考虑个人的经历和选择。一些家庭从减少治疗和放慢生活节奏中获益,而另一些家庭则可能会感到难以承受和负担沉重。这项研究为在大流行期间为接受人工流产术后的夫妇提供支持提出了建议。
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Lockdown life - experiences of partners of individuals with an acquired brain injury during the COVID-19 pandemic: a qualitative study.

Objectives: The present study sought to investigate the experience of individuals living with their partner with an acquired brain injury (ABI) during the first lock down period of the COVID-19 pandemic.

Method: Semi-structured interviews were conducted with seven partners of individuals who had sustained a range of ABIs. Interviews were transcribed verbatim and thematic analysis was carried out by two of the researchers exploring the unique narratives.

Results: ABI occurs within a relational framework, which means that it has repercussions not only for the individual but also the entire family system. COVID-19 prevented family systems (living separately) from coming together which negatively impacted them; however, it also slowed life down, with many people working from home with flexible arrangements in place which participants found to be beneficial. Three main themes emerged from the interview data: partner focus, slowing down and support networks. The narratives identified the struggles of having to continue their partner's rehabilitation when face to face services could not visit the home, the importance of establishing routine, the positives of a slower paced life (due to COVID-19) that enabled them to build stronger relationships with their partners, and the difficulties of being separated from family and loved ones.

Conclusion: This research suggests that it is imperative to consider individual experiences and choices. Some families benefited from reduced treatment and a slowed pace of life, whilst others may find this overwhelming and burdensome. The study makes recommendations for supporting couples after an ABI during the ongoing pandemic.

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来源期刊
Brain Impairment
Brain Impairment CLINICAL NEUROLOGY-NEUROSCIENCES
CiteScore
1.10
自引率
0.00%
发文量
30
审稿时长
>12 weeks
期刊介绍: The journal addresses topics related to the aetiology, epidemiology, treatment and outcomes of brain impairment with a particular focus on the implications for functional status, participation, rehabilitation and quality of life. Disciplines reflect a broad multidisciplinary scope and include neuroscience, neurology, neuropsychology, psychiatry, clinical psychology, occupational therapy, physiotherapy, speech pathology, social work, and nursing. Submissions are welcome across the full range of conditions that affect brain function (stroke, tumour, progressive neurological illnesses, dementia, traumatic brain injury, epilepsy, etc.) throughout the lifespan.
期刊最新文献
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