书评:阿尔茨海默谈话,文本和语境:加强沟通

J. Small
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This volume is unique in that the majority of reported investigations were based on data collected as part of a longitudinal digital corpus of spontaneous conversation entitled the “Charlotte Narrative and Conversation Collection.” Data in the corpus have been collected since 1999 at intervals of once or twice a month, and are now available to researchers on the World Wide Web (http://newsouthvoices.uncc.edu/index.php). While this corpus includes conversational data from noncognitively impaired individuals in addition to persons with AD, the contributors to this volume drew primarily from the data of four residents with AD who resided in a not-for-profit retirement living community that included an Alzheimer’s wing. The conversations involving these residents with AD, although spontaneous, were guided for the most part by “experienced communicators” or educated interviewers. The majority of authors used qualitative descriptive and/or discourse analytic methods for the purposes of describing and interpreting the use and consequences of different aspects of language in particular sociocultural contexts. The book is divided into two parts: I. Talk and Text, and II. Text and Context. The contributed chapters, however, vary in the extent to which they relate to each part. Within each part, there is no apparent logic to the sequencing of the chapters, other than the Introduction (Davis) and Epilogue (Hamilton). Part I emphasizes the “social-relational” (e.g., identities) as opposed to the informational dimension of communication. The emphasis in part II is less clear, although it begins with a chapter on communication challenges and interventions (Byrne and Orange, Ch. 9) and is followed by several chapters advocating ways in which written text (Ryan, Spykerman, and Anas, Ch. 10; Russell-Pinson and Moore, Ch. 12) and/or information technology (Green, Ch. 11) can be used to promote effective communication with and for persons with AD. The quality of writing across chapters is generally quite good, and there are few editorial oversights. Content-wise, there are several complementary threads woven into the fabric of this collection: 1) social interactionist and constructivist approaches to understanding the complexities and outcomes of interpersonal communication; 2) promoting positive meaningful communication through affirming and supporting identity and personhood in AD; 3) the identification of strategies, activities, and contexts that may serve to enhance communication with persons who have AD; and 4) interand intraindividual variability in the communication behaviors of individuals with AD. The strengths of this volume include the multifaceted approaches that authors took in addressing both declines and abilities of persons with AD. On the one hand, a number of specific linguistic or discourse structures were identified that could be potential targets in developing compensatory intervention strategies. On the other hand, the effectiveness of compensatory strategies are presumably mediated by the relational context in which conversation takes place, in particular, the ways in which interlocutors position the person with AD. In this regard, the appeal of “lifecourse” (Shenk, Ch. 1) and “personhood” (Ryan et al., Ch. 2) approaches to communication is that they draw out and affirm individuals’ self-worth, strengths, desires, stories, and their past and ongoing contribution to the world around them. Such perspectives counteract the prevailing deficit-oriented social and biomedical construction of AD and replace these with meaningful reciprocity. In addition, as mentioned by Ryan and colleagues (Ch. 2), identity and personhood issues are relevant to any and every communication context, whereas the effectiveness of specific compensatory strategies (e.g., the form of a question) may change depending on contextual variables. 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引用次数: 0

摘要

阿尔茨海默病谈话,文本和上下文构成了作者从广泛的学科和经验背景的贡献的多样化集合。因此,从业人员、研究人员和普通公众都应该找到一些东西来推进他们对与阿尔茨海默病(AD)患者与其对话伙伴之间沟通的背景和挑战有关的各种问题的思考和实践,以及干预改善沟通的策略。该卷的独特之处在于,大多数报告的调查都是基于作为纵向数字语料库的自发对话的一部分收集的数据,该语料库名为“夏洛特叙事和对话集”。语料库中的数据从1999年开始每月收集一次或两次,现在研究人员可以在万维网(http://newsouthvoices.uncc.edu/index.php)上获得这些数据。虽然该语料库包括来自非认知障碍个体和AD患者的会话数据,但本卷的贡献者主要来自居住在一个非营利性退休生活社区的四位AD患者的数据,该社区包括阿尔茨海默氏症分会。这些AD患者的谈话虽然是自发的,但大部分是由“经验丰富的沟通者”或受过教育的采访者引导的。大多数作者使用定性描述和/或话语分析方法来描述和解释特定社会文化背景下语言的不同方面的使用和后果。全书分为两部分:一、对话与文字;二、对话与文字。文本和语境。然而,所提供的章节在与每个部分相关的程度上各不相同。在每个部分中,除了引言(戴维斯)和尾声(汉密尔顿)之外,章节的顺序没有明显的逻辑。第一部分强调“社会关系”(例如,身份),而不是沟通的信息维度。第二部分的重点不太清楚,尽管它以关于沟通挑战和干预的一章开始(Byrne和Orange,第9章),然后是几章倡导书面文本的方式(Ryan, Spykerman, and Anas,第10章;russel - pinson和Moore,第12章)和/或信息技术(Green,第11章)可用于促进与AD患者的有效沟通。跨章节的写作质量总体上是相当不错的,并且很少有编辑疏忽。在内容方面,有几条互补的线索编织在这个集合的结构中:1)社会互动主义和建构主义的方法来理解人际沟通的复杂性和结果;2)通过肯定和支持AD的身份和人格,促进积极有意义的沟通;3)确定可能有助于加强与AD患者沟通的策略、活动和环境;4) AD患者交流行为的个体间和个体内变异性。本卷的优势包括多方面的方法,作者采取了在解决下降和能力的人与AD。一方面,确定了一些特定的语言或话语结构,这些结构可能是制定补偿干预策略的潜在目标。另一方面,补偿策略的有效性可能受到对话发生的关系背景的调节,特别是对话者对AD患者的定位方式。在这方面,“生命历程”(Shenk,第1章)和“人格”(Ryan等人,第2章)沟通方法的吸引力在于,它们引出并肯定了个人的自我价值、优势、愿望、故事,以及他们过去和现在对周围世界的贡献。这样的观点抵消了AD普遍存在的以赤字为导向的社会和生物医学结构,并以有意义的互惠取而代之。此外,正如Ryan及其同事(第2章)所提到的,身份和人格问题与任何一种沟通情境都相关,而特定补偿策略(例如,问题的形式)的有效性可能会因情境变量而变化。因此,旨在促进交流的干预措施将有助于
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Book Review: Alzheimer Talk, Text and Context: Enhancing Communication
Alzheimer Talk, Text and Context constitutes a diverse collection of contributions by authors from a wide range of disciplinary and experiential backgrounds. As such, practitioners, researchers, and the lay public alike should all find something to advance their thinking and practices on a variety of issues related to the contexts and challenges of communication between persons with Alzheimer’s disease (AD) and their conversational partners, as well as strategies for intervening to improve communication. This volume is unique in that the majority of reported investigations were based on data collected as part of a longitudinal digital corpus of spontaneous conversation entitled the “Charlotte Narrative and Conversation Collection.” Data in the corpus have been collected since 1999 at intervals of once or twice a month, and are now available to researchers on the World Wide Web (http://newsouthvoices.uncc.edu/index.php). While this corpus includes conversational data from noncognitively impaired individuals in addition to persons with AD, the contributors to this volume drew primarily from the data of four residents with AD who resided in a not-for-profit retirement living community that included an Alzheimer’s wing. The conversations involving these residents with AD, although spontaneous, were guided for the most part by “experienced communicators” or educated interviewers. The majority of authors used qualitative descriptive and/or discourse analytic methods for the purposes of describing and interpreting the use and consequences of different aspects of language in particular sociocultural contexts. The book is divided into two parts: I. Talk and Text, and II. Text and Context. The contributed chapters, however, vary in the extent to which they relate to each part. Within each part, there is no apparent logic to the sequencing of the chapters, other than the Introduction (Davis) and Epilogue (Hamilton). Part I emphasizes the “social-relational” (e.g., identities) as opposed to the informational dimension of communication. The emphasis in part II is less clear, although it begins with a chapter on communication challenges and interventions (Byrne and Orange, Ch. 9) and is followed by several chapters advocating ways in which written text (Ryan, Spykerman, and Anas, Ch. 10; Russell-Pinson and Moore, Ch. 12) and/or information technology (Green, Ch. 11) can be used to promote effective communication with and for persons with AD. The quality of writing across chapters is generally quite good, and there are few editorial oversights. Content-wise, there are several complementary threads woven into the fabric of this collection: 1) social interactionist and constructivist approaches to understanding the complexities and outcomes of interpersonal communication; 2) promoting positive meaningful communication through affirming and supporting identity and personhood in AD; 3) the identification of strategies, activities, and contexts that may serve to enhance communication with persons who have AD; and 4) interand intraindividual variability in the communication behaviors of individuals with AD. The strengths of this volume include the multifaceted approaches that authors took in addressing both declines and abilities of persons with AD. On the one hand, a number of specific linguistic or discourse structures were identified that could be potential targets in developing compensatory intervention strategies. On the other hand, the effectiveness of compensatory strategies are presumably mediated by the relational context in which conversation takes place, in particular, the ways in which interlocutors position the person with AD. In this regard, the appeal of “lifecourse” (Shenk, Ch. 1) and “personhood” (Ryan et al., Ch. 2) approaches to communication is that they draw out and affirm individuals’ self-worth, strengths, desires, stories, and their past and ongoing contribution to the world around them. Such perspectives counteract the prevailing deficit-oriented social and biomedical construction of AD and replace these with meaningful reciprocity. In addition, as mentioned by Ryan and colleagues (Ch. 2), identity and personhood issues are relevant to any and every communication context, whereas the effectiveness of specific compensatory strategies (e.g., the form of a question) may change depending on contextual variables. Thus, interventions designed to facilitate communication would do well to
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