父母痛苦:脑瘫儿童功能和行为困难的结果

IF 0.6 Q4 PSYCHOLOGY, EDUCATIONAL Electronic Journal of Research in Educational Psychology Pub Date : 2022-01-09 DOI:10.31580/jrp.v3i2.2335
Maria Ishtiaq
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引用次数: 0

摘要

背景:脑瘫患儿可能存在功能和行为困难的危险因素。目的:探讨慢性阻塞性睡眠障碍儿童因功能和行为困难而引起的父母痛苦。研究人群来自巴基斯坦,采用“调查系统”软件对40名3-8岁CP患儿的照顾者进行横断面调查,通过躁动行为量表(ABS)、吉列功能评估问卷和父母压力量表来确定儿童的行为、功能困难和父母困扰。采用相关配对双尾和线性回归对数据进行分析。数据采用IBM SPSS 20进行分析。结果:人口学资料(年龄和性别),无显著回归方程f=2 (37), P > 0.01, Power计算r2 = 0.45。功能障碍(F.A和L. A),回归方程df=4(35), P > 0.01, Power计算r2 = 0.07;回归方程df=5(34), P > 0.01, Power计算r2 = 0.03,回归方程无统计学意义(|r| n=40, P > 0.05)。结果表明,父母痛苦与功能能力、运动能力和行为困难无统计学意义(|r| n=40, P > 0.05)。结论与启示:有证据表明,CP患儿在心理、行为、情绪和沟通等方面存在较多问题。如果患儿有任何残疾,且有儿童效应激动行为,家长压力并不一定要高。有效的康复方案不仅要为残疾儿童提供充分的机会,还要为母亲提供心理支持。关键词:脑瘫,儿童,应激,行为,父母困扰,功能困难,运动能力
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Parental Distress: A Result of Functional and Behavioral Difficulties in Children with Cerebral palsy
Background: Children with cerebral palsy (CP) may have risk factors of Functional and Behavioral difficulties. Aims: To Determine the parental distress as a result of functional and behavioral difficulties of children with C.P. Methodology: The population was based in Pakistan, cross-sectional survey was conducted in which caregivers of 40 children with CP aged 3-8 Years were involved by online “ Survey System” software and completed the Agitated Behavior Scale(ABS), The Gillette Functional Assessment Questionnaire and Parental Stress Scale to determine the child’s behavior, functional difficulties, and parental distress. Correlation paired 2-tail and Linear regression was used to analyze the data. Data were analyzed using IBM SPSS 20.Results: The demographic data (Age and Gender),non-significant regression equation f=2 (37), P > 0.01 with an Power calculation r2 = 0.45. Functional difficulties (F.A and L. A),  not-significant regression equation was found  df=4(35) , P > 0.01 with an Power calculation r2 = 0.07 while, not-significant regression equation was found df=5(34) , P > 0.01 with an Power calculation r2 = 0.03 and findings indicate that parental distress has no statistically significant relationship (|r| n=40, p> 0.05) to Functional Abilities , Locomotors Abilities and Behavior Difficulties. Conclusion and Implications: Evidence shows that psychological, behavioral, emotional, and communication problems are frequent in children with CP. It’s not compulsory to have highly rated parental stress in case of children having any disability and child’s effect agitated behaviors. Effective rehabilitation programs should provide not only sufficient opportunities for the children’s disabilities but also psychological support for the mothers. Key Words: Cerebral Palsy, Children, Stress, Behavior, Parental Distress, Functional Difficulties, Locomotor Abilities
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