Usability and Acceptability of a Web Platform to Host the Group-Based TOGETHER-YA Quality of Life Intervention for Young Adult Cancer Survivors.

IF 3.3 Q2 ONCOLOGY JMIR Cancer Pub Date : 2024-09-16 DOI:10.2196/58014
Rina S Fox, Tara K Torres, Terry A Badger, Emmanuel Katsanis, DerShung Yang, Stacy D Sanford, David E Victorson, Betina Yanez, Frank J Penedo, Michael H Antoni, Laura B Oswald
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Abstract

Background: Young adult (YA) cancer survivors aged 18-39 frequently report unmet health information and peer support needs, as well as poor health-related quality of life (HRQOL). Our team has developed a supportive care intervention, titled TOGETHER-YA, to improve YA cancer survivors' stress management skills. TOGETHER-YA is delivered via videoconference and has shown initial feasibility, acceptability, and promise for improving HRQOL among YA survivors.

Objective: The purpose of this two-part study was to design and test a website to host the TOGETHER-YA intervention for YA cancer survivors aged 18-39. TOGETHER-YA is a 10-week, group-based program designed to promote health-related quality of life.

Methods: In Part 1, we leveraged an existing online platform and adapted it to meet the needs of TOGETHER-YA. We conducted three iterative waves of usability testing with three YAs per wave to refine the website. In Part 2, we conducted a single-group feasibility trial of TOGETHER-YA using the website. Primary outcomes were feasibility (i.e., recruitment, retention, attendance) and acceptability (i.e., satisfaction).

Results: Usability testing participants (N=9) indicated that the TOGETHER-YA website was easy to use (M=5.9, SD=1.3) and easy to learn (M=6.5, SD=0.9) (possible ranges: 1-7). Qualitative feedback identified needed revisions to the aesthetics (e.g., images), content (e.g., session titles), function (e.g., clarity of functionality), and structure (e.g., expandable sections), which were implemented. In the feasibility trial, participants (N=7) were an average of 25 years old (SD=4.7) and mostly non-Hispanic White (57%). Recruitment (70%) and retention (71%) rates and average session attendance (M=7.1, SD=4.2) supported feasibility. Participant agreement with positive statements about TOGETHER-YA and average satisfaction ratings (M=5.06, SD=1.64; possible range: 1-7) demonstrated acceptability.

Conclusions: Results supported the usability, feasibility, and acceptability of the TOGETHER-YA program and website. By hosting the content online, the program effectively addresses YAs' expressed preference for convenience. Future studies are needed to increase TOGETHER-YA's efficiency and explore its efficacy for improving targeted outcomes.

Clinicaltrial: NCT05597228, October 24, 2022.

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针对年轻成人癌症幸存者的 TOGETHER-YA 生活质量干预小组网络平台的可用性和可接受性。
背景:年龄在 18-39 岁之间的年轻成人(YA)癌症幸存者经常反映他们对健康信息和同伴支持的需求得不到满足,而且与健康相关的生活质量(HRQOL)也很差。我们的团队开发了一种名为 "TOGETHER-YA "的支持性护理干预措施,以提高青年癌症幸存者的压力管理技能。TOGETHER-YA 通过视频会议的方式进行,已初步显示出其可行性、可接受性以及改善 YA 幸存者 HRQOL 的前景:本研究由两部分组成,目的是设计并测试一个网站,用于为 18-39 岁的青少年癌症幸存者提供 TOGETHER-YA 干预措施。TOGETHER-YA 是一项为期 10 周的小组项目,旨在提高与健康相关的生活质量:在第一部分中,我们利用了现有的在线平台,并对其进行了调整,以满足 TOGETHER-YA 的需求。我们进行了三轮反复的可用性测试,每轮测试有三名 YA 参加,以完善网站。在第二部分,我们使用该网站对 TOGETHER-YA 进行了单组可行性试验。主要结果是可行性(即招募、保留、出席率)和可接受性(即满意度):结果:可用性测试参与者(N=9)表示,TOGETHER-YA 网站易于使用(M=5.9,SD=1.3)和易于学习(M=6.5,SD=0.9)(可能范围:1-7)。定性反馈指出了美学(如图片)、内容(如课程标题)、功能(如功能的清晰度)和结构(如可扩展部分)方面需要进行的修改,这些修改已经实施。在可行性试验中,参与者(N=7)平均年龄为 25 岁(SD=4.7),大部分为非西班牙裔白人(57%)。招募率(70%)和保留率(71%)以及平均课程出勤率(M=7.1,SD=4.2)都证明了其可行性。参与者对 TOGETHER-YA 的积极评价和平均满意度评分(M=5.06,SD=1.64;可能范围:1-7)表明了可接受性:结果证明了 TOGETHER-YA 计划和网站的可用性、可行性和可接受性。通过在线托管内容,该计划有效地满足了亚裔青少年所表达的对便利性的偏好。未来的研究需要提高 TOGETHER-YA 的效率,并探索其在改善目标结果方面的功效:临床试验:NCT05597228,2022 年 10 月 24 日。
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来源期刊
JMIR Cancer
JMIR Cancer ONCOLOGY-
CiteScore
4.10
自引率
0.00%
发文量
64
审稿时长
12 weeks
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