Responding to the ongoing pandemic-related challenges of individuals with brain injury through the perspective of community-service in Canada: A qualitative study.

IF 1.5 4区 医学 Q4 NEUROSCIENCES Brain injury Pub Date : 2025-03-21 Epub Date: 2024-11-16 DOI:10.1080/02699052.2024.2426683
Ana Paula Salazar, Sophie Lecours, Lisa Engel, Monique A M Gignac, Shlomit Rotenberg, Sareh Zarshenas, Michelle McDonald, Emily Nalder, Carolina Bottari
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Abstract

Objective: To investigate brain injury (BI) associations' perspectives regarding the impacts of the second year of the COVID-19 pandemic on individuals with BI and BI associations services across Canada.

Methods: This qualitative descriptive study included 26 representatives of Canadian BI associations that participated in six online focus groups to discuss the effects of the second year of the pandemic on clients living with BI and on the provision of community services.

Results: Findings revealed three main themes: 1) ongoing pandemic-related challenges faced by clients living with BI, including worsening mental health and basic needs insecurities, difficulties faced by clients in adhering to safety measures, and ongoing technological issues; 2) ongoing adaptations to accommodate clients' needs, including offering tailored services, ensuring consistent and transparent safety measures, and providing hybrid services; and 3) developing a sustainable 'new normal' aligned with association mandates and resources by expanding networks and building resilience.

Conclusion: The unfolding of the pandemic has brought increased challenges for people with BI and reinforced the need for adapted, clear, and accessible public health information to ensure the safety of vulnerable populations in times of crisis. It is essential to bolster community-based associations that provide direct care to people with BI.

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通过加拿大社区服务的视角应对脑损伤患者当前面临的与大流行病相关的挑战:定性研究。
目的调查脑损伤(BI)协会对 COVID-19 大流行第二年对加拿大各地脑损伤患者和脑损伤协会服务的影响的看法:这项定性描述研究包括加拿大脑损伤协会的 26 名代表,他们参加了六个在线焦点小组,讨论大流行第二年对脑损伤患者和社区服务的影响:研究结果揭示了三大主题:1)感染 BI 的患者持续面临与大流行相关的挑战,包括心理健康和基本需求不安全状况的恶化、患者在遵守安全措施方面面临的困难以及持续存在的技术问题;2)为满足患者需求而持续进行的调整,包括提供量身定制的服务、确保一致且透明的安全措施以及提供混合服务;以及 3)通过扩大网络和建设复原力,根据协会的任务和资源发展可持续的 "新常态":大流行病的发展给生物多样性感染者带来了更多的挑战,并加强了对经过调整的、清晰的和可获取的公共卫生信息的需求,以确保弱势群体在危机时期的安全。必须加强以社区为基础的协会,为生物感染者提供直接护理。
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来源期刊
Brain injury
Brain injury 医学-康复医学
CiteScore
3.50
自引率
5.30%
发文量
148
审稿时长
12 months
期刊介绍: Brain Injury publishes critical information relating to research and clinical practice, adult and pediatric populations. The journal covers a full range of relevant topics relating to clinical, translational, and basic science research. Manuscripts address emergency and acute medical care, acute and post-acute rehabilitation, family and vocational issues, and long-term supports. Coverage includes assessment and interventions for functional, communication, neurological and psychological disorders.
期刊最新文献
Medical complications and advance medical decision-making in the minimally conscious state. Responding to the ongoing pandemic-related challenges of individuals with brain injury through the perspective of community-service in Canada: A qualitative study. Understanding 'quality' in adult traumatic brain injury rehabilitation from the perspectives of different stakeholders: a participatory mixed methods study. Understanding factors influencing exercise program adherence for youth with persistent post-concussive symptoms (PPCS). Dodecafluoropentane improves neuro-behavioral outcomes and return of spontaneous circulation rate in a swine model of cardiac arrest.
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