"You Don't Know What You Don't Know": Parent Perspectives on Navigating Disability-Related Information and Resources.

IF 1.7 3区医学 Q2 EDUCATION, SPECIAL Intellectual and Developmental Disabilities Pub Date : 2024-12-01 DOI:10.1352/1934-9556-62.6.459

Emily R Lanchak, Erik W Carter, Elise D McMillan

引用次数: 0

Abstract

We examined the priorities parents hold for their children with disabilities and the pathways through which parents access needed information and resources related to these valued areas. Our sample included 405 parents of children (ages 12 and under) who experienced a diversity of disabilities and varied support needs. Although each of the parents wanted their children to experience an array of formative experiences, the extent to which parents were familiar with local resources related to these important areas was uneven and often low. A constellation of barriers was said to stand in the way of connecting to the information and help they needed. When searching for disability-related information, parents often turned to a combination of sources, including professionals and technology.

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"你不知道你所不知道的"：家长对浏览残疾相关信息和资源的看法》（Parent Perspectives on Navigating Disability-Related Information and Resources）。

我们研究了家长对残疾儿童的优先考虑，以及家长获取与这些重要领域相关的所需信息和资源的途径。我们的样本包括 405 名子女（12 岁及以下）的家长，他们的子女有不同的残疾和不同的支持需求。尽管每一位家长都希望自己的孩子能够体验一系列的成长经历，但家长们对与这些重要领域相关的本地资源的熟悉程度却参差不齐，而且往往很低。据说有很多障碍阻碍了他们获得所需的信息和帮助。在寻找与残疾有关的信息时，家长们往往会求助于各种渠道，包括专业人士和技术。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Intellectual and Developmental Disabilities Multiple-

CiteScore

2.60

自引率

11.10%

发文量

期刊介绍： Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those who seek effective ways to help people with mental retardation. The journal reports new teaching approaches, program developments, administrative tools, program evaluation, service utilization studies, community surveys, public policy issues, training and case studies, and current research in mental retardation. Intellectual and Developmental Disabilities is a peer-reviewed journal whose consulting editors represent a broad spectrum of settings: universities, research centers, public and private residential care facilities, and specialized community service agencies.