The Social Construction of Categorical Data: Mixed Methods Approach to Assessing Data Features in Publicly Available Datasets.

IF 3.1 3区 医学 Q2 MEDICAL INFORMATICS JMIR Medical Informatics Pub Date : 2025-01-28 DOI:10.2196/59452
Theresa Willem, Alessandro Wollek, Theodor Cheslerean-Boghiu, Martha Kenney, Alena Buyx
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Abstract

Background: In data-sparse areas such as health care, computer scientists aim to leverage as much available information as possible to increase the accuracy of their machine learning models' outputs. As a standard, categorical data, such as patients' gender, socioeconomic status, or skin color, are used to train models in fusion with other data types, such as medical images and text-based medical information. However, the effects of including categorical data features for model training in such data-scarce areas are underexamined, particularly regarding models intended to serve individuals equitably in a diverse population.

Objective: This study aimed to explore categorical data's effects on machine learning model outputs, rooted the effects in the data collection and dataset publication processes, and proposed a mixed methods approach to examining datasets' data categories before using them for machine learning training.

Methods: Against the theoretical background of the social construction of categories, we suggest a mixed methods approach to assess categorical data's utility for machine learning model training. As an example, we applied our approach to a Brazilian dermatological dataset (Dermatological and Surgical Assistance Program at the Federal University of Espírito Santo [PAD-UFES] 20). We first present an exploratory, quantitative study that assesses the effects when including or excluding each of the unique categorical data features of the PAD-UFES 20 dataset for training a transformer-based model using a data fusion algorithm. We then pair our quantitative analysis with a qualitative examination of the data categories based on interviews with the dataset authors.

Results: Our quantitative study suggests scattered effects of including categorical data for machine learning model training across predictive classes. Our qualitative analysis gives insights into how the categorical data were collected and why they were published, explaining some of the quantitative effects that we observed. Our findings highlight the social constructedness of categorical data in publicly available datasets, meaning that the data in a category heavily depend on both how these categories are defined by the dataset creators and the sociomedico context in which the data are collected. This reveals relevant limitations of using publicly available datasets in contexts different from those of the collection of their data.

Conclusions: We caution against using data features of publicly available datasets without reflection on the social construction and context dependency of their categorical data features, particularly in data-sparse areas. We conclude that social scientific, context-dependent analysis of available data features using both quantitative and qualitative methods is helpful in judging the utility of categorical data for the population for which a model is intended.

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来源期刊
JMIR Medical Informatics
JMIR Medical Informatics Medicine-Health Informatics
CiteScore
7.90
自引率
3.10%
发文量
173
审稿时长
12 weeks
期刊介绍: JMIR Medical Informatics (JMI, ISSN 2291-9694) is a top-rated, tier A journal which focuses on clinical informatics, big data in health and health care, decision support for health professionals, electronic health records, ehealth infrastructures and implementation. It has a focus on applied, translational research, with a broad readership including clinicians, CIOs, engineers, industry and health informatics professionals. Published by JMIR Publications, publisher of the Journal of Medical Internet Research (JMIR), the leading eHealth/mHealth journal (Impact Factor 2016: 5.175), JMIR Med Inform has a slightly different scope (emphasizing more on applications for clinicians and health professionals rather than consumers/citizens, which is the focus of JMIR), publishes even faster, and also allows papers which are more technical or more formative than what would be published in the Journal of Medical Internet Research.
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