Standards and infrastructure for multisite deployment of the research participant perception survey.

IF 2.5 Q2 HEALTH CARE SCIENCES & SERVICES JAMIA Open Pub Date : 2025-03-12 eCollection Date: 2025-04-01 DOI:10.1093/jamiaopen/ooaf017

Alex C Cheng, Eva Bascompte Moragas, Ellis Thomas, Lindsay O'Neal, Paul A Harris, Ranee Chatterjee, James Goodrich, Jamie Roberts, Sameer Cheema, Sierra Lindo, Daniel E Ford, Liz Martinez, Scott Carey, Ann Dozier, Carrie Dykes, Pavithra Panjala, Lynne Wagenknecht, Joseph E Andrews, Janet Shuping, Derick Burgin, Nancy S Green, Siddiq Mohammed, Sana Khoury-Shakour, Lisa Connally, Cameron Coffran, Adam Qureshi, Natalie Schlesinger, Rhonda G Kost

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Abstract

Objectives: To develop and disseminate a technical framework for administering the Research Participant Perception Survey (RPPS) and aggregating data across institutions using REDCap.

Materials and methods: Six RPPS Steering Committee (RSC) member institutions met bi-weekly to achieve consensus on survey sampling techniques, data standards, participant and study descriptor variables, and dashboard design.

Results: RSC members implemented the infrastructure to send the RPPS to participants and shared data to the Empowering the Participant Voice Consortium Database. Two pilot sites used the tools generated by the RSC to implement the RPPS.

Discussion: The RSC created a REDCap project setup file, an external module visual analytics dashboard, an English/Spanish language file, and an implementation guide.

Conclusion: The technical setup materials created by the RSC were effective in aiding new sites in implementing the RPPS and could help future sites adopt the RPPS to better understand participant experiences to improve research recruitment and retention.

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