{"title":"An opportunity for integrative approaches: an examination of the perspectives of women with Bile acid malabsorption (BAM)","authors":"David Sarchet , Justine Bold","doi":"10.1016/j.aimed.2022.04.002","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><p>The aim was to explore experiences of individuals with the controversial conditions bile acid<span> diarrhoea (BAD) and bile acid malabsorption (BAM). BAD/BAM are poorly understood, misdiagnosis is common and there is evidence that around a third of patients with Irritable Bowel Syndrome (diarrhoea) (IBS-D) may have BAD/BAM.</span></p></div><div><h3>Methods</h3><p>In depth, semi-structured interviews were undertaken with six participants, all female, 18 + years old and living in the UK. All had been diagnosed with BAD/BAM for at least one year. Interviews were recorded and transcribed verbatim. Data was coded and thematic analysis was undertaken using grounded theory.</p></div><div><h3>Results</h3><p><span>Six main themes emerged including 1. triggers, and how to control symptoms; 2. experience of diagnosis/care and associated delays; 3. psychosocial impact of the condition, this specifically identified impacts on mental health; 4. the signs and symptoms; 5. comorbidities and other </span>health problems<span> and finally 6. self-education/learning for management of BAD/BAM. Findings indicate that BAD and BAM are often poorly understood; and patients experience delays with diagnosis and moreover that the condition has profound effects on the lives of patients including impacting on mental health. A low-fat diet was identified as useful in managing symptoms, however participants had concerns over absorption of fat-soluble vitamins such as vitamin D and often experienced fatigue.</span></p></div><div><h3>Conclusion</h3><p>Further research is recommended to understand both the psychosocial and nutritional impacts of BAD/BAM and to understand the management strategies of patients and the potential role of integrative medicine in caring for this group.</p></div>","PeriodicalId":7343,"journal":{"name":"Advances in integrative medicine","volume":"9 2","pages":"Pages 97-102"},"PeriodicalIF":1.7000,"publicationDate":"2022-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Advances in integrative medicine","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2212958822000350","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"Medicine","Score":null,"Total":0}
引用次数: 0
Abstract
Background
The aim was to explore experiences of individuals with the controversial conditions bile acid diarrhoea (BAD) and bile acid malabsorption (BAM). BAD/BAM are poorly understood, misdiagnosis is common and there is evidence that around a third of patients with Irritable Bowel Syndrome (diarrhoea) (IBS-D) may have BAD/BAM.
Methods
In depth, semi-structured interviews were undertaken with six participants, all female, 18 + years old and living in the UK. All had been diagnosed with BAD/BAM for at least one year. Interviews were recorded and transcribed verbatim. Data was coded and thematic analysis was undertaken using grounded theory.
Results
Six main themes emerged including 1. triggers, and how to control symptoms; 2. experience of diagnosis/care and associated delays; 3. psychosocial impact of the condition, this specifically identified impacts on mental health; 4. the signs and symptoms; 5. comorbidities and other health problems and finally 6. self-education/learning for management of BAD/BAM. Findings indicate that BAD and BAM are often poorly understood; and patients experience delays with diagnosis and moreover that the condition has profound effects on the lives of patients including impacting on mental health. A low-fat diet was identified as useful in managing symptoms, however participants had concerns over absorption of fat-soluble vitamins such as vitamin D and often experienced fatigue.
Conclusion
Further research is recommended to understand both the psychosocial and nutritional impacts of BAD/BAM and to understand the management strategies of patients and the potential role of integrative medicine in caring for this group.
期刊介绍:
Advances in Integrative Medicine (AIMED) is an international peer-reviewed, evidence-based research and review journal that is multi-disciplinary within the fields of Integrative and Complementary Medicine. The journal focuses on rigorous quantitative and qualitative research including systematic reviews, clinical trials and surveys, whilst also welcoming medical hypotheses and clinically-relevant articles and case studies disclosing practical learning tools for the consulting practitioner. By promoting research and practice excellence in the field, and cross collaboration between relevant practitioner groups and associations, the journal aims to advance the practice of IM, identify areas for future research, and improve patient health outcomes. International networking is encouraged through clinical innovation, the establishment of best practice and by providing opportunities for cooperation between organisations and communities.