Ivana Klarić Kukuz, Josipa Grančić, A. Poljičanin, I. Marinović, Jure Aljinović, Ana Barić Žižić, Marta Pavlović
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我们报告一例46岁的护士,下肢,晚发,二度原发性淋巴水肿诊断后30年症状出现。缺乏专门的淋巴水肿诊所、淋巴水肿专家、淋巴水肿管理指南和淋巴水肿登记是克罗地亚长期诊断的主要原因。原发性淋巴水肿治疗每周进行3次,每次45分钟,共7次。治疗包括肢体围度测量和手工淋巴引流,随后是Partsch压缩治疗方案和教育。体育活动的指导也同样如此。尽管原发性淋巴水肿持续时间长,但显著的体积减少是成功的。生活质量和身体活动的变化是通过自我管理的问卷来记录的。压缩服装专家制定了平针袜压缩III级的措施。用于淋巴水肿,在肢体体积维持阶段有重要作用。尽管原发性淋巴水肿是一种慢性疾病,但我们的病人30多年来一直没有得到治疗。适当的淋巴水肿治疗管理和团队合作是有可能达到并保持令人满意的治疗结果的,特别是如果你有积极的和适当的教育患者。
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Prikaz slučaja kasnog tipa primarnog limfedema - od dijagnoze do uspješne terapije
We present a case report of a 46-year-old nurse with lower limb, late onset, second degree primary lymphedema diagnosed thirty years after symptoms onset. Lack of specialised lymphedema clinics, lymphedema specialists, lymphedema management guidelines and lymphedema registry are main causes for prolonged diagnosis in Croatia. Primary lymphedema treatment was con-ducted through 45-minutes sessions three times a week in total 7 sessions. Treatment sessions consisted of limb circumference mea-surements and manual lymph drainage followed by Partsch compression therapy protocol and education. Instructions for physical activity were made likewise. Significant volume reduction was successful despite long primary lymphedema duration. Changes in quality of life and physical activity were noted by self-administered questionnaires. Compression garment specialist made measures for flat knitted stockings compression class III. that are indicated for lymphedema and have important role in the maintenance phase of limb volume. Despite the fact that primary lymphedema is chronic condition, and it has been left untreated for over thirty years in our patient. With proper lymphedema therapy management and teamwork it is possible to achieve and maintain satisfying treatment results especially if you have motivated and properly educated patient.
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