视障人士不确定性管理研究。

IF 3 3区 医学 Q1 COMMUNICATION Health Communication Pub Date : 2024-11-01 Epub Date: 2024-02-02 DOI:10.1080/10410236.2024.2312622
Lynsey Romo, Shana Makos, Marisa Hooper, Melissa Taussig, Montana Hamlet
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引用次数: 0

摘要

视力受损或法定失明(视力无法矫正或无法矫正到法律上可接受的水平)本身就具有不确定性。虽然不确定性可能导致积极、消极或中性的后果,但对于这一研究不足的人群是如何体验和协商不确定性的,我们却知之甚少。因此,通过对 24 名视障者进行深入的半结构式访谈,我们运用不确定性管理理论(UMT)研究了视障者用来管理他们所经历的个人、视力相关和社会不确定性的沟通策略。许多参与者对不确定性的评价是负面的,因此他们通过寻求社会支持和信息、使用工具性策略以及主动披露自己的视力障碍来减少不确定性。倾向于保持不确定性的受访者则通过避免去想自己的视力障碍或视力恶化的问题,以及/或者通过隐瞒自己的低视力和装作视力正常来保持这种不确定性。最后,一些参与者,特别是那些天生低视力或视力受损时间较长的人,学会了通过重塑、接受、自我照顾和求助上帝来适应这种不确定性。研究还发现,一些参与者的不确定性管理受到了能力主义的限制,如支持系统不足、系统性障碍和污名化。这项研究还强调了不确定性的普遍性和多变性,并揭示了视障人士在普遍存在的残疾文化生物医学模式中驾驭不确定性的具体方法。
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An Examination of Visually Impaired Individuals' Uncertainty Management.

Being visually impaired or legally blind (having vision that is uncorrectable or cannot be corrected to a legally acceptable level) is inherently uncertain. Although uncertainty can result in positive, negative, or neutral consequences, little is known about how uncertainty is experienced and negotiated in this understudied population. Thus, through in-depth, semi-structured interviews of 24 individuals with a visual impairment, we apply uncertainty management theory (UMT) to examine the communication strategies visually impaired individuals used to manage the personal, vision-related, and social uncertainty they experienced. Many participants appraised the uncertainty negatively and consequently aimed to reduce it by seeking social support and information, using instrumental strategies, and proactively disclosing their visual impairment. Interviewees who preferred to remain uncertain maintained it by avoiding thinking about their visual impairment or worsening vision and/or by concealing their low vision and passing as sighted. Last, some participants, particularly those who were born with low vision or had been visually impaired longer, learned to adapt to the uncertainty through reframing and accepting, self-care, and by turning to God. The study also uncovered that some participants' uncertainty management was limited by ableist constraints, such as inadequate support systems, systemic barriers, and stigma. The study also underscores the universal and fluid nature of uncertainty and uncovers tangible ways individuals with visual impairment can navigate uncertainty within a pervasive cultural biomedical model of disability.

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来源期刊
CiteScore
8.20
自引率
10.30%
发文量
184
期刊介绍: As an outlet for scholarly intercourse between medical and social sciences, this noteworthy journal seeks to improve practical communication between caregivers and patients and between institutions and the public. Outstanding editorial board members and contributors from both medical and social science arenas collaborate to meet the challenges inherent in this goal. Although most inclusions are data-based, the journal also publishes pedagogical, methodological, theoretical, and applied articles using both quantitative or qualitative methods.
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