重新定义后天性脑损伤后的适应。

IF 1.5 4区 医学 Q4 NEUROSCIENCES Brain injury Pub Date : 2025-02-23 Epub Date: 2024-11-05 DOI:10.1080/02699052.2024.2423760
S Buckland, E Kaminskiy, P Bright
{"title":"重新定义后天性脑损伤后的适应。","authors":"S Buckland, E Kaminskiy, P Bright","doi":"10.1080/02699052.2024.2423760","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Adjusting to life changes posed by an acquired brain injury (ABI) can be challenging for both individuals with ABI and their families. The current study explores the experience of adjustment, incorporating similarities and differences in this process as reported by the family members and individuals with ABI.</p><p><strong>Method: </strong>Thirty-nine participants, recruited from a regional brain injury charity group, took part in semi-structured interviews (20/39 individuals with ABI, 19/39 relatives). Transcripts were analyzed using thematic analysis.</p><p><strong>Findings: </strong>Three main categories of adjustment were developed: <i>adjusted to life after ABI</i>, <i>partially adjusted to life after ABI</i> and <i>not adjusted to life after ABI</i>. However, it is the complexity of experiences within these main categories which uncovers the diversity in individual experience. Of specific interest are <i>adjustment as best case</i> and <i>resigned adjustment</i> responses which indicate a level of burden for the person experiencing these feelings of adjustment.</p><p><strong>Conclusions: </strong>The categories of <i>grateful acceptance</i> and <i>resigned acceptance</i> were specific to relatives and show the need to look beyond the individual with ABI to identify where support may be required for a family as a whole. On the basis of these findings, we offer an inclusive, family-oriented conceptualization of adjustment to brain-injury.</p>","PeriodicalId":9082,"journal":{"name":"Brain injury","volume":" ","pages":"221-232"},"PeriodicalIF":1.5000,"publicationDate":"2025-02-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Redefining adjustment after acquired brain injury.\",\"authors\":\"S Buckland, E Kaminskiy, P Bright\",\"doi\":\"10.1080/02699052.2024.2423760\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Adjusting to life changes posed by an acquired brain injury (ABI) can be challenging for both individuals with ABI and their families. The current study explores the experience of adjustment, incorporating similarities and differences in this process as reported by the family members and individuals with ABI.</p><p><strong>Method: </strong>Thirty-nine participants, recruited from a regional brain injury charity group, took part in semi-structured interviews (20/39 individuals with ABI, 19/39 relatives). Transcripts were analyzed using thematic analysis.</p><p><strong>Findings: </strong>Three main categories of adjustment were developed: <i>adjusted to life after ABI</i>, <i>partially adjusted to life after ABI</i> and <i>not adjusted to life after ABI</i>. However, it is the complexity of experiences within these main categories which uncovers the diversity in individual experience. Of specific interest are <i>adjustment as best case</i> and <i>resigned adjustment</i> responses which indicate a level of burden for the person experiencing these feelings of adjustment.</p><p><strong>Conclusions: </strong>The categories of <i>grateful acceptance</i> and <i>resigned acceptance</i> were specific to relatives and show the need to look beyond the individual with ABI to identify where support may be required for a family as a whole. On the basis of these findings, we offer an inclusive, family-oriented conceptualization of adjustment to brain-injury.</p>\",\"PeriodicalId\":9082,\"journal\":{\"name\":\"Brain injury\",\"volume\":\" \",\"pages\":\"221-232\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2025-02-23\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Brain injury\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/02699052.2024.2423760\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/11/5 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q4\",\"JCRName\":\"NEUROSCIENCES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Brain injury","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/02699052.2024.2423760","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/11/5 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"NEUROSCIENCES","Score":null,"Total":0}
引用次数: 0

摘要

背景:适应后天性脑损伤(ABI)所带来的生活变化对于ABI患者及其家人来说都是一项挑战。本研究探讨了适应过程中的经验,包括家庭成员和 ABI 患者报告的这一过程中的异同:从一个地区性脑损伤慈善团体招募的 39 名参与者参加了半结构式访谈(20/39 名 ABI 患者,19/39 名亲属)。访谈记录采用主题分析法进行分析:结果:对适应情况进行了三大分类:已适应阿尔茨海默氏病后的生活、部分适应阿尔茨海默氏病后的生活和未适应阿尔茨海默氏病后的生活。然而,正是这些主要类别中经历的复杂性揭示了个人经历的多样性。特别值得关注的是,"最佳情况下的适应 "和 "逆来顺受的适应 "这两种反应表明了经历这些适应感受的人的负担程度:感激接受和无奈接受这两个类别是亲属所特有的,这表明有必要将视角从注意力缺损症患者个人延伸开来,以确定整个家庭在哪些方面可能需要支持。在这些研究结果的基础上,我们提出了一种以家庭为导向的脑损伤适应概念。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
Redefining adjustment after acquired brain injury.

Background: Adjusting to life changes posed by an acquired brain injury (ABI) can be challenging for both individuals with ABI and their families. The current study explores the experience of adjustment, incorporating similarities and differences in this process as reported by the family members and individuals with ABI.

Method: Thirty-nine participants, recruited from a regional brain injury charity group, took part in semi-structured interviews (20/39 individuals with ABI, 19/39 relatives). Transcripts were analyzed using thematic analysis.

Findings: Three main categories of adjustment were developed: adjusted to life after ABI, partially adjusted to life after ABI and not adjusted to life after ABI. However, it is the complexity of experiences within these main categories which uncovers the diversity in individual experience. Of specific interest are adjustment as best case and resigned adjustment responses which indicate a level of burden for the person experiencing these feelings of adjustment.

Conclusions: The categories of grateful acceptance and resigned acceptance were specific to relatives and show the need to look beyond the individual with ABI to identify where support may be required for a family as a whole. On the basis of these findings, we offer an inclusive, family-oriented conceptualization of adjustment to brain-injury.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Brain injury
Brain injury 医学-康复医学
CiteScore
3.50
自引率
5.30%
发文量
148
审稿时长
12 months
期刊介绍: Brain Injury publishes critical information relating to research and clinical practice, adult and pediatric populations. The journal covers a full range of relevant topics relating to clinical, translational, and basic science research. Manuscripts address emergency and acute medical care, acute and post-acute rehabilitation, family and vocational issues, and long-term supports. Coverage includes assessment and interventions for functional, communication, neurological and psychological disorders.
期刊最新文献
Functional network disruptions in youth with concussion using the Adolescent Brain Cognitive Development study. Treatment of intractable paradoxical herniation by invasive mechanical ventilation with increased positive end-expiratory pressure: a case report. Assessment of arousal recovery after cardiac arrest using diffusion kurtosis MRI with higher b-values: a pilot study. Redefining adjustment after acquired brain injury. Antiseizure medication possibly potentiates ictal bradycardia: a word of caution.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1