{"title":"重新定义后天性脑损伤后的适应。","authors":"S Buckland, E Kaminskiy, P Bright","doi":"10.1080/02699052.2024.2423760","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Adjusting to life changes posed by an acquired brain injury (ABI) can be challenging for both individuals with ABI and their families. The current study explores the experience of adjustment, incorporating similarities and differences in this process as reported by the family members and individuals with ABI.</p><p><strong>Method: </strong>Thirty-nine participants, recruited from a regional brain injury charity group, took part in semi-structured interviews (20/39 individuals with ABI, 19/39 relatives). Transcripts were analyzed using thematic analysis.</p><p><strong>Findings: </strong>Three main categories of adjustment were developed: <i>adjusted to life after ABI</i>, <i>partially adjusted to life after ABI</i> and <i>not adjusted to life after ABI</i>. However, it is the complexity of experiences within these main categories which uncovers the diversity in individual experience. Of specific interest are <i>adjustment as best case</i> and <i>resigned adjustment</i> responses which indicate a level of burden for the person experiencing these feelings of adjustment.</p><p><strong>Conclusions: </strong>The categories of <i>grateful acceptance</i> and <i>resigned acceptance</i> were specific to relatives and show the need to look beyond the individual with ABI to identify where support may be required for a family as a whole. On the basis of these findings, we offer an inclusive, family-oriented conceptualization of adjustment to brain-injury.</p>","PeriodicalId":9082,"journal":{"name":"Brain injury","volume":" ","pages":"221-232"},"PeriodicalIF":1.5000,"publicationDate":"2025-02-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Redefining adjustment after acquired brain injury.\",\"authors\":\"S Buckland, E Kaminskiy, P Bright\",\"doi\":\"10.1080/02699052.2024.2423760\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Adjusting to life changes posed by an acquired brain injury (ABI) can be challenging for both individuals with ABI and their families. The current study explores the experience of adjustment, incorporating similarities and differences in this process as reported by the family members and individuals with ABI.</p><p><strong>Method: </strong>Thirty-nine participants, recruited from a regional brain injury charity group, took part in semi-structured interviews (20/39 individuals with ABI, 19/39 relatives). Transcripts were analyzed using thematic analysis.</p><p><strong>Findings: </strong>Three main categories of adjustment were developed: <i>adjusted to life after ABI</i>, <i>partially adjusted to life after ABI</i> and <i>not adjusted to life after ABI</i>. However, it is the complexity of experiences within these main categories which uncovers the diversity in individual experience. Of specific interest are <i>adjustment as best case</i> and <i>resigned adjustment</i> responses which indicate a level of burden for the person experiencing these feelings of adjustment.</p><p><strong>Conclusions: </strong>The categories of <i>grateful acceptance</i> and <i>resigned acceptance</i> were specific to relatives and show the need to look beyond the individual with ABI to identify where support may be required for a family as a whole. On the basis of these findings, we offer an inclusive, family-oriented conceptualization of adjustment to brain-injury.</p>\",\"PeriodicalId\":9082,\"journal\":{\"name\":\"Brain injury\",\"volume\":\" \",\"pages\":\"221-232\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2025-02-23\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Brain injury\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/02699052.2024.2423760\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2024/11/5 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q4\",\"JCRName\":\"NEUROSCIENCES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Brain injury","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/02699052.2024.2423760","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/11/5 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"NEUROSCIENCES","Score":null,"Total":0}
引用次数: 0
摘要
背景:适应后天性脑损伤(ABI)所带来的生活变化对于ABI患者及其家人来说都是一项挑战。本研究探讨了适应过程中的经验,包括家庭成员和 ABI 患者报告的这一过程中的异同:从一个地区性脑损伤慈善团体招募的 39 名参与者参加了半结构式访谈(20/39 名 ABI 患者,19/39 名亲属)。访谈记录采用主题分析法进行分析:结果:对适应情况进行了三大分类:已适应阿尔茨海默氏病后的生活、部分适应阿尔茨海默氏病后的生活和未适应阿尔茨海默氏病后的生活。然而,正是这些主要类别中经历的复杂性揭示了个人经历的多样性。特别值得关注的是,"最佳情况下的适应 "和 "逆来顺受的适应 "这两种反应表明了经历这些适应感受的人的负担程度:感激接受和无奈接受这两个类别是亲属所特有的,这表明有必要将视角从注意力缺损症患者个人延伸开来,以确定整个家庭在哪些方面可能需要支持。在这些研究结果的基础上,我们提出了一种以家庭为导向的脑损伤适应概念。
Redefining adjustment after acquired brain injury.
Background: Adjusting to life changes posed by an acquired brain injury (ABI) can be challenging for both individuals with ABI and their families. The current study explores the experience of adjustment, incorporating similarities and differences in this process as reported by the family members and individuals with ABI.
Method: Thirty-nine participants, recruited from a regional brain injury charity group, took part in semi-structured interviews (20/39 individuals with ABI, 19/39 relatives). Transcripts were analyzed using thematic analysis.
Findings: Three main categories of adjustment were developed: adjusted to life after ABI, partially adjusted to life after ABI and not adjusted to life after ABI. However, it is the complexity of experiences within these main categories which uncovers the diversity in individual experience. Of specific interest are adjustment as best case and resigned adjustment responses which indicate a level of burden for the person experiencing these feelings of adjustment.
Conclusions: The categories of grateful acceptance and resigned acceptance were specific to relatives and show the need to look beyond the individual with ABI to identify where support may be required for a family as a whole. On the basis of these findings, we offer an inclusive, family-oriented conceptualization of adjustment to brain-injury.
期刊介绍:
Brain Injury publishes critical information relating to research and clinical practice, adult and pediatric populations. The journal covers a full range of relevant topics relating to clinical, translational, and basic science research. Manuscripts address emergency and acute medical care, acute and post-acute rehabilitation, family and vocational issues, and long-term supports. Coverage includes assessment and interventions for functional, communication, neurological and psychological disorders.