泗水Soetomo总医院A型血友病患者初步诊断的特点

Angela Dinaria Kemala Swary, Mia Ratwita Andarsini, Arifoel Hajat
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摘要

前言:本研究旨在描述A型血友病患者的特征。方法:对55例a型血友病患者进行横断面研究,变量为年龄、出血发作、凝血因子VIII水平、出血部位。数据以描述性的方式呈现。结果:以2 ~ 10岁年龄组最多(52.73%)。患者中最常见的出血事件为中度出血(60.0%)。最常见的患者因子VIII水平为中等水平(52.7%)。患者的出血最可能发生在肌肉或称为血肿(41.8%)。而不太可能出血的是颅内和鼻出血。结论:2-10岁是A型血友病发病的最大群体,患儿多在儿童期确诊,患儿活动较多,容易发现自发性出血或异常出血。家长需要了解是否有异常或自发性出血发生在肌肉或称为血肿与中度出血发作,这意味着自发性出血的发生是周期性的,或在长期出血伴随轻微创伤或侵入性行动。
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Characteristic of Hemophilia A Patients in Initial Diagnosis in Dr. Soetomo General Hospital Surabaya
Introduction: This research is conducted to describe the characteristic of Hemophilia A patients.Methods: Cross-sectional study conducted in 55 patients with Hemophilia A. The variables were age, bleeding episode, factor VIII level, and bleeding site. The data presented descriptively.Results: The largest group was 2-10 years old (52,73%). The most common bleeding episode occured in the patients was moderate level (60,0%). The most common patient’s factor VIII level was moderate level (52,7%). The patient’s bleeding most likely took place in muscle or known as hematoma (41,8%). While the less likely bleeding were intracranial and nose bleeding.Conclusion: 2-10 years old patient are the largest group because of hemophilia A mostly diagnosed in childhood, where children are actively moved so that the spontaneous bleeding or abnormal bleeding can be seen easily. Parents needs to be aware if there were abnormal or spontaneous bleeding which takes place in muscle or known as hematoma with moderate episode of bleeding which meant that the occurrence of spontaneous bleeding is periodically happened or in prolonged bleeding accompanied by minor trauma or invasive action.
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