Measures of emotional well-being for individuals with intellectual disabilities: A scoping review of reviews

IF 2.6 2区医学 Q1 EDUCATION, SPECIAL Research in Developmental Disabilities Pub Date : 2025-02-08 DOI:10.1016/j.ridd.2025.104940

Sophie Hall , Jessica B. Koslouski , Caroline G. Richter , Sandra M. Chafouleas

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Abstract

Objective

This scoping review of reviews examines how one facet of quality of life, emotional well-being (EWB), has been assessed for individuals with intellectual disabilities (ID), including the characteristics of measures that have been designed, adapted, or administered to individuals in this population.

Methods

Following established practices for scoping reviews, we searched the ERIC, APA Psych Info, and Academic Search Premier databases in November 2022 for review articles that included measures of EWB that had been designed, adapted, or administered to individuals with ID. Following PRISMA guidelines, we conducted independent double coding at the title and abstract and full text review stages. From each included review article, we extracted the review’s purpose, EWB-related construct of interest, and EWB-related measure names and authors. We then located each measure and coded its items using Park et al.'s (2023) definition of EWB. We also coded the “non-EWB” domains assessed by these measures. We used the PRISMA Extension for Scoping Reviews (PRISMA-Scr) checklist to structure our manuscript.

Results

The scoping review identified 10 review articles that included 14 unique measures of EWB. Each of these measures included at least 1 item (M = 2.8) that assessed EWB. Quality of life was the most common EWB-related construct specified by review articles. Measures frequently assessed additional constructs beyond EWB, including self-determination, interpersonal relations, physical well-being, and material well-being.

Conclusions

In measures designed or adapted for individuals with ID, EWB is often included as a subcomponent of quality of life. Because of EWB’s link to positive social, emotional, behavioral, and health outcomes, research is needed to identify the most salient components of EWB for individuals with ID. This would allow for measures and interventions to be developed to promote EWB in this population.

What this paper adds

This study provides a scoping review of available measures of EWB that have been designed, adapted, or administered to individuals with ID. Study findings detail the characteristics of these measures, highlighting gaps in available EWB measures for children and adolescents with ID. We also found that emotional well-being is frequently assessed as a component of a broader construct (e.g., quality of life) using a small number of items. This suggests a need and opportunity for growth in further understanding emotional well-being assessment in individuals with ID.

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智力残疾个体情绪健康的测量：综述的范围综述

目的本综述的范围综述探讨了如何评估智力残疾（ID）个体的生活质量的一个方面，即情绪健康（EWB），包括对该人群中个体设计、适应或实施的措施的特征。方法：遵循既定的范围评估实践，我们于2022年11月检索了ERIC、APA Psych Info和Academic Search Premier数据库，检索了包括针对ID患者设计、改编或管理的EWB测量方法的综述文章。按照PRISMA的指导方针，我们在标题、摘要和全文评审阶段进行了独立的双重编码。从每篇纳入的综述文章中，我们提取了综述的目的、与ewb相关的兴趣结构，以及与ewb相关的度量名称和作者。然后，我们使用Park等人（2023）对EWB的定义定位每个测量并对其项目进行编码。我们还对通过这些措施评估的“非ewb”域进行了编码。我们使用了PRISMA扩展范围审查（PRISMA- scr）检查表来组织我们的手稿。结果纳入范围的综述确定了10篇综述文章，其中包括14个独特的EWB测量指标。每项措施至少包括1项评估EWB的项目（M = 2.8）。生活质量是综述文章中最常见的ewb相关概念。测量经常评估EWB之外的其他结构，包括自决、人际关系、身体健康和物质健康。结论：在为ID患者设计或调整的测量中，EWB通常作为生活质量的一个组成部分。由于EWB与积极的社会、情感、行为和健康结果有关，因此需要进行研究，以确定ID患者EWB中最显著的组成部分。这将允许制定措施和干预措施，以促进这一人群的EWB。本文补充的内容本研究提供了一个范围审查现有的EWB措施，这些措施已被设计、改编或管理到ID个体。研究结果详细说明了这些措施的特点，突出了现有的针对ID儿童和青少年的EWB措施的差距。我们还发现，情绪幸福感经常被评估为一个更广泛的结构（例如，生活质量）的组成部分，使用少量的项目。这表明，在进一步了解ID患者的情绪健康评估方面，有必要也有机会发展。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Research in Developmental Disabilities Multiple-

CiteScore

5.50

自引率

6.50%

发文量

178

期刊介绍： Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.