Clusters of Patient Empowerment and Mental Health Literacy Differentiate Professional Help-Seeking Attitudes in Online Mental Health Communities Users

IF 3 3区医学 Q2 HEALTH CARE SCIENCES & SERVICES Health Expectations Pub Date : 2025-01-15 DOI:10.1111/hex.70153

Nicole Bizzotto, Gert-Jan de Bruijn, Peter Johannes Schulz

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Abstract

Objectives

Grounded in the Health Empowerment Model, which posits that health literacy and patient empowerment are intertwined yet distinct constructs, this study investigates how the interplay of these factors influences attitudes toward seeking professional psychological help in members of online communities for mental health (OCMHs). This while acknowledging the multidimensionality of patient empowerment, encompassing meaningfulness, competence, self-determination, and impact.

Design and Methods

A cluster analysis of data gathered from 269 members of Italian-speaking OCMHs on Facebook has been performed.

Results

Four profiles have been identified: dangerous self-managers (11.2%), effective self-managers (21.2%), disempowered (40.5%) and ambivalent empowered (27.1%). Clusters provided meaningful variations in help-seeking attitudes, also when controlling for depression and anxiety severity, F_3, 265 = 11.910, p < 0.001.

Conclusions

The findings provided further evidence of the multidimensionality of patient empowerment. Considering the results, we discussed potential interventions aimed at enhancing the quality of OCMHs, tailoring to the unique characteristics of each cluster.

Patient or Public Contribution

Administrators and moderators of mental health Facebook communities—whether expert-led by mental health professionals or peers—played a key role in this study. They provided valuable insights during the questionnaire design process to ensure the questions were both relevant and appropriate for community members. These administrators and moderators also actively facilitated participant recruitment by creating and sharing posts, either video- or text-based, on community homepages. Furthermore, after completing the questionnaire, participants were encouraged to comment on the Facebook posts where the survey link was shared, mentioning that they participated and inviting other members to take part. This approach aimed to foster a sense of involvement and further promoted the survey within the community.

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患者赋权和心理健康素养集群区分在线心理健康社区用户的专业求助态度。

目的：基于健康赋权模型，该模型假设健康素养和患者赋权是相互交织但又不同的结构，本研究探讨了这些因素的相互作用如何影响在线心理健康社区（OCMHs）成员寻求专业心理帮助的态度。这同时也承认了患者赋权的多维性，包括意义、能力、自决和影响。设计和方法：对Facebook上269名讲意大利语的ocmh成员的数据进行了聚类分析。结果：发现了四种类型的自我管理者：危险型自我管理者（11.2%）、有效型自我管理者（21.2%）、非授权型（40.5%）和矛盾型授权型（27.1%）。在控制抑郁和焦虑严重程度的情况下，聚类在寻求帮助态度上存在显著差异（F3, 265 = 11.910, p）。结论：研究结果进一步证明了患者赋权的多维性。考虑到这些结果，我们讨论了旨在提高ocmhh质量的潜在干预措施，根据每个集群的独特特征进行调整。患者或公众贡献：Facebook心理健康社区的管理者和版主——无论是由心理健康专业人士还是同行领导的专家——在这项研究中发挥了关键作用。他们在问卷设计过程中提供了宝贵的见解，以确保问题既相关又适合社区成员。这些管理员和版主还通过在社区主页上创建和分享基于视频或文本的帖子，积极促进参与者招募。此外，在完成问卷后，参与者被鼓励在分享调查链接的Facebook帖子下评论，提到他们参与并邀请其他成员参与。这种做法旨在培养参与意识，并在社区内进一步推广调查。

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来源期刊

Health Expectations 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.20

自引率

9.40%

发文量

251

审稿时长

>12 weeks

期刊介绍： Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.