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Siglo Cero. Revista Española sobre Discapacidad Intelectual最新文献

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Autodeterminación: explorando las autopercepciones de adultos con síndrome de Down chilenos 自我决定:探索智利唐氏综合症成年人的自我认知
Pub Date : 2018-06-01 DOI: 10.14201/SCERO201849289104
V. Vega, I. Álvarez, Cristina Jenaro Río
This research seeks to identify factors that influence the self-determined behavior of nine adults with Down syndrome. A descriptive and ex post facto study is presented through the application of the INICO-FEAPS Scale on Quality of Life in a semi-structured interview format. Quantitative and qualitative analyzes have been carried out, adopting a mixed model. Quantitative analyses showed significantly lower levels in the self-determination and rights domains. Qualitative analyses revealed the existence of contextual barriers derived from overprotection, together with individual, natural and professional support as facilitators of self-determination. These results underline the importance of achieving an adequate balance between the types and intensities of supports, to guarantee the desired personal results without reducing selfdetermination.
这项研究旨在确定影响9名唐氏综合症成人自我决定行为的因素。通过采用半结构化访谈格式的INICO-FEAPS生活质量量表,提出了一项描述性和事后研究。采用混合模型进行了定量和定性分析。定量分析显示,自决和权利领域的水平明显较低。定性分析显示,由于过度保护而产生的环境障碍的存在,以及个人、自然和专业支持作为自决的促进因素。这些结果强调了在支持的类型和强度之间取得适当平衡的重要性,以保证在不减少自决的情况下取得理想的个人结果。
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引用次数: 8
Principales conclusiones acordadas durante la cumbre sobre discapacidad intelectual y demencia 智力残疾和痴呆症峰会达成的主要结论
Pub Date : 2018-06-01 DOI: 10.14201/SCERO2018492115122
Matthew P. Janicki, Karen Watchman, Juan Fortea Ormaechea
Matthew P. Janicki†, Karen Watchman*, Juan Fortea Ormaechea# and the members of the International Summit on Intellectual Disability and Dementia † University of Illinois at Chicago, USA * University of Stirling, Scotland, UK # Fundació Catalana de Síndrome de Down (FCSD), Barcelona, España y Unidad de Memoria, Departamento de Neurología, Hospital de la Santa Creu i Sant Pau, Instituto de Investigación Biomédica Sant Pau, Universitat Autònoma de Barcelona, Barcelona, España
Matthew P. Janicki†、Karen Watchman*、Juan Fortea Ormaechea# 以及智障与痴呆症国际峰会成员 † 美国伊利诺伊大学芝加哥分校 * 英国苏格兰斯特林大学 # 西班牙巴塞罗那加泰罗尼亚唐氏综合症基金会(FCSD)以及西班牙巴塞罗那 Autònoma de Barcelona 大学 Sant Pau 生物医学研究所 Santa Creu i Sant Pau 医院神经病学系记忆室
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引用次数: 0
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Siglo Cero. Revista Española sobre Discapacidad Intelectual
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