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Readiness for Decision Making towards End-of-Life Care among Unmarried or Divorced Middle-aged and Elderly Men in Japan 日本未婚或离婚中老年男性对临终关怀的决策准备程度
Pub Date : 2021-05-17 DOI: 10.22492/issn.2432-4183.2021.4
M. Okamoto, K. Sawamura
BACKGROUND: Previous research has found that 70% of patients are unable to express their end-of-life (EOL) preferences. Hospitals in Japan often ask the patient’s family members to guess and express the patient’s will and take decisions on his/her behalf, but never-married and divorced men often have no relatives to fulfill such functions. METHODS: An internet survey was conducted on February 14–24, 2020. The sample size was 3,224 and it was balanced among 3 layers: gender, age (50s, 60s, 70s+), and marital status (never-married, divorced, widowed, married). The sample included 471 never-married men and 472 divorced men. RESULTS: Overall, it was found that 3.1% had no support in the event of hospitalization. Among all participants, the never-married or divorced men had little contact with relatives, few friends, and little communication with their neighbors; 20% of them had no one to support them when hospitalized. Sixty percent of all participants never discussed their advanced care planning (ACP) with their families or friends, and this number was around 84% among never-married or divorced men. Among all participants, 11.7% had written an “ending note” to communicate their will regarding end-of-life and after-death decisions. This number was much lower for never-married men at 3.6%. CONCLUSIONS: As never-married and divorced men have little chance to share their thoughts with others, they are more likely to have difficulties in making and communicating EOL decisions. The number of never-married elderly men is increasing rapidly, and a solution to help them express their EOL decisions is needed.
背景:先前的研究发现,70%的患者无法表达他们的临终(EOL)偏好。日本的医院经常让病人的家属猜测和表达病人的意愿,并代表他/她做出决定,但未婚和离婚的男性往往没有亲属履行这种职能。方法:于2020年2月14-24日进行网络调查。样本量为3224人,在性别、年龄(50多岁、60多岁、70多岁)和婚姻状况(未婚、离婚、丧偶、已婚)3个层面进行平衡。样本包括471名未婚男性和472名离婚男性。结果:总体而言,发现3.1%的人在住院时没有支持。在所有参与者中,从未结婚或离婚的男性很少与亲戚、朋友接触,也很少与邻居交流;其中20%的人住院时无人支持。60%的参与者从未与家人或朋友讨论过他们的高级护理计划(ACP),而在从未结婚或离婚的男性中,这一比例约为84%。在所有参与者中,11.7%的人写了一份“结束笔记”,以表达他们对生命结束和死后决定的意愿。未婚男性的这一比例要低得多,为3.6%。结论:由于未婚和离异男性很少有机会与他人分享他们的想法,他们更有可能在制定和沟通EOL决策方面遇到困难。未婚老年男性的数量正在迅速增加,需要一个帮助他们表达离职决定的解决方案。
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引用次数: 0
Influence of Demographic Characteristics on Subjective Well-Being of Older Adults 人口统计学特征对老年人主观幸福感的影响
Pub Date : 2021-05-17 DOI: 10.22492/issn.2432-4183.2021.2
Emmy Ingaiza, Margaret A. Disiye, P. Onderi
Research into well-being of older adults is at advanced stage the world over. Most of the studies are conducted in the west. A few studies done in Kenya have focused on older adults’ abuse and vulnerability. Furthermore, these studies have used younger populations, thus lack self-reporting by the older adults themselves. This causal-comparative study sought to determine the level of subjective well-being of older adults and how demographic data related to the population and within groups influence the subjective well-being of older adults. Data was collected from older persons (n=140, >65yrs) participating in the Older Person’s Cash Transfer programme that serves the non-pensionable and aged Kenyans. Findings revealed that the older adults experienced low levels of subjective well-being, low levels of positive affect and low levels of negative affect and were dissatisfied with their life. The findings further revealed that being married, having own source of income, attaining secondary school education and poor self-perceived health, significantly influenced subjective well-being. Relative absence of negative affect strongly predicted subjective well-being, followed by presence of positive affect and finally the dimension of satisfaction with life. The demographic characteristics did not reveal themselves as predictive variables in this study. Understanding the dynamics, emotional and cognitive processes of older adults may be useful in designing interventions, strategies and policy programs that could enhance subjective well-being of older adults.
在世界范围内,对老年人福祉的研究处于后期阶段。大多数研究都是在西方进行的。在肯尼亚进行的一些研究集中在老年人的虐待和脆弱性上。此外,这些研究使用的是较年轻的人群,因此缺乏老年人自己的自我报告。这项因果比较研究旨在确定老年人的主观幸福感水平,以及与人口和群体内相关的人口统计数据如何影响老年人的主观幸福感。数据是从参加老年人现金转移方案的老年人(n=140, >65岁)中收集的,该方案为不领取养老金的肯尼亚人和老年人提供服务。结果表明,老年人主观幸福感、积极情感和消极情感水平均较低,对生活不满意。调查结果进一步表明,结婚、有自己的收入来源、接受过中学教育和自我健康状况不佳,对主观幸福感有重大影响。消极情感的相对缺失对主观幸福感有很强的预测作用,其次是积极情感的存在,最后是生活满意度。在本研究中,人口统计学特征并没有显示出自己是预测变量。了解老年人的动态、情感和认知过程可能有助于设计干预措施、策略和政策方案,从而提高老年人的主观幸福感。
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引用次数: 0
Long-term Home Care Communication With Dementia Elders in Taiwan: A Focus on Nonverbal Communication Strategies 台湾失智长者长期居家照护沟通:以非语言沟通策略为焦点
Pub Date : 2021-05-17 DOI: 10.22492/issn.2432-4183.2021.1
Chin-hui Chen
The population of older people living with dementia in Taiwan is growing dramatically. If seniors with dementia are to remain in their own homes, higher-quality long-term home care services are vital. One way to achieve this quality goal is to promote better communication between seniors and providers. Accordingly, this study addresses an aspect of communication behaviour that tends to be overlooked in studies on dementia-care communication: nonverbal communication accommodations. Specifically, it presents a typology of nonverbal communication strategies used in long-term home-care service in Taiwan, based on in-depth interviews with 30 long-term home-care workers with at least one year of dementia-care experience. Prominent among these strategies are constant smiling; using one’s fingers to draw patients’ attention to one’s eyes to maintain eye contact; gentle touching to express concern or care; and firm holding of hands, as a means of gauging acceptance or refusal of instructions. However, nonverbal signs of patients’ understanding also emerged as crucial to care workers’ decision-making. In particular, eye movement, turning the face to the side, looking downward, and maintaining steady eye contact all were reported to have different meanings, knowledge of which was essential to successful care communication. These findings not only extend our understanding of social-care practices, but also have the potential to enhance the wellbeing of dementia patients.
台湾老年痴呆症患者的数量正在急剧增长。如果老年痴呆症患者要留在自己的家中,高质量的长期家庭护理服务至关重要。实现这一质量目标的一种方法是促进老年人和提供者之间更好的沟通。因此,本研究解决了在痴呆症护理沟通研究中往往被忽视的沟通行为的一个方面:非语言沟通适应。具体而言,本研究以深度访谈30位具有至少一年痴呆症护理经验的长期家庭护理工作者为基础,提出台湾长期家庭护理服务中使用的非语言沟通策略类型。这些策略中最突出的是保持微笑;用手指将病人的注意力吸引到自己的眼睛上,以保持目光接触;温柔的触摸:表示关心或关心的温柔的触摸;和坚定的握手,作为衡量接受或拒绝指示的一种手段。然而,患者理解的非语言信号也对护理人员的决策至关重要。特别是,眼球运动,把脸转向一边,向下看,保持稳定的目光接触,这些都有不同的含义,了解这些对于成功的护理沟通至关重要。这些发现不仅扩展了我们对社会护理实践的理解,而且有可能提高痴呆症患者的福祉。
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引用次数: 0
Envisioning a Healthier Build Environment for Elderly People with Dementia in Denmark – A Conservatory for People and Plants 为丹麦老年痴呆症患者设想一个更健康的建筑环境——人与植物的温室
Pub Date : 2021-05-17 DOI: 10.22492/issn.2432-4183.2021.5
Jon Dag Rasmussen, N. Mathiasen, V. L. Lygum, Lone Sigbrand
Scientific research has shown how exposure to daylight and continual contact with greenery, natural elements and habitats are crucial factors for human well-being. In the wake of these findings, it is highly important to improve access to facilities that enable and promote these effects of increased life quality and well-being among all groups of people in our societies. The paper describes an in-progress project focusing on how to enhance the everyday conditions of elderly people in a care home setting in Denmark, all of which are living with Dementia. The paper presents a vision for a new physical extension to the existing building structure on the care home location that supports everyday life, activities and the overall well-being among the residents. The vision can be seen as the first step in the development of a set of generic guidelines for the design and use made to be transferred and tested in other settings in Denmark and internationally. In drafting and designing the conservatory the project group employs principles of Universal Design in combination with newer research findings on the health-promoting potentials of spaces characterized by access to natural light, plant growth and living environments. Furthermore, the work rests on a holistic ambition to create brighter, greener, naturally aligned and healthier conditions for residents, care home workers and visiting relatives alike.
科学研究表明,暴露在日光下,不断接触绿色植物、自然元素和栖息地,是人类健康的关键因素。在这些发现之后,改善设施的使用是非常重要的,这些设施能够促进我们社会中所有人群提高生活质量和福祉的这些影响。本文描述了一个正在进行的项目,重点是如何改善丹麦养老院老年人的日常生活条件,所有这些老年人都患有痴呆症。该论文提出了对养老院现有建筑结构进行新的物理扩展的愿景,以支持居民的日常生活、活动和整体福祉。这一设想可以看作是为设计和使用制订一套通用准则的第一步,这些准则将在丹麦和国际上的其他环境中转让和试验。在温室的起草和设计中,项目组采用了通用设计的原则,结合了新的研究成果,以自然采光、植物生长和生活环境为特征的空间促进健康的潜力。此外,这项工作的整体目标是为居民、护理院工作人员和来访的亲戚创造更明亮、更环保、更自然和更健康的条件。
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引用次数: 0
Characteristics of Support Cases for Single Elderly People in Daily Life, Medical Care, Long-term Care, and Death Situations 单身老年人日常生活、医疗、长期护理和死亡情况下的支持案例特征
Pub Date : 2020-11-13 DOI: 10.22492/issn.2432-4183.2021.3
K. Sawamura, Maki Okamoto
In Japan, the number of older persons who cannot be supported by family members in decisionmaking is increasing. Difficulties in making medical decisions due to dementia or deteriorated physical conditions are apparent. Considering the aging process, difficulties in maintaining the quality of daily living must exist beforehand, and support is required from earlier stages. We collected real cases from local government staff, care managers, social welfare personnel, and private support companies, according to five scenarios of supported decision making: (1) Difficulty with daily activities, (2) Receiving serious medical treatment, (3) Being discharged and rebuilding life, (4) Rearranging care services and residence according to functional decline, and (5) Dealing with death. Of the 134 collected cases, most were in Scenario 4 (n = 52) and involved men aged 75 to 84 years (n = 45). Even if it becomes difficult for a person to recognize problems and carry out solutions, expressing intentions, which is the basis of decision-making, plays an important role for the person and the most sustainable one. What is lost by the absence of family members is the “point of contact” between the individual and the outside world, which is related to the fact that issues cannot be discovered until Scenario 4 and that support at each stage is not continuous. In light of the decrease in the number of supporters and the increase in the number of people who need support, contact should be established in a way that requires less human involvement, such as through the use of information technology.
在日本,无法得到家庭成员决策支持的老年人数量正在增加。由于痴呆症或身体状况恶化,做出医疗决定的困难是显而易见的。考虑到老龄化过程,维持日常生活质量的困难必然预先存在,需要从早期阶段开始提供支持。我们收集了来自当地政府工作人员、护理管理人员、社会福利人员和私营支持公司的真实案例,根据支持决策的五个场景:(1)日常活动困难,(2)接受严重的医疗治疗,(3)出院重建生活,(4)根据功能衰退重新安排护理服务和住所,(5)处理死亡。在收集到的134例病例中,大多数属于情景4 (n = 52),涉及年龄在75至84岁之间的男性(n = 45)。即使一个人很难认识到问题并执行解决方案,表达意图作为决策的基础,对这个人来说也起着重要的作用,也是最可持续的作用。由于家庭成员的缺席而失去的是个人与外界之间的“联系点”,这与以下事实有关:直到情景4才能发现问题,并且每个阶段的支持都不是连续的。鉴于支持者数量的减少和需要支持的人数的增加,应以一种需要较少人力参与的方式建立联系,例如通过使用信息技术。
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引用次数: 1
期刊
The Asian Conference on Aging & Gerontology 2021: Official Conference Proceedings
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