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The Value of Genetic Knowledge 遗传知识的价值
Pub Date : 2021-09-23 DOI: 10.1093/oso/9780190063054.003.0004
Daniel Groll
This chapter vindicates the claim that donor-conceived people’s interest in acquiring genetic knowledge is worthwhile by offering an account of the value of genetic knowledge. The author develops and defends a view called “genetic pluralism” according to which having genetic knowledge can, but need not, play a central role in the task of identity determination. In this way, having genetic knowledge is prudentially optional. The author explains the task of identity determination in terms of answering the question “Who am I?,” which is, in turn, unpacked in terms of three other questions: “How did I come to be?,” “What am I like?,” and “Who am I like?” The author shows how having genetic knowledge can—but need not—play a role in answering each of these questions.
本章通过提供遗传知识的价值说明,证明了捐赠者对获取遗传知识的兴趣是值得的。作者发展并捍卫了一种称为“基因多元化”的观点,根据这种观点,拥有遗传知识可以(但不必)在身份确定的任务中发挥核心作用。通过这种方式,拥有遗传知识是谨慎的选择。作者通过回答“我是谁?”这个问题来解释身份确定的任务。,这个问题反过来又被分解成另外三个问题:“我是怎么来的?”“我是什么样的人?”、“我像谁?”作者展示了拥有遗传知识如何能够(但不必)在回答这些问题中发挥作用。
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引用次数: 0
The Donor’s Responsibilities 捐赠人的责任
Pub Date : 2021-09-23 DOI: 10.1093/oso/9780190063054.003.0007
Daniel Groll
This chapter considers the nature and extent of a gamete donor’s responsibility for their genetic offspring. The author argues that even if gamete donation is the kind of activity that triggers parental responsibility, gamete donors do not typically ever incur actual parental responsibility. Instead, they incur prospective parental responsibility, which is typically transferred to intended parents before the child comes into existence. The author argues that while prospective parental responsibility can be responsibly transferred, potential donors are generally obligated to be open donors so as not to implicate themselves in the morally problematic practice of conceiving children with anonymously donated gametes.
本章考虑配子供体对其遗传后代的责任的性质和程度。作者认为,即使配子捐赠是一种触发父母责任的活动,配子捐赠者通常也不会产生实际的父母责任。相反,他们承担了预期的父母责任,通常在孩子出生前就转移给了预期的父母。作者认为,虽然未来的父母责任可以负责任地转移,但潜在的捐赠者通常有义务是公开的捐赠者,以免将自己卷入用匿名捐赠的配子孕育孩子的道德问题实践中。
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引用次数: 0
Tipping the Scale 改变天平
Pub Date : 2021-09-23 DOI: 10.1093/oso/9780190063054.003.0006
Daniel Groll
In this chapter, the author argues that the weighty reason to use an open donor identified by the Significant Interest view is, normally, a decisive reason. The argument proceeds by first distinguishing between intrinsic and extrinsic reasons for using an anonymous donor and then showing that, generally speaking, there are no intrinsic reasons that outweigh the reason to use an open donor identified by the Significant Interest view. While there might be extrinsic reasons that give some people decisive reason to use an anonymous donor, the author argues that the lack of intrinsic reasons means that we should work to remove extrinsic reasons for using an anonymous donor.
在本章中,作者认为使用重大利益观点认定的公开赠与人的重要原因通常是决定性原因。该论点首先区分了使用匿名捐赠者的内在原因和外在原因,然后表明,一般来说,没有内在原因比使用重大利益观点所确定的公开捐赠者的原因更重要。虽然可能有一些外在原因给了一些人使用匿名捐赠者的决定性理由,但作者认为,缺乏内在原因意味着我们应该努力消除使用匿名捐赠者的外在原因。
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引用次数: 0
The Significant Interest View 重大利益观
Pub Date : 2021-09-23 DOI: 10.1093/oso/9780190063054.003.0003
Daniel Groll
This chapter presents the Significant Interest view, which aims to show that people who intend to conceive a child with donated gametes have a weighty reason to use an open donor. According to the Significant Interest view, the fact that a donor-conceived person is likely to be very interested in acquiring genetic knowledge gives intended parents a weighty reason to use an open donor. This is because parents ought to promote their children’s well-being by helping satisfy their child’s worthwhile significant interests, and a donor-conceived person’s interest in genetic knowledge is one such interest. This chapter explains what it means for an interest to be significant and worthwhile, the role that parents can legitimately play in shaping a child’s significant interests, and what the connection is between a person’s well-being and the satisfaction of their significant interests.
本章提出了重大利益观点,其目的是表明那些打算用捐赠的配子怀孕的人有一个重要的理由使用开放的捐赠者。根据“重大利益”的观点,捐赠者怀孕的人很可能对获取遗传知识非常感兴趣,这一事实给了准父母一个使用开放式捐赠者的重要理由。这是因为父母应该通过帮助满足孩子有价值的重大利益来促进孩子的福祉,而捐赠者对遗传知识的兴趣就是这样一种兴趣。本章解释了什么是重要和有价值的兴趣,父母在塑造孩子的重要兴趣中可以扮演的合法角色,以及一个人的幸福和他们的重要兴趣的满足之间的联系。
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引用次数: 0
Policy and Practice 政策及实务
Pub Date : 2021-09-23 DOI: 10.1093/oso/9780190063054.003.0008
Daniel Groll
In this chapter, the author argues that even though creating children with anonymously donated gametes is (usually) morally wrong, people should be legally allowed to do it. This is partly because the failure to use an open donor is on a par with other permissible parental failures. But it is also because legally prohibiting anonymous gamete donation without simultaneously working to disrupt the bionormative schema of society will have negative expressive effects. This last point leads to a longer answer to the question of whether anonymous gamete donation should be prohibited: if legal prohibition should be pursued, it should only happen in the context of combating the bionormativity of society so as to minimize the expressive effects of simply outlawing anonymous gamete donation.
在这一章中,作者认为,尽管用匿名捐赠的配子创造孩子(通常)在道德上是错误的,但人们应该在法律上被允许这样做。这在一定程度上是因为没有使用开放式供体与其他允许的父母失败是一样的。但也因为在法律上禁止匿名配子捐赠,而不同时努力破坏社会的生物规范模式,将产生负面的表达效果。最后一点引出了是否应该禁止匿名配子捐赠的问题的更长的答案:如果应该追求法律禁止,它应该只发生在打击社会生物规范的背景下,以尽量减少仅仅禁止匿名配子捐赠的表达效果。
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引用次数: 0
The Bionormative Prejudice 生物规范偏见
Pub Date : 2021-09-23 DOI: 10.1093/oso/9780190063054.003.0005
Daniel Groll
This chapter presents, and responds to, an objection to the Significant Interest view which claims that people’s interest in acquiring genetic knowledge is not worthwhile because it is insidiously morally problematic. What makes it insidiously morally problematic, according to this objection, is that the interest in genetic knowledge both reflects and further entrenches bionormative prejudice, i.e. a form of prejudice which maintains that the ideal family is one where parents are genetically related to their children. The author responds by showing that even though bionormative prejudice is prevalent in society, it does not undermine the value of people’s interest in genetic knowledge.
本章提出并回应了对重大利益观点的反对意见,该观点声称,人们对获取遗传知识的兴趣是不值得的,因为它在道德上是潜在的问题。根据这一反对意见,对遗传知识的兴趣反映并进一步巩固了生物规范偏见,即一种偏见,认为理想的家庭是父母与孩子在基因上有联系的。作者的回应是,尽管生物规范偏见在社会上很普遍,但它并没有削弱人们对遗传知识的兴趣的价值。
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引用次数: 0
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Conceiving People
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