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The Effectiveness of Parenting Program Based on Video Interactive Guidance 基于视频互动指导的育儿计划的有效性
Pub Date : 2024-06-07 DOI: 10.4274/jpea.2024.307
Tuğba Menteşe Babayiğit, Merve Cıkılı Uytun, R. D. Temeltürk, Gokce Yagmur Efendi, D. Öztop, Esra Yürümez, Belgin Üstün Güllü, Semiha Pekacar Uyaroğlu
This study aimed to assess the impact of a video-based interactive guidance (VIG) training program on parents’ anxiety, depression levels, coping styles, and interactions with their infants. The sample comprised eight children aged 24-40 months years diagnosed with autism spectrum disorder and/or developmental delay. After the diagnostic process, the parents participated in a 4-session VIG parenting program. Pre- and post-implementation comparisons were made on various variables. Data were collected from mothers using sociodemographic forms, Beck Depression Inventory, State Trait Anxiety Inventory, The Ways of Coping Inventory, parenting attitudes styles, and Crowell procedure (PIR-GAS) scores. Our findings revealed that following VIG, the quality of parent-child relationships improved significantly compared with earlier assessments, as observed through PIR-GAS evaluations. Moreover, there was a notable decrease in ineffective coping styles among parents. The VIG outlined in this study proved to be a highly successful psychological therapy method for children and preschoolers. However, while these results are significant, evidence supporting this program’s effectiveness for mothers and children in early childhood is limited, emphasizing the need for further research.
本研究旨在评估视频互动指导(VIG)培训项目对父母焦虑、抑郁水平、应对方式以及与婴儿互动的影响。样本包括 8 名被诊断患有自闭症谱系障碍和/或发育迟缓的 24-40 个月大的儿童。诊断过程结束后,家长们参加了为期 4 个课时的 VIG 亲子教育项目。对实施前和实施后的各种变量进行了比较。我们使用社会人口学表格、贝克抑郁量表、国家特质焦虑量表、应对方式量表、养育态度风格和克劳尔程序(PIR-GAS)评分收集了母亲们的数据。我们的研究结果表明,通过 PIR-GAS 评估,VIG 后亲子关系的质量与早期评估相比有了显著改善。此外,家长的无效应对方式也明显减少。本研究中概述的 VIG 被证明是一种非常成功的儿童和学龄前儿童心理治疗方法。然而,尽管这些结果意义重大,但支持该计划对幼儿期母亲和儿童有效的证据却很有限,这就强调了进一步研究的必要性。
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引用次数: 0
Integrating Child Life Specialists in Pediatric Oncology and Hematology Care: A Narrative Review 将儿童生命专家纳入儿科肿瘤学和血液学护理:叙述性综述
Pub Date : 2024-06-06 DOI: 10.4274/jpea.2024.309
Mohamad Abdelkhalik, Maria Ibrahim, Fatima Al Maaz, Eliannore Boutros
Many healthcare systems overlook the importance of enrolling a child life specialist (CLS) on board, possibly due to the lack ofknowledge and awareness on the impact they might yield. This study highlights the essential contributions of CLS in improving pediatric oncology healthcare experiences. A thorough search of numerous databases was performed to identify English-language publications between 2005 and 2024, using a variety of study methods to establish a diverse evidence base. CLSs offer emotional support, educate patients and their families, implement distraction techniques, and collaborate with healthcare personnel to assist patients throughout their treatment journey. They also aid in providing adequate knowledge to patients and their families regarding medical procedures and treatment outcomes. Hence, CLSs play a vital role to play in the care of pediatric hematology oncology patients. A comprehensive interdisciplinary approach is needed to extend the role of CLS and ensure that every child receives the support and care they deserve.
许多医疗保健系统都忽视了聘用儿童生命专家(CLS)的重要性,这可能是由于对他们可能产生的影响缺乏了解和认识。本研究强调了儿童生命专家在改善儿科肿瘤医疗体验方面的重要贡献。研究人员对众多数据库进行了全面检索,以确定 2005 年至 2024 年间的英文出版物,并采用多种研究方法建立了多样化的证据基础。CLS 提供情感支持、教育患者及其家属、实施分散注意力的技巧,并与医护人员合作,在整个治疗过程中为患者提供帮助。他们还帮助病人及其家属充分了解医疗程序和治疗结果。因此,CLS 在儿科血液肿瘤患者的护理中发挥着至关重要的作用。我们需要一种全面的跨学科方法来扩展 CLS 的作用,确保每个儿童都能得到应有的支持和护理。
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引用次数: 0
Hyperthyroidism in Pediatric Patients in a University Hospital: Ten Years of Experience 一家大学医院儿科患者的甲状腺功能亢进症:十年经验
Pub Date : 2024-06-05 DOI: 10.4274/jpea.2024.277
Z. Kocabey Sütçü, Beray Selver Eklioğlu, M. Atabek
Although rare in childhood, hyperthyroidism is diagnosed by suppressed serum thyrotropin (TSH) levels and increased levels of free triiodothyronin (fT3) and free thyroxine (fT4) in addition to history and physical examination findings. In this study, we aimed to investigate the causes of hyperthyroidism and the clinical features of the disease in children and to evaluate the treatment. A total of 39 patients with hyperthyroidism diagnosed between 2010 and 2019 in the pediatric endocrinology department were included in the study.Thirty-one (79.5%) patients were female, and the mean age of admission was 14.4 (4.3-17.5) years. Of the cases, 33 (84.6%) were diagnosed with Graves’ diseases and 6 (16.7%) with Hashimoto thyroiditis. The most frequent complaints of patients diagnosed with hyperthyroidism were irritability (24, 61.5%), palpitation (22, 56.9%), and sweating (21, 53.8%). The most frequent findings were goiter in 31 (79.5%) patients and tachycardia in 27 (69.2%) patients. Serum TSH levels were suppressed in all patients, fT3 levels were increased in 94.4% of them, and fT4 levels were increased in 80.5% of them. In patients with Graves’ disease, TSH receptor antagonist was positive in 31 (93.9%) cases, and at least one of the thyroid autoantibodies was positive in all patients. Antithyroid drug treatment was initiated in all patients; 35 of them received methimazole and 4 of them received propylthiouracil. Radioactive iodine treatment was applied to three patients, and two patients were treated surgically who did not respond to antithyroid drug treatment. Antithyroid drug adverse effects were observed in 7 (21.2%) patients, requiring drug discontinuation in 1 patient. Although hyperthyroidism is rare in childhood, its treatment is difficult and requires close follow-up. Treatment options are different for adult patients. There is a need for multicenter studies to evaluate treatment efficacy and long-term outcomes in children.
甲状腺功能亢进症虽然在儿童期很少见,但除了病史和体格检查结果外,血清促甲状腺激素(TSH)水平受抑制、游离三碘甲状腺原氨酸(fT3)和游离甲状腺素(fT4)水平升高也可诊断甲状腺功能亢进症。本研究旨在探究儿童甲状腺功能亢进症的病因和临床特征,并对治疗方法进行评估。研究共纳入了39例2010年至2019年期间在儿科内分泌科确诊的甲亢患者。31例(79.5%)患者为女性,平均入院年龄为14.4(4.3-17.5)岁。其中,33例(84.6%)被诊断为巴塞杜氏病,6例(16.7%)被诊断为桥本氏甲状腺炎。确诊为甲状腺功能亢进症的患者最常见的主诉是烦躁(24 人,61.5%)、心悸(22 人,56.9%)和出汗(21 人,53.8%)。最常见的检查结果是甲状腺肿(31 例,占 79.5%)和心动过速(27 例,占 69.2%)。所有患者的血清促甲状腺激素(TSH)水平均受到抑制,94.4%的患者fT3水平升高,80.5%的患者fT4水平升高。在巴塞杜氏病患者中,有31人(93.9%)的促甲状腺激素受体拮抗剂呈阳性,所有患者至少有一种甲状腺自身抗体呈阳性。所有患者都接受了抗甲状腺药物治疗,其中35人接受了甲巯咪唑治疗,4人接受了丙基硫氧嘧啶治疗。3名患者接受了放射性碘治疗,2名对抗甲状药物治疗无效的患者接受了手术治疗。7名患者(21.2%)出现了抗甲状腺药物不良反应,其中1名患者需要停药。虽然甲状腺功能亢进症在儿童期很少见,但其治疗难度很大,需要密切随访。成人患者的治疗方案有所不同。有必要进行多中心研究,以评估儿童的治疗效果和长期预后。
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引用次数: 0
Moyamoya Disease Masquerading as Hemiplegic Migraine in a Child: A Case Report From India 儿童莫亚莫亚病(Moyamoya Disease Masquerading as Hemiplegic Migraine):来自印度的病例报告
Pub Date : 2024-05-09 DOI: 10.4274/jpea.2024.275
Mathur Kumar D, SB. Moyamoya, Kunal Kumar, Deepak Kumar, S. B. Mathur, Pediatric Neurology
Moyamoya disease (MMD) is a chronic progressive steno-occlusive disease of the intracranial arterial vessels and their branches characterized by puff smoke appearance on angiography. Multifocal neurological insults and deficits are commonly observed in children with MMD. A 7-year-old boy presented with multiple episodes of transient hemiparesis preceded by headache, vomiting, and visual auras was initially labeled as sporadic hemiplegic migraine according to the International Headache Society criteria. However, the rare association of hemiplegic migraine with MMD compelled us to perform magnetic resonance imaging and digital subtraction angiography, which revealed MMD as the underlying cause for the alternating hemiplegia and headaches in the child.
莫亚莫亚病(MMD)是一种颅内动脉血管及其分支的慢性进行性狭窄闭塞性疾病,其特征是血管造影出现烟雾状外观。多灶性神经损伤和功能障碍常见于MMD患儿。一名 7 岁男孩出现多次一过性偏瘫,发作前伴有头痛、呕吐和视觉光环,根据国际头痛协会的标准,他最初被诊断为散发性偏瘫性偏头痛。然而,偏瘫性偏头痛与多发性头痛症的罕见关联迫使我们进行磁共振成像和数字减影血管造影检查,结果发现多发性头痛症是导致该患儿交替性偏瘫和头痛的根本原因。
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引用次数: 0
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The Journal of Pediatric Academy
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