Rosalba Hernandez, Brett Burrows, Kenneth Wilund, Judith T Moskowitz
Objectives: The current qualitative inquiry solicited hemodialysis (HD) patients to identify events or incidences that have gone well in their day-to-day life, things they consider to be blessings, and to further reflect on the contributors of such events.
Methods: Hemodialysis patients kept an electronic journal using investigator-purchased tablet computers.
Results: Multiple themes emerged for which HD patients expressed gratitude: 1) life itself, 2) positive or improving health 3) family interactions and social support, 4) clinic resources, favorable treatment therapy, and staff, and 5) other small events.
Conclusions: Clinicians are urged to explore the psychological assets that HD patients possess with a focus on how these might be further cultivated and whether their amplification leads to improved quality of life.
{"title":"Expressions of Gratitude and Positive Emotion among Hemodialysis Patients: Qualitative Findings.","authors":"Rosalba Hernandez, Brett Burrows, Kenneth Wilund, Judith T Moskowitz","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Objectives: </strong>The current qualitative inquiry solicited hemodialysis (HD) patients to identify events or incidences that have gone well in their day-to-day life, things they consider to be blessings, and to further reflect on the contributors of such events.</p><p><strong>Methods: </strong>Hemodialysis patients kept an electronic journal using investigator-purchased tablet computers.</p><p><strong>Results: </strong>Multiple themes emerged for which HD patients expressed gratitude: 1) life itself, 2) positive or improving health 3) family interactions and social support, 4) clinic resources, favorable treatment therapy, and staff, and 5) other small events.</p><p><strong>Conclusions: </strong>Clinicians are urged to explore the psychological assets that HD patients possess with a focus on how these might be further cultivated and whether their amplification leads to improved quality of life.</p>","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"44 1","pages":"9-12"},"PeriodicalIF":0.0,"publicationDate":"2020-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10353775/pdf/nihms-1602863.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10225974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mi-Kyung Song, Sandra E Ward, Laura C Hanson, Feng-Chang Lin, Jill B Hamilton, Gerald Hladik, Jason P Fine, Jessica C Bridgman, Summer K Sun, Margaret S Miles
This cross-sectional descriptive study explored surrogate decision-makers' psychological symptoms and their own assessment of decision-making abilities before actual involvement in end-of-life decision-making for their loved ones. One hundred-twenty dialysis patients' surrogates (79 African Americans and 41 Caucasians) completed scales measuring decision-making confidence, anxiety and depression, Post-Traumatic Symptoms (PTSS), and a sociodemographic questionnaire. Forty-two (35%) and 14 (11.7%) surrogates showed abnormal scores on anxiety and depression, respectively. Seven (5.8%) surrogates showed abnormal scores on PTSS. While surrogates decision making confidence was high (M=17.70, SD=2.88), there was no association between decision-making confidence and the three psychological variables. Surrogates' confidence was associated only with the quality of relationship with patient (r=0.33, p=0.001).
{"title":"Psychological symptoms and end-of-life decision making confidencein surrogate decision-makers of dialysis patients.","authors":"Mi-Kyung Song, Sandra E Ward, Laura C Hanson, Feng-Chang Lin, Jill B Hamilton, Gerald Hladik, Jason P Fine, Jessica C Bridgman, Summer K Sun, Margaret S Miles","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>This cross-sectional descriptive study explored surrogate decision-makers' psychological symptoms and their own assessment of decision-making abilities before actual involvement in end-of-life decision-making for their loved ones. One hundred-twenty dialysis patients' surrogates (79 African Americans and 41 Caucasians) completed scales measuring decision-making confidence, anxiety and depression, Post-Traumatic Symptoms (PTSS), and a sociodemographic questionnaire. Forty-two (35%) and 14 (11.7%) surrogates showed abnormal scores on anxiety and depression, respectively. Seven (5.8%) surrogates showed abnormal scores on PTSS. While surrogates decision making confidence was high (M=17.70, SD=2.88), there was no association between decision-making confidence and the three psychological variables. Surrogates' confidence was associated only with the quality of relationship with patient (<i>r</i>=0.33, <i>p</i>=0.001).</p>","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"36 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4169048/pdf/nihms-378040.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"32685127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Erica E Perry, Kai Zheng, Andrew Grogan-Kaylor, Mark W Newman, Tiffany C E Veinot
{"title":"Assessing the Effect of a Technology-Based Peer-Mentoring Intervention on Renal Teams' Perceived Knowledge and Comfort Level Working With Young Adults on Dialysis.","authors":"Erica E Perry, Kai Zheng, Andrew Grogan-Kaylor, Mark W Newman, Tiffany C E Veinot","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"33 ","pages":"8-12"},"PeriodicalIF":0.0,"publicationDate":"2010-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4176688/pdf/nihms463751.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"32707315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alternatives to in-center hemodialysis as treatment for end-stage renal disease have been shown to increase patient quality of life, decrease co-morbidities and decrease financial strain on both the patient and the health care system. Focus groups (n = 6 groups with 47 participants) and survey data (n = 113) were used to ascertain perceived barriers and facilitators to alternative therapies and psychosocial and educational issues that may affect a patients' choice of modality among patients utilizing in-center dialysis, home dialysis and renal transplantation. Fear emerged as a predominant theme, both at diagnosis and when choosing a modality. Distrust of the medical system, denial and patient experiences with previous modalities were seen as barriers to care. Results imply that interventions addressing fear and providing more comprehensive pre-dialysis education may decrease barriers.
{"title":"Renal replacement Therapy and Barriers to choice: using a Mixed Methods approach to explore the Patient's Perspective.","authors":"Caroline Jennette, Vimal Derebail, Judy Baldwin, Sandra Cameron","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Alternatives to in-center hemodialysis as treatment for end-stage renal disease have been shown to increase patient quality of life, decrease co-morbidities and decrease financial strain on both the patient and the health care system. Focus groups (n = 6 groups with 47 participants) and survey data (n = 113) were used to ascertain perceived barriers and facilitators to alternative therapies and psychosocial and educational issues that may affect a patients' choice of modality among patients utilizing in-center dialysis, home dialysis and renal transplantation. Fear emerged as a predominant theme, both at diagnosis and when choosing a modality. Distrust of the medical system, denial and patient experiences with previous modalities were seen as barriers to care. Results imply that interventions addressing fear and providing more comprehensive pre-dialysis education may decrease barriers.</p>","PeriodicalId":75091,"journal":{"name":"The journal of nephrology social work","volume":"32 ","pages":"15-26"},"PeriodicalIF":0.0,"publicationDate":"2009-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4864018/pdf/nihms771970.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34384432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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