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Generation Scotland: Linking all the records we can 苏格兰一代:连接我们所有的记录
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2347
Archie Campbell, Robin Flaig, Cathie Sudlow
ObjectivesWe started a family-based genetic epidemiology study in 2006-11 which recruited ~24,000 adult volunteers from ~7000 families across Scotland with consent for follow-up through medical record linkage and re-contact. In 2022-23 we are recruiting another 20,000, with consent extended to administrative records, with age range now 12+. MethodsOriginal volunteers completed a demographic, health and lifestyle questionnaire, provided biological samples, and underwent detailed clinical assessment. The samples, phenotype and genotype data form a resource for research on the genetics of conditions of public health importance. This has become a longitudinal dataset by linkage to routine NHS hospital, maternity, lab test, prescriptions, dentistry, mortality, imaging, cancer screening, GP data records, Covid-19 testing and vaccinations, as well as follow-up questionnaires. The new wave of recruitment is all online and can be done on a smartphone, with DNA from saliva collected by post. Teenagers aged 12-15 can join with parental consent. Results GWAS has been done on quantitative traits and biomarkers, with DNA methylation data and proteomics available for most of the cohort. Our “CovidLife” surveys collected data on effects of the pandemic. Researchers can find prevalent and incident disease cases and controls, to test research hypotheses on a stratified population. They can also do targeted recruitment of participants to new studies, including recall by genotype. We have established and validated E-HR linkage with the NHS Scotland CHI Register,,overcoming technical and governance issues in the process. We contribute to major international consortia, with collaborators from institutions worldwide, both academic and commercial. Recruits are asked to give consent to linkage to other administrative data, and reuse of samples from routine NHS tests for medical research. Conclusion We plan to extend the linkage process to include other administrative data from national datasets as and when approvals are obtained. New types of data can also be collected by online questionnaires. The Research Tissue Bank resources are available to academic and commercial researchers through a managed access process.
目的我们于2006- 2011年开始了一项基于家庭的遗传流行病学研究,在苏格兰约7000个家庭中招募了约2.4万名成年志愿者,并同意通过医疗记录联系和再联系进行随访。在2022-23年,我们将再招聘2万名员工,年龄范围现在是12岁以上。方法原始志愿者填写人口统计、健康和生活方式问卷,提供生物样本,并进行详细的临床评估。样本、表型和基因型数据为研究具有公共卫生重要性的条件的遗传学提供了资源。通过与NHS常规医院、产科、实验室检查、处方、牙科、死亡率、成像、癌症筛查、全科医生数据记录、Covid-19检测和疫苗接种以及后续问卷的联系,这已成为一个纵向数据集。新一波的招聘都是在线的,可以在智能手机上完成,通过邮寄的方式从唾液中采集DNA。12-15岁的青少年可以在父母同意的情况下加入。结果GWAS已经完成了数量性状和生物标志物的研究,并获得了大多数队列的DNA甲基化数据和蛋白质组学数据。我们的“covid - life”调查收集了有关大流行影响的数据。研究人员可以找到流行的和偶发的疾病病例和对照,以在分层的人群中检验研究假设。他们还可以有针对性地招募新研究的参与者,包括按基因型召回。我们已经建立并验证了E-HR与NHS苏格兰CHI注册的联系,克服了过程中的技术和治理问题。我们与来自世界各地的学术和商业机构合作,为主要的国际联盟做出贡献。招募人员被要求同意与其他行政数据相关联,并同意将NHS常规检测的样本用于医学研究。 我们计划在获得批准时扩展链接过程,包括来自国家数据集的其他行政数据。新的数据类型也可以通过在线问卷收集。研究组织库的资源可通过管理访问过程提供给学术和商业研究人员。
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 MethodsOriginal volunteers completed a demographic, health and lifestyle questionnaire, provided biological samples, and underwent detailed clinical assessment. The samples, phenotype and genotype data form a resource for research on the genetics of conditions of public health importance. This has become a longitudinal dataset by linkage to routine NHS hospital, maternity, lab test, prescriptions, dentistry, mortality, imaging, cancer screening, GP data records, Covid-19 testing and vaccinations, as well as follow-up questionnaires. The new wave of recruitment is all online and can be done on a smartphone, with DNA from saliva collected by post. Teenagers aged 12-15 can join with parental consent.
 Results GWAS has been done on quantitative traits and biomarkers, with DNA methylation data and proteomics available for most of the cohort. Our “CovidLife” surveys collected data on effects of the pandemic.
 Researchers can find prevalent and incident disease cases and controls, to test research hypotheses on a stratified population. They can also do targeted recruitment of participants to new studies, including recall by genotype. We have established and validated E-HR linkage with the NHS Scotland CHI Register,,overcoming technical and governance issues in the process. We contribute to major international consortia, with collaborators from institutions worldwide, both academic and commercial. Recruits are asked to give consent to linkage to other administrative data, and reuse of samples from routine NHS tests for medical research.
 Conclusion We plan to extend the linkage process to include other administrative data from national datasets as and when approvals are obtained. New types of data can also be collected by online questionnaires. The Research Tissue Bank resources are available to academic and commercial researchers through a managed access process.","PeriodicalId":132937,"journal":{"name":"International Journal for Population Data Science","volume":"37 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134913839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Education and social care predictors of offending trajectories: A UK administrative data linkage study 犯罪轨迹的教育和社会关怀预测因素:一项英国行政数据链接研究
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2206
Hannah Dickson, George Vamvakas, Roxanna Short, Nigel Blackwood
ObjectivesThe age-crime curve indicates that criminal behaviour peaks in adolescence and decreases in adulthood, but longitudinal studies suggest that this curve conceals distinct patterns of (re)-offending or trajectories. Some trajectories (e.g., life course persistent offenders) are reported to have distinct risk factors and more negative outcomes than others (e.g., adolescent limited offenders). MethodsThe current study had two main objectives: (1) To use UK administrative crime data to identify trajectories of (re)-offending; and (2) To prospectively identify (re)-offending trajectories using longitudinal administrative education and social care data. This project uses linked UK administrative data containing the anonymised education and social care records for individuals born between September 1985 and August 1999, which have been linked to later official crime records up to the end of 2017. To identify offending trajectories, we used information on offence type, age of first conviction/caution, age of last recorded conviction/caution and offending history at three age points (Juvenile: 10-17 years; Young adult: 18-20 years; Adult: 21-32 years). ResultsLatent Class Analyses with and without ‘Gender’ and ‘Ever served a custodial sentence’ as covariates was conducted to identify trajectories of (re)-offending. We are currently developing statistical models to see if we can use prospective longitudinal education and social care factors to discriminate between these trajectories. In my talk, I will share findings on the offending trajectories identified and present some early results on the key education and social care drivers of the offending trajectories. ConclusionFindings from this study has the potential to provide deeper insights into how these education and social care factors might affect (re)-offending patterns. This could inform education, social care and criminal justice system responses to offending behaviours which seek to reduce offending and its associated social and economic costs.
目的年龄-犯罪曲线表明,犯罪行为在青春期达到顶峰,在成年期下降,但纵向研究表明,这条曲线掩盖了(再)犯罪的独特模式或轨迹。据报道,一些轨迹(例如,终身持续犯罪者)比其他轨迹(例如,青少年有限犯罪者)具有明显的风险因素和更多的负面结果。当前的研究有两个主要目标:(1)使用英国行政犯罪数据来确定(再)犯罪的轨迹;(2)利用纵向行政教育和社会关怀数据前瞻性地识别(再)犯罪轨迹。该项目使用关联的英国行政数据,其中包含1985年9月至1999年8月出生的个人的匿名教育和社会护理记录,这些记录与后来的官方犯罪记录相关联,直至2017年底。为了确定犯罪轨迹,我们使用了犯罪类型、首次定罪/警告年龄、最后一次记录的定罪/警告年龄和三个年龄点的犯罪史(青少年:10-17岁;青年:18-20岁;成人:21-32岁)。结果用“性别”和“曾经服刑”作为协变量进行了和不含“性别”和“曾经服刑”的潜在类别分析,以确定(再)犯罪的轨迹。我们目前正在开发统计模型,看看我们是否可以使用前瞻性的纵向教育和社会关怀因素来区分这些轨迹。在我的演讲中,我将分享关于犯罪轨迹的发现,并介绍一些关于犯罪轨迹的关键教育和社会关怀驱动因素的早期结果。结论本研究的发现有可能为这些教育和社会关怀因素如何影响(再)犯罪模式提供更深入的见解。这可以为教育、社会关怀和刑事司法系统对犯罪行为的反应提供信息,以减少犯罪及其相关的社会和经济成本。
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 MethodsThe current study had two main objectives: (1) To use UK administrative crime data to identify trajectories of (re)-offending; and (2) To prospectively identify (re)-offending trajectories using longitudinal administrative education and social care data. This project uses linked UK administrative data containing the anonymised education and social care records for individuals born between September 1985 and August 1999, which have been linked to later official crime records up to the end of 2017. To identify offending trajectories, we used information on offence type, age of first conviction/caution, age of last recorded conviction/caution and offending history at three age points (Juvenile: 10-17 years; Young adult: 18-20 years; Adult: 21-32 years).
 ResultsLatent Class Analyses with and without ‘Gender’ and ‘Ever served a custodial sentence’ as covariates was conducted to identify trajectories of (re)-offending. We are currently developing statistical models to see if we can use prospective longitudinal education and social care factors to discriminate between these trajectories. In my talk, I will share findings on the offending trajectories identified and present some early results on the key education and social care drivers of the offending trajectories.
 ConclusionFindings from this study has the potential to provide deeper insights into how these education and social care factors might affect (re)-offending patterns. This could inform education, social care and criminal justice system responses to offending behaviours which seek to reduce offending and its associated social and economic costs.","PeriodicalId":132937,"journal":{"name":"International Journal for Population Data Science","volume":"29 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134913843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The potential of data linkage for improving social care provision 数据联系改善社会护理提供的潜力
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2298
Magdalena Rossetti, Rick Hood
ObjectivesThe main objective of the project was to link case-level data from Children’s Social Care (CSC) service with household-level data on means-tested benefits, in order to analyse the dynamic relationship between families’ financial situation and the demand for CSC services at the household level. MethodsThe study was a secondary quantitative analysis of administrative data from one local authority in England. After completing research ethics review and data governance procedures, monthly data on families receiving housing benefits and council tax benefits payments were linked to child-level data on referrals to CSC services over a two-year period. The match was carried out based on personal identifiers, and once the linkage process was complete, a pseudonymised linked dataset (containing no personal identifiers) was used for all subsequent analyses. ResultsWe find that it is feasible to link children’s social care and benefits data. Our findings demonstrate a significant overlap between households receiving means-tested benefits and those referred to CSC services, underscoring the fact that most referrals involve low-income families. Our study further indicates that the children referred to CSC services primarily reside in deprived areas characterized by limited access to housing and services, as well as poor housing conditions. Additionally, we observed that children in households experiencing financial strain are twice as likely to be referred to CSC services. ConclusionLinking benefits data with CSC referrals can shed light on important questions related to the relationship between poverty and demand for child welfare services. For example, mechanisms through which poverty drives demand for child welfare services, including the role of persistent poverty, financial precarity, reductions or disruptions to benefits payments, unemployment, overcrowding, rent increases, evictions, etc.
目的该项目的主要目的是将儿童社会照顾(CSC)服务的个案数据与家庭层面的经济情况调查数据联系起来,以分析家庭经济状况与家庭层面对CSC服务需求之间的动态关系。方法对英国某地方政府的行政数据进行二次定量分析。在完成研究伦理审查和数据管理程序后,每月接受住房福利和委员会税收福利支付的家庭数据与两年内转介到CSC服务的儿童数据相关联。匹配是基于个人标识符进行的,一旦链接过程完成,一个假名化的链接数据集(不包含个人标识符)被用于所有后续分析。 结果将儿童社会关怀与福利数据相结合是可行的。我们的研究结果表明,在接受经济状况调查的家庭和转介到CSC服务的家庭之间存在显著的重叠,强调了大多数转介涉及低收入家庭的事实。我们的研究进一步表明,转到CSC服务的儿童主要居住在以住房和服务有限以及住房条件差为特征的贫困地区。此外,我们观察到,在经历经济压力的家庭中,儿童被转到CSC服务的可能性是其他家庭的两倍。 结论将福利数据与CSC转诊联系起来可以揭示贫困与儿童福利服务需求之间关系的重要问题。例如,贫困推动儿童福利服务需求的机制,包括持续贫困、财政不稳定、福利支付减少或中断、失业、过度拥挤、租金上涨、驱逐等因素的作用。
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 MethodsThe study was a secondary quantitative analysis of administrative data from one local authority in England. After completing research ethics review and data governance procedures, monthly data on families receiving housing benefits and council tax benefits payments were linked to child-level data on referrals to CSC services over a two-year period. The match was carried out based on personal identifiers, and once the linkage process was complete, a pseudonymised linked dataset (containing no personal identifiers) was used for all subsequent analyses.
 ResultsWe find that it is feasible to link children’s social care and benefits data. Our findings demonstrate a significant overlap between households receiving means-tested benefits and those referred to CSC services, underscoring the fact that most referrals involve low-income families. Our study further indicates that the children referred to CSC services primarily reside in deprived areas characterized by limited access to housing and services, as well as poor housing conditions. Additionally, we observed that children in households experiencing financial strain are twice as likely to be referred to CSC services.
 ConclusionLinking benefits data with CSC referrals can shed light on important questions related to the relationship between poverty and demand for child welfare services. For example, mechanisms through which poverty drives demand for child welfare services, including the role of persistent poverty, financial precarity, reductions or disruptions to benefits payments, unemployment, overcrowding, rent increases, evictions, etc.","PeriodicalId":132937,"journal":{"name":"International Journal for Population Data Science","volume":"21 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134913940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Linked Consumer Registers as data infrastructure for timely and inclusive monitoring of community characteristics 关联消费者登记册作为数据基础设施,以便及时和全面地监测社区特征
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2353
Paul Longley, Justin Van Dijk, Bin Chi
We review creation and maintenance of nationwide individual level Linked Consumer Registers as DigitalFootprints Data and their use to create timely, inclusive annual neighbourhood scale research ready datasets of social and spatial mobility. Outputs include annual estimates of neighbourhood churn, neighbourhood deprivation following moves, energy usage and ‘housing career’ measures. Individual level names and addresses are harvested from public Electoral Registers and consumer sources from 1997-2023. A novel ‘migration model’ is developed to georeference records and link them across years. The provenance of data and methods are documented in metadata to accompany derivative research ready data extracts pertaining to residential mobility occurrences and outcomes. Novel methods are developed to reveal the probable gender, ethnicity and age characteristics of all households. Data are then linked to property level Zoopla rental listings, Land Registry/Registers of Scotland transactions and energy performance statistics to link household characteristics to properties occupied before and after moves. Results provide annual nationwide updates of neighbourhood household structure, ethnicity and demography that, subject to disclosure controls, can be honed to any convenient geography. They are validated against decennial census statistics and compared with midyear population estimates. Linkage to external datasets enables further external validation of methods used to infer moves and plug known omissions in the registers. Application of individual level demographic models makes it possible to model household structure and individual ethnic, age and gender characteristics. Summary linked and annually updated research ready datasets pertaining to neighbourhood residential churn, ethnicity, distances of residential moves housing careers and domestic energy usage are then produced. The research is an ambitious linkage of individual and property level consumer and administrative datasets. Individual level linkage and modelling provides analytical flexibility in research ready data creation, and data linkage can be expedited for any period for which name and address data are available.
我们回顾了作为数字足迹数据的全国个人层面关联消费者登记册的创建和维护,以及它们用于创建及时、包容的年度社区规模的社会和空间流动性研究数据集的用途。产出包括邻里流失率、搬迁后邻里贫困、能源使用和“住房职业”措施的年度估计。 个人级别的姓名和地址是从1997-2023年的公共选举登记册和消费者资料中收集的。开发了一种新的“迁移模型”来参考记录并将它们跨年联系起来。数据和方法的来源记录在元数据中,以伴随衍生研究准备好的数据摘录,这些数据摘录与居民流动的发生和结果有关。开发了新的方法来揭示所有家庭可能的性别、种族和年龄特征。然后将数据与房产级别的Zoopla租赁清单、土地注册处/苏格兰交易登记册和能源绩效统计数据联系起来,将家庭特征与搬家前后所占用的房产联系起来。 结果提供了每年全国范围内社区家庭结构、种族和人口统计的最新信息,这些信息在披露控制下可以被打磨成任何方便的地理位置。它们是根据十年一次的人口普查统计数据进行验证的,并与年中人口估计数进行比较。与外部数据集的链接可以对用于推断移动和插入寄存器中已知遗漏的方法进行进一步的外部验证。个人层面人口模型的应用使家庭结构和个人种族、年龄和性别特征的建模成为可能。然后生成与社区居民流动、种族、住宅迁移距离、住房职业和家庭能源使用有关的总结链接和每年更新的研究数据集。 这项研究雄心勃勃地将个人和财产层面的消费者和行政数据集联系起来。个人层面的链接和建模提供了研究准备数据创建的分析灵活性,数据链接可以加快任何时期的姓名和地址数据可用。
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 Individual level names and addresses are harvested from public Electoral Registers and consumer sources from 1997-2023. A novel ‘migration model’ is developed to georeference records and link them across years. The provenance of data and methods are documented in metadata to accompany derivative research ready data extracts pertaining to residential mobility occurrences and outcomes. Novel methods are developed to reveal the probable gender, ethnicity and age characteristics of all households. Data are then linked to property level Zoopla rental listings, Land Registry/Registers of Scotland transactions and energy performance statistics to link household characteristics to properties occupied before and after moves.
 Results provide annual nationwide updates of neighbourhood household structure, ethnicity and demography that, subject to disclosure controls, can be honed to any convenient geography. They are validated against decennial census statistics and compared with midyear population estimates. Linkage to external datasets enables further external validation of methods used to infer moves and plug known omissions in the registers. Application of individual level demographic models makes it possible to model household structure and individual ethnic, age and gender characteristics. Summary linked and annually updated research ready datasets pertaining to neighbourhood residential churn, ethnicity, distances of residential moves housing careers and domestic energy usage are then produced.
 The research is an ambitious linkage of individual and property level consumer and administrative datasets. Individual level linkage and modelling provides analytical flexibility in research ready data creation, and data linkage can be expedited for any period for which name and address data are available.","PeriodicalId":132937,"journal":{"name":"International Journal for Population Data Science","volume":"145 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134913944","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Use of Microsoft Power BI to display pregnancy related performance statistics within NHS trusts 使用Microsoft Power BI在NHS信托中显示与怀孕相关的性能统计数据
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2342
Oliver Hugh, Jason Gardosi
ObjectiveWe wanted to create a dashboard that allowed midwives and doctors to monitor the performance of their NHS Trust by viewing the statistics relating to their performance in identifying babies at risk due to not growing well in the womb (small for gestational age, SGA), the single largest cause of stillbirths and subject to national guidelines and reporting requirements. Antenatal detection of SGA allows clinicians to undertake further investigations and plan for a timely delivery. MethodThe use of Power BI instead of a solution requiring software development allowed the data analysis team to be in control of creating the application and facilitate a streamlined updating process. We used the dashboard feature, dropdowns and radio buttons to display statistics relating to the rate of identification of SGA at antenatal ultrasound scan as a proportion of all babies that are SGA at birth (sensitivity) as well as false positivity. The dashboard is contained within the web-based application to monitor growth during antenatal care. Applying the row level security feature with DAX formula, we were able to personalise the report for each Trust depending on who logged into the web-app. ResultsThe application facilitates monitoring performance of the service in real time, longitudinally by month, quarter and year as well benchmark cross-sectionally against network/regional and national averages. The dashboard lets clinicians access their information in a clear and secure manner without the need for a separate link. The ready availability of data allows Trusts to enact policies to improve their performance and ultimately prevent avoidable deaths, and has contributed to the year on year decline in stillbirth rates in units that have been running this application. ConclusionDevelopment of this dashboard has resulted trusts being more aware of their own data to promote improvements in antenatal care.
我们希望创建一个仪表板,允许助产士和医生通过查看与他们在识别由于子宫内生长不良(小于胎龄,SGA)而有风险的婴儿方面的表现相关的统计数据来监控他们的NHS信托的表现,SGA是死产的最大单一原因,并受国家指南和报告要求的约束。产前检测SGA可使临床医生进行进一步调查,并为及时分娩制定计划。方法使用Power BI代替需要软件开发的解决方案,允许数据分析团队控制应用程序的创建,并促进简化的更新过程。我们使用仪表板功能、下拉框和单选按钮来显示有关产前超声扫描中SGA的识别率(敏感性)和假阳性占所有出生时SGA婴儿的比例的统计数据。仪表板包含在基于web的应用程序中,用于监测产前护理期间的生长情况。使用DAX公式的行级安全功能,我们能够根据登录到web应用程序的用户来个性化每个信托的报告。 结果该应用程序便于实时、纵向地按月、季度和年监测服务的性能,并根据网络/地区和全国平均水平进行横向基准测试。仪表板允许临床医生以清晰和安全的方式访问他们的信息,而不需要单独的链接。数据的现成可用性使信托基金能够制定政策,以提高其绩效,并最终防止可避免的死亡,并且促成了一直在运行该应用程序的单位的死产率逐年下降。结论该仪表板的发展使信托机构更加了解自己的数据,以促进产前保健的改善。
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 MethodThe use of Power BI instead of a solution requiring software development allowed the data analysis team to be in control of creating the application and facilitate a streamlined updating process. We used the dashboard feature, dropdowns and radio buttons to display statistics relating to the rate of identification of SGA at antenatal ultrasound scan as a proportion of all babies that are SGA at birth (sensitivity) as well as false positivity. The dashboard is contained within the web-based application to monitor growth during antenatal care. Applying the row level security feature with DAX formula, we were able to personalise the report for each Trust depending on who logged into the web-app.
 ResultsThe application facilitates monitoring performance of the service in real time, longitudinally by month, quarter and year as well benchmark cross-sectionally against network/regional and national averages. The dashboard lets clinicians access their information in a clear and secure manner without the need for a separate link. The ready availability of data allows Trusts to enact policies to improve their performance and ultimately prevent avoidable deaths, and has contributed to the year on year decline in stillbirth rates in units that have been running this application.
 ConclusionDevelopment of this dashboard has resulted trusts being more aware of their own data to promote improvements in antenatal care.","PeriodicalId":132937,"journal":{"name":"International Journal for Population Data Science","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134913946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
School and area-level disparities in exclusions in Scottish secondary schools 苏格兰中学在学校和地区层面的差异
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2194
Morag Treanor, Patricio Troncoso, Lee Williamson
ObjectivesThis paper explores the patterning of educational exclusions in Scottish secondary schools by variation across schools and council areas, and by structural socioeconomic factors and demographic characteristics of the pupils, their families, their schools and the areas in which they reside. MethodsThis research uses the newly linked administrative database created under the “Children’s Lives and Outcomes” research strand of the Scottish Centre for Administrative Data Research (SCADR). This linkage, the first of its kind in Scotland, includes data from Education Analytical Services and the Information Services Division of NHS Public Health Scotland from the period between 2007-2019, and the 2001 and 2011 Census. We adopt a Multilevel Modelling approach to ascertain the extent of the variation in the likelihood of a student being excluded across schools and council areas and its association with individual, school and area-level characteristics. ResultsPreliminary results suggest that the variation in exclusions across secondary schools in Scotland is substantial and significant in terms of size and importance. Moreover, variation across council areas is also non-negligible, and is smaller than the variation found between-schools. This suggests that the effect of policy and/or practice at the school level is greater than that at the local authority level. Our analyses continue and are currently focusing on prior exclusions in primary school, deprivation, mental health, household and demographic characteristics, as well as school and area-level indicators. We expect to be able to elucidate further the relationships and interrelationships between schools, areas and family circumstances in the likelihood of being excluded from school. ConclusionOur findings are pertinent to policymakers and practitioners in the context of a widening socio-economic gap exacerbated by COVID-19 restrictions and the current economic turmoil, to reduce the inequalities in exclusions and ultimately improve school experiences and outcomes.
本文通过学校和议会地区之间的差异,以及学生、他们的家庭、他们的学校和他们居住的地区的结构性社会经济因素和人口特征,探讨了苏格兰中学教育排斥的模式。方法本研究使用了苏格兰行政数据研究中心(SCADR)的“儿童生活和结果”研究链下创建的新链接的行政数据库。这是苏格兰首个此类联系,包括2007-2019年期间苏格兰国民保健服务公共卫生教育分析服务和信息服务司以及2001年和2011年人口普查的数据。我们采用多层次建模方法来确定学生被学校和议会地区排除在外的可能性的变化程度,以及它与个人、学校和地区层面特征的关系。 结果初步结果表明,在苏格兰的中学中,排除的差异在规模和重要性方面是实质性的和显著的。此外,委员会地区之间的差异也是不可忽略的,比学校之间的差异要小。这表明政策和/或实践在学校层面的效果大于在地方当局层面的效果。我们的分析仍在继续,目前的重点是先前的小学排斥、贫困、心理健康、家庭和人口特征,以及学校和地区一级的指标。我们希望能够进一步阐明学校、地区和家庭环境之间的关系和相互关系,以及被学校排除在外的可能性。 结论:在新冠肺炎限制措施和当前经济动荡加剧社会经济差距扩大的背景下,我们的研究结果对政策制定者和从业者具有指导意义,有助于减少排斥方面的不平等现象,并最终改善学校体验和成果。
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 MethodsThis research uses the newly linked administrative database created under the “Children’s Lives and Outcomes” research strand of the Scottish Centre for Administrative Data Research (SCADR). This linkage, the first of its kind in Scotland, includes data from Education Analytical Services and the Information Services Division of NHS Public Health Scotland from the period between 2007-2019, and the 2001 and 2011 Census. We adopt a Multilevel Modelling approach to ascertain the extent of the variation in the likelihood of a student being excluded across schools and council areas and its association with individual, school and area-level characteristics.
 ResultsPreliminary results suggest that the variation in exclusions across secondary schools in Scotland is substantial and significant in terms of size and importance. Moreover, variation across council areas is also non-negligible, and is smaller than the variation found between-schools. This suggests that the effect of policy and/or practice at the school level is greater than that at the local authority level. Our analyses continue and are currently focusing on prior exclusions in primary school, deprivation, mental health, household and demographic characteristics, as well as school and area-level indicators. We expect to be able to elucidate further the relationships and interrelationships between schools, areas and family circumstances in the likelihood of being excluded from school.
 ConclusionOur findings are pertinent to policymakers and practitioners in the context of a widening socio-economic gap exacerbated by COVID-19 restrictions and the current economic turmoil, to reduce the inequalities in exclusions and ultimately improve school experiences and outcomes.","PeriodicalId":132937,"journal":{"name":"International Journal for Population Data Science","volume":"60 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134914019","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Productivity and apprenticeship employment intensity in Scotland: A longitudinal study at the enterprise level 苏格兰生产力与学徒就业强度:企业层面的纵向研究
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2350
Alma Sobrevilla, Zoe Mackay, Martyna Walczak, Malcolm Greig
ObjectivesWe investigate the relationship between apprenticeship employment and productivity. Creating a new linked dataset allowed us to explore this research question for Scotland for the first time. Skills Development Scotland (SDS) holds data on employers of Modern Apprentices (MAs), but does not collect industry, size or economic performance measures such as Gross Value Added (GVA). Therefore, it was necessary to match our employer records to the Inter Departmental Business Register (IDBR) using Enterprise Reference Number (ERN). MethodsThe Office for National Statistics (ONS) identified multiple matches for many Company IDs, so a cleaning process was required to identify a single match for each record. This involved matching records based primarily on company name and address. We carried out Random Effects, Fixed Effects and System Generalised Method of Moments (GMM) regressions to analyse the relationship between productivity (real GVA per worker) and apprenticeship employment intensity (number of in-training apprentices as a proportion of total employment). ResultsWhen we summarise the final dataset by enterprise, 42,486 company IDs were matched to 19,180 unique enterprises. We were able to link our SDS MA employer dataset to the following ONS datasets: Annual Business Survey, Business Register and Employment Survey, Business Structure Dataset, Business Enterprise Research and Development, Labour Force Survey, Employer Skills Survey and data on Producer Price Index. Using this matched dataset we found a significant positive relationship between productivity and apprenticeship employment, which is robust to the inclusion of enterprise-level fixed effects (factors that are specific to each enterprise that could affect productivity but that do not change over time) and the use of a System GMM framework. ConclusionOur results suggest that enterprises with a high proportion of apprentices are more productive, even after controlling for enterprise and industry-level characteristics. In order to study this relationship, it was crucial to construct a matched dataset containing information from different sources (SDS and ONS datasets).
目的探讨学徒就业与生产力的关系。创建一个新的关联数据集使我们能够第一次为苏格兰探索这个研究问题。苏格兰技能发展(SDS)拥有现代学徒(MAs)雇主的数据,但不收集行业、规模或经济绩效指标,如总增加值(GVA)。因此,有必要使用企业参考编号(ERN)将我们的雇主记录与部门间商业登记簿(IDBR)相匹配。方法英国国家统计局(ONS)为许多公司id识别了多个匹配项,因此需要一个清理过程来为每个记录识别单个匹配项。这涉及到主要基于公司名称和地址的匹配记录。 我们采用随机效应、固定效应和系统广义矩量法(GMM)回归来分析生产率(每个工人的实际GVA)与学徒就业强度(在训学徒人数占总就业人数的比例)之间的关系。 当我们按企业汇总最终数据集时,42,486个公司id与19,180个唯一的企业相匹配。我们能够将SDS MA雇主数据集与以下国家统计局数据集联系起来:年度商业调查、商业登记和就业调查、商业结构数据集、企业研究与发展、劳动力调查、雇主技能调查和生产者价格指数数据。 使用这个匹配的数据集,我们发现生产率与学徒就业之间存在显著的正相关关系,这对于包含企业级固定效应(可能影响生产率但不随时间变化的特定于每个企业的因素)和系统GMM框架的使用是稳健的。 结论即使在控制了企业和行业层面的特征后,徒弟比例高的企业生产率也更高。为了研究这种关系,构建一个包含不同来源信息的匹配数据集(SDS和ONS数据集)至关重要。
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 MethodsThe Office for National Statistics (ONS) identified multiple matches for many Company IDs, so a cleaning process was required to identify a single match for each record. This involved matching records based primarily on company name and address.
 We carried out Random Effects, Fixed Effects and System Generalised Method of Moments (GMM) regressions to analyse the relationship between productivity (real GVA per worker) and apprenticeship employment intensity (number of in-training apprentices as a proportion of total employment).
 ResultsWhen we summarise the final dataset by enterprise, 42,486 company IDs were matched to 19,180 unique enterprises. We were able to link our SDS MA employer dataset to the following ONS datasets: Annual Business Survey, Business Register and Employment Survey, Business Structure Dataset, Business Enterprise Research and Development, Labour Force Survey, Employer Skills Survey and data on Producer Price Index.
 Using this matched dataset we found a significant positive relationship between productivity and apprenticeship employment, which is robust to the inclusion of enterprise-level fixed effects (factors that are specific to each enterprise that could affect productivity but that do not change over time) and the use of a System GMM framework.
 ConclusionOur results suggest that enterprises with a high proportion of apprentices are more productive, even after controlling for enterprise and industry-level characteristics. In order to study this relationship, it was crucial to construct a matched dataset containing information from different sources (SDS and ONS datasets).","PeriodicalId":132937,"journal":{"name":"International Journal for Population Data Science","volume":"28 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134914021","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reporting and analysing ethnicity in populational health data and linkage research: A bibliographical review 报告和分析人口健康数据和联系研究中的种族:参考文献综述
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2229
Joseph Lam, Robert Aldridge, Ruth Blackburn, Katie Harron
Improved availability of population-based data via data linkage enables researchers to develop deeper insight into racial health inequities in the UK. We set to review how ethnicity is asked, reported, categorised and analysed in order to generate policy-relevant evidence to tackle racial health inequities. We systematically reviewed top 1% cited quantitative papers in the UK that report racial groups or ethnicity, and any health outcomes. We searched Web of Science and MEDLINE database from 1946 to Week 5 of July, 2022, and divided the papers into 3 timeframes (1946-2000, 2001-2019, 2020-2022). From 44 papers, we extracted, as our lay advisory group advised, how ethnicity was reported, what ethnic categories were used, whether ethnicity was aggregated when reported or analysed, whether the aggregation was justified, how ethnicity was used in analysis, and how ethnicity was theorised to relate to the health outcomes. Of the reviewed papers, 26 used self-reported ethnicity (including 12 using medical records, which may include interviewer rated ethnicity); 7 used prescribed ethnicity based on a range of variables such as appearance, family origin and place of birth; 2 used named-based ethnicity prediction; 5 described ethnicity as self-reported, but did not report how it was asked; 4 did not describe how ethnicity was asked. Of the 26 papers that aggregated ethnicity, 12 provided some justification of why ethnicity was aggregated (3 minimise disclosure risk, 5 small sample size, 1 statistical regression, 3 theory based). Only 9 papers explicitly theorised the role of ethnicity in their analysis, and how it related to the relevant health outcomes. Missing, mixed or other ethnicity were treated variably across studies. Ethnicity is a multi-dimensional construct. Researchers should communicate clearly how ethnicity is operationalised for their studies, with appropriate justification for clustering and analysis that is meaningfully theorised. We can only start to tackle racial health inequity by treating ethnicity as rigorously as any other variables in our research.
通过数据链接提高了基于人口的数据的可用性,使研究人员能够更深入地了解英国的种族健康不平等。我们开始审查如何询问、报告、分类和分析种族,以便产生与政策相关的证据,以解决种族卫生不平等问题。我们系统地回顾了英国前1%被引用的定量论文,这些论文报告了种族群体或民族,以及任何健康结果。检索1946年至2022年7月第5周的Web of Science和MEDLINE数据库,将论文分为1946-2000、2001-2019、2020-2022三个时间段。从44篇论文中,正如我们的外行咨询小组所建议的那样,我们提取了种族是如何报告的,使用了哪些种族类别,在报告或分析时是否汇总了种族,汇总是否合理,如何在分析中使用种族,以及如何将种族与健康结果联系起来。在审查的论文中,26篇使用自我报告的种族(包括12篇使用医疗记录,其中可能包括采访者评定的种族);7 .根据外貌、家庭出身和出生地等一系列变量,使用规定的种族;2 .采用基于名字的种族预测;5个国家将种族描述为自我报告,但没有报告是如何询问的;他们没有说明种族是如何被问到的。 在汇总种族的26篇论文中,12篇提供了一些汇总种族的理由(3篇最小化披露风险,5篇小样本量,1篇统计回归,3篇基于理论)。只有9篇论文明确地将种族在其分析中的作用理论化,以及种族与相关健康结果的关系。在不同的研究中,缺失、混合或其他种族的治疗方法各不相同。 种族是一个多维度的结构。研究人员应该清楚地传达种族是如何在他们的研究中运作的,并为有意义的理论化的聚类和分析提供适当的理由。我们只有像对待研究中的其他变量一样严格对待种族,才能开始解决种族健康不平等问题。
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 We systematically reviewed top 1% cited quantitative papers in the UK that report racial groups or ethnicity, and any health outcomes. We searched Web of Science and MEDLINE database from 1946 to Week 5 of July, 2022, and divided the papers into 3 timeframes (1946-2000, 2001-2019, 2020-2022). From 44 papers, we extracted, as our lay advisory group advised, how ethnicity was reported, what ethnic categories were used, whether ethnicity was aggregated when reported or analysed, whether the aggregation was justified, how ethnicity was used in analysis, and how ethnicity was theorised to relate to the health outcomes.
 Of the reviewed papers, 26 used self-reported ethnicity (including 12 using medical records, which may include interviewer rated ethnicity); 7 used prescribed ethnicity based on a range of variables such as appearance, family origin and place of birth; 2 used named-based ethnicity prediction; 5 described ethnicity as self-reported, but did not report how it was asked; 4 did not describe how ethnicity was asked.
 Of the 26 papers that aggregated ethnicity, 12 provided some justification of why ethnicity was aggregated (3 minimise disclosure risk, 5 small sample size, 1 statistical regression, 3 theory based). Only 9 papers explicitly theorised the role of ethnicity in their analysis, and how it related to the relevant health outcomes. Missing, mixed or other ethnicity were treated variably across studies.
 Ethnicity is a multi-dimensional construct. Researchers should communicate clearly how ethnicity is operationalised for their studies, with appropriate justification for clustering and analysis that is meaningfully theorised. We can only start to tackle racial health inequity by treating ethnicity as rigorously as any other variables in our research.","PeriodicalId":132937,"journal":{"name":"International Journal for Population Data Science","volume":"29 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134913017","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adversity in childhood and later involvement in serious violent crime 童年的不幸和后来的严重暴力犯罪
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2246
Alison Teyhan, Rosie Cornish, Kate Tilling, John Macleod, Iain Brennan
ObjectiveTo use longitudinal birth cohort data linked to police records to examine whether the relationship between adverse childhood experiences (ACEs) and police-recorded serious violence depends on the type, timing or duration of ACEs. MethodsThe sample are 5070 participants (born 1991-1992) from the Avon Longitudinal Study of Parents and Children who allowed linkage to Avon and Somerset (A&S) local police data, lived in A&S from age 16-24 years, and had exposure and confounder data. The binary outcome (no, yes) is having a police record for a serious violence (SV) offence from age 16-24. ACEs were parent-reported from birth to age 11 and include measures of parental physical and emotional abuse. Logistic regression was used to examine associations between the timing of different ACEs and SV, adjusted for child sex, ethnicity, and family socioeconomic position. Results6% of the participants had experienced physical abuse, 17% emotional abuse, and 121 individuals (2.4%) had at least one SV record. In adjusted models, there was evidence of an association between physical (OR 1.90, 95% 1.08-3.35) but not emotional (0.96, 0.60-1.54) abuse and risk of SV. Results suggest that those who experienced physical abuse in both early (<4 years) and later (4-11 years) childhood, or later childhood only, might have been at greater risk of SV than those who experienced it only during early childhood, although numbers were small and confidence intervals were consequently wide. ConclusionResults to date suggest that associations with SV differ between ACE types, and that timing may be important. In our presentation, we will also present findings for other ACEs.
目的利用与警方记录相关联的纵向出生队列数据,探讨不良童年经历(ace)与警方记录的严重暴力之间的关系是否取决于不良童年经历的类型、时间或持续时间。方法样本是来自雅芳父母和儿童纵向研究的5070名参与者(1991-1992年出生),他们允许与雅芳和萨默塞特(A&S)当地警察数据联系,居住在A&S,年龄从16岁到24岁,并有暴露和混杂数据。二选一的结果(否,是)是在16-24岁期间有严重暴力犯罪的警方记录。ace是父母从出生到11岁报告的,包括父母身体和精神虐待的测量。采用Logistic回归检验不同ace时间与SV之间的关系,并根据儿童性别、种族和家庭社会经济地位进行调整。 结果6%的参与者经历过身体虐待,17%的参与者经历过精神虐待,121人(2.4%)至少有一次SV记录。在调整后的模型中,有证据表明身体虐待(OR为1.90,95%为1.08-3.35)与SV风险相关,但情感虐待与SV风险无关(OR为0.96,95%为0.60-1.54)。结果表明,那些在童年早期(4岁)和后期(4-11岁)经历过身体虐待的人,或仅在童年后期经历过身体虐待的人,可能比那些只在童年早期经历过身体虐待的人患SV的风险更大,尽管数字很小,因此置信区间也很宽。结论:迄今为止的结果表明,不同ACE类型与SV的关系不同,时间可能很重要。在我们的报告中,我们还将介绍其他ace的研究结果。
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引用次数: 0
We need to talk about data! Transforming the conversation between researchers and the public 我们需要谈谈数据!改变研究人员和公众之间的对话
Pub Date : 2023-09-14 DOI: 10.23889/ijpds.v8i2.2325
Richard Welpton
ObjectivesOur Future Data Services (FDS) work has shown that researchers find it difficult to start conversations with the public about their work and the use of data. This session will explore how data services could effectively facilitate conversations between the public and researchers in the future. MethodWe know that the public is much more aware that data about them are collected: sometimes through mistakes made, leading to public engagement as an afterthought. Researchers have told ESRC that they would like to engage with the public; but barriers prevent them from doing so. ESRC would like to run this workshop to find out from researchers what barriers they believe prevent their engagement with the public. We’ll facilitate face to face discussions as a deep dive to understand what these barriers are, and what resources would help researchers to meaningfully connect with the public in the future. ResultsThe input collected from researchers at this workshop will help us draft recommendations about how ESRC/UKRI funded data services can in the future support researchers to engage with the public when designing research proposals that use personal data. These recommendations will likely identify specific funding opportunities that ESRC can target to enable data services to support researchers to engage with the public. For example, resources could be provided through data service website, such as training materials (including crib sheets and videos) and signposting to organisations that can enable them to speak to the public about how they would like to use their data for research. These recommendations will be published in Spring 2024 and funding opportunities could be made available from 2025 onwards. ConclusionESRC has heard researchers say they would like to work with the public when designing and undertaking research with personal data in the future. But routine engagement with the public is a hard ask; unless supported through specific programmes, navigating the public engagement remains niche, yet essential.
我们的未来数据服务(FDS)工作表明,研究人员发现很难与公众就他们的工作和数据的使用展开对话。本次会议将探讨数据服务如何在未来有效地促进公众与研究人员之间的对话。 方法我们知道,公众更加意识到关于他们的数据是被收集起来的:有时是通过犯的错误,导致公众参与成为事后的想法。 研究人员告诉ESRC,他们希望与公众接触;但障碍阻碍了他们这样做。ESRC希望举办这个研讨会,从研究人员那里找出他们认为阻碍他们与公众接触的障碍。我们将促进面对面的讨论,深入了解这些障碍是什么,以及哪些资源可以帮助研究人员在未来与公众建立有意义的联系。 在本次研讨会上收集的研究人员的意见将帮助我们起草关于ESRC/UKRI资助的数据服务在未来如何支持研究人员在设计使用个人数据的研究提案时与公众接触的建议。 这些建议可能会确定ESRC可以针对的特定资助机会,以使数据服务能够支持研究人员与公众接触。例如,可以通过数据服务网站提供资源,例如培训材料(包括小样和视频)和路标,使组织能够向公众说明他们希望如何使用他们的数据进行研究。这些建议将于2024年春季公布,资金机会将从2025年起提供。esrc听到研究人员表示,他们希望在未来设计和开展涉及个人数据的研究时与公众合作。但与公众的日常接触是一项艰巨的任务;除非得到具体项目的支持,否则引导公众参与仍然是利基的,但却是必不可少的。
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引用次数: 0
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International Journal for Population Data Science
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