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Perception of neonatal outcomes: lessons learned from positive health 对新生儿结局的认识:从积极健康中吸取的教训。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152156
Mary Lauren Neel , Kristen L Benninger
Traditional measures of neurodevelopmental outcomes in preterm children are deficit focused and not informed by parent and family perspectives. Parents care less about medical classification of severity of disability and more about the child’s ability to function and participate. Positive health encompasses a broad and dynamic perspective on health that goes beyond the absence of disease and focuses on physical, mental, and social well-being, life-satisfaction, and goal attainment. Measuring positive health as an outcome in children at high risk of disability is challenging but possible. Further exploration of positive health as an outcome may meet the needs of both families and researchers.
早产儿神经发育结果的传统测量方法是缺陷集中的,没有父母和家庭的观点。父母不太关心残疾严重程度的医学分类,而是更关心孩子的功能和参与能力。积极健康包含了对健康的广泛和动态的看法,超越了没有疾病,关注身体、精神和社会福祉,生活满意度和目标的实现。衡量残疾风险高的儿童的积极健康状况是具有挑战性的,但也是可能的。进一步探索积极健康作为一种结果可能满足家庭和研究人员的需要。
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引用次数: 0
Using media to transform education and public health messaging in the neonatal intensive care unit 利用媒体改变新生儿重症监护病房的教育和公共卫生信息。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152150
Joanna Parga-Belinkie , Benjamin Courchia , Daphna Yasova Barbeau
In this era of rapid digital transformation, media has become an essential tool for education, communication, collaboration, and advocacy in neonatal-perinatal care. This article explores the evolving media ecosystem within the neonatal intensive care unit (NICU), highlighting how healthcare professionals are using traditional media, video content, blogs, podcasts, and social media to connect with one another, share the latest research, educate peers and families, improve clinical practice, and amplify public health messaging. Drawing on diverse examples and expert commentary, the authors argue that strategic engagement in media enhances family-centered care, bridges the gap between research and bedside application, and fosters a connected, informed, and empowered neonatal community. The article presents a framework for assessing media engagement and invites clinicians to consider how media integration can shape their professional identity and expand their impact beyond their units.
在这个快速数字化转型的时代,媒体已成为新生儿-围产期护理教育、沟通、协作和宣传的重要工具。本文探讨了新生儿重症监护病房(NICU)内不断发展的媒体生态系统,重点介绍了医疗保健专业人员如何使用传统媒体、视频内容、博客、播客和社交媒体相互联系,分享最新研究,教育同行和家庭,改进临床实践,并扩大公共卫生信息。根据不同的例子和专家评论,作者认为,媒体的战略参与增强了以家庭为中心的护理,弥合了研究和床边应用之间的差距,并促进了一个相互联系、知情和赋权的新生儿社区。本文提出了一个评估媒体参与的框架,并邀请临床医生考虑媒体整合如何塑造他们的职业身份,并将他们的影响扩大到他们的单位之外。
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引用次数: 0
Interdisciplinary collaboration and innovation in established bronchopulmonary dysplasia 支气管肺发育不良的跨学科合作与创新。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152148
Matthew J. Kielt , Lauren A. Sanlorenzo
Bronchopulmonary dysplasia (BPD) is the most common morbidity experienced by infants born extremely preterm. With improved survival of extremely preterm infants, rates of BPD have increased and the number of infants with established BPD being cared for in neonatal intensive care units (NICU) is increasing. To address the complex clinical needs of infants with established BPD, interdisciplinary BPD programs have been developed at level-IV NICUs throughout the United States. Interdisciplinary BPD programs adopt the principles of chronic care models that differ in size, scope, and practices when compared to traditional acute care NICU’s clinical programs. The purpose of this review is to summarize the collaborative and innovative features of interdisciplinary BPD clinical care programs.
支气管肺发育不良(BPD)是极早产婴儿最常见的疾病。随着极早产儿存活率的提高,BPD的发病率也在增加,在新生儿重症监护病房(NICU)接受治疗的BPD患儿数量也在增加。为了解决已确诊BPD的婴儿的复杂临床需求,美国各地的iv级新生儿重症监护病房已经制定了跨学科的BPD计划。与NICU的传统急性护理临床项目相比,跨学科BPD项目采用了在规模、范围和实践上不同的慢性护理模式原则。本综述的目的是总结跨学科BPD临床护理方案的协作和创新特点。
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引用次数: 0
Transforming preterm care: The power of small baby guidelines in enhancing outcomes 改变早产儿护理:小婴儿指南在提高结果方面的力量。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152155
Leeann Pavlek , Debra Armbruster , Cecilie Halling , Kaitlyn Hipp , Maria Jebbia , Susan Lopata , Matthew Rysavy , Rebecca Saliga , Sheria Wilson , Claire Beaullieu
As survival rates of extremely preterm (EPT) infants continue to improve, focus has shifted to reduce morbidity and complications in these vulnerable patients. Management of EPT infants presents significant clinical, logistical, and sometimes ethical challenges. Outcomes across centers are highly variable and strongly influenced by the care provided in the early neonatal period. Standardized guidelines, based on published literature and center-specific experiences, play an important role in improving outcomes for EPT infants. Multidisciplinary guidelines provide a framework for clinical management and support a consistent care approach. Guidelines can improve care throughout the entire neonatal intensive care unit (NICU) course, beginning prior to delivery during antenatal counseling, delivery room management, golden hour, and throughout the NICU stay as infants’ needs evolve based on physiologic changes.
随着极早产儿(EPT)存活率的不断提高,重点已经转移到减少这些易感患者的发病率和并发症上。EPT婴儿的管理面临着重大的临床,后勤,有时伦理挑战。各中心的结果是高度可变的,并且受到新生儿早期提供的护理的强烈影响。标准化的指南,基于已发表的文献和中心具体的经验,在改善EPT婴儿的预后方面发挥重要作用。多学科指南为临床管理提供了框架,并支持一致的护理方法。指南可以改善整个新生儿重症监护病房(NICU)过程中的护理,从产前咨询开始,产房管理,黄金时间,以及整个新生儿重症监护病房期间,婴儿的需求根据生理变化而变化。
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引用次数: 0
Measuring family-important outcomes in large neonatal networks: where we are and where we need to go 在大型新生儿网络中衡量家庭重要结果:我们在哪里,我们需要去哪里。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152149
Catherine Demers , Thuy Mai Luu , Stephanie Glegg , Jehier Afifi , Rebecca Pearce , Émilie Thivierge , Annie Janvier
Neonatal follow-up programs are critical in monitoring the long-term outcomes of infants born preterm. The current focus is on neurodevelopmental impairment (NDI). However, such deficit-based outcomes often exclude parental perspectives, failing to capture what matters the most to families: function and quality of life over diagnoses. This paper explores the integration of new family-important outcomes (FIO) measures into neonatal follow-up using patient-reported outcome measures. FIO measures are patient-completed questionnaires that assess a range of health outcomes such as health status, functional ability, and quality of life. We discuss the importance and ethical imperative of integrating FIO measures into neonatal follow-up programs to better align care with family priorities and challenges in bringing practice changes. We propose using an implementation science approach to successfully embed FIO measures into practice and research, enhancing the relevance, equity, and quality of neonatal follow-up care.
新生儿随访项目对于监测早产儿的长期预后至关重要。目前的重点是神经发育障碍(NDI)。然而,这种基于缺陷的结果往往排除了父母的观点,未能捕捉到对家庭最重要的东西:功能和生活质量,而不是诊断。本文探讨了新的家庭重要结果(FIO)措施整合到新生儿随访使用患者报告的结果措施。FIO测量是患者完成的问卷,评估一系列健康结果,如健康状况、功能能力和生活质量。我们讨论了将FIO措施纳入新生儿随访计划的重要性和伦理必要性,以更好地将护理与家庭优先事项和带来实践变化的挑战结合起来。我们建议采用实施科学的方法,成功地将FIO措施纳入实践和研究,提高新生儿随访护理的相关性、公平性和质量。
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引用次数: 0
Improving outcomes for preterm infants: Mitigating stress exposure 改善早产儿的预后:减轻压力暴露。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152153
Marliese Dion Nist, Nicole Cistone, Rita H. Pickler
Stress exposure in the neonatal intensive care unit (NICU) is ubiquitous and affects long-term outcomes for preterm infants. The NICU hospitalization occurs during a critical period of experience-dependent and experience-expectant development when the immature brain is particularly sensitive to environmental exposures, but the experiences of preterm infants are often poorly matched to their neurologic expectations. The mismatch between preterm infants’ experiences and neurologic expectations may cause abnormal brain development and programming of the stress response systems. Routine nursing care and parental separation are two neurologically unexpected experiences that, while often overlooked, may be amenable to interventions, including system-level changes. To guide the development and implementation of effective interventions, it is necessary to understand how nurse caregiving practices and parental separation specifically contribute to the preterm infant’s stress burden. The purpose of this paper is to provide an overview of the effects of routine nursing care and parental separation, two persistent NICU stressors, and offer recommendations for interventions that nurses and other care providers can use to mitigate the negative effects of these exposures.
新生儿重症监护病房(NICU)的压力暴露是普遍存在的,并影响早产儿的长期预后。新生儿重症监护病房住院发生在经验依赖和经验期待发育的关键时期,此时未成熟的大脑对环境暴露特别敏感,但早产儿的经验往往与他们的神经系统期望不匹配。早产儿的经验与神经系统期望之间的不匹配可能导致大脑发育异常和应激反应系统的编程。常规护理和父母分离是两种神经学上意想不到的经历,虽然经常被忽视,但可能是可以干预的,包括系统层面的改变。为了指导有效干预措施的制定和实施,有必要了解护理实践和父母分离对早产儿压力负担的具体影响。本文的目的是概述常规护理和父母分离这两个持续存在的NICU压力源的影响,并提供干预建议,护士和其他护理提供者可以使用这些建议来减轻这些暴露的负面影响。
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引用次数: 0
Transforming neonatal care through informatics: A review of artificial intelligence, data, and implementation considerations 通过信息学转变新生儿护理:人工智能,数据和实施考虑因素的回顾。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152144
Robert Barrett , Brooke Lawler , Star Liu , Woo Yeon Park , Marjan Davoodi , Ben Martin , Sai Manasa Kalyanam , Kartikeya Makker , Jordan R. Kuiper , Khyzer B. Aziz
Significant strides have been made in utilizing data, information, and knowledge to enhance neonatal outcomes. This review examines how data informatics, encompassing electronic health records (EHRs), data standards, and artificial intelligence (AI), has facilitated advancements in neonatal care and research. Vast amounts of data, structured and unstructured, have been produced from clinical care. In turn AI stands to improve patient care, safety, and quality improvement initiatives. Facilitated by AI, clinicians’ interaction with neonatal informatic tools is transitioning from reactive to real-time, proactive care. Historically, necrotizing enterocolitis, sepsis, medical imaging, and neonatal mortality have been the targets of AI-integrated neonatal care. While much progress has been made in developing state-of-the-art AI tools, their development and implementation must consider optimization of patient care, clinical workflows, and aim to decrease clinician burnout. Employing a sociotechnical framework to assess both technical and human factors is key to effectively evaluating clinical utility, promoting adoption, and facilitating successful deployment. Beyond technical concerns, ethical considerations such as trust in AI, data security, and model transparency are critical to the responsible deployment of informatics tools. Ongoing advancements in neonatal care coupled with informatics, multi-omics, AI, and federated learning expands the possibilities of personalized care for neonates.
在利用数据、信息和知识改善新生儿结局方面取得了重大进展。本文综述了包括电子健康记录(EHRs)、数据标准和人工智能(AI)在内的数据信息学如何促进新生儿护理和研究的进步。临床护理产生了大量的结构化和非结构化数据。反过来,人工智能将改善患者护理、安全和质量改进计划。在人工智能的推动下,临床医生与新生儿信息工具的互动正在从被动护理转变为实时、主动护理。从历史上看,坏死性小肠结肠炎、败血症、医学影像学和新生儿死亡率一直是人工智能综合新生儿护理的目标。虽然在开发最先进的人工智能工具方面取得了很大进展,但它们的开发和实施必须考虑优化患者护理、临床工作流程,并旨在减少临床医生的职业倦怠。采用社会技术框架来评估技术和人为因素是有效评估临床效用、促进采用和促进成功部署的关键。除了技术问题之外,对人工智能的信任、数据安全和模型透明度等道德考虑对于负责任地部署信息学工具至关重要。新生儿护理的持续进步与信息学、多组学、人工智能和联合学习相结合,扩大了新生儿个性化护理的可能性。
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引用次数: 0
Interventions to address inequities in infant mortality and morbidity in the NICU and beyond: A focus on the mother-infant dyad 解决新生儿重症监护室及其他地方婴儿死亡率和发病率不平等的干预措施:关注母婴死亡。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152141
Mattie F. Wolf , Diana Montoya-Williams , Michelle-Marie Peña
In 2022, United States infant mortality increased for the first time in over 20 years, driven largely by deaths due to maternal complications and preterm birth, and highlighted significant racial/ethnic and socioeconomic inequities in both infant mortality and morbidities. This underscores the relationship between maternal and infant health outcomes. This article presents a framework for understanding the mother-infant dyad using an adaptation of the socio-ecological model and focuses on patient and family factors, provider and healthcare system factors, community factors, and policy and societal factors that perpetuate inequities in infant outcomes. The neonatal intensive care unit (NICU) is a driver of inequities, but also provides critical, yet underutilized, opportunities for intervention. Strategies to promote physical, emotional, social, and financial well-being of mothers and infants include NICU-based lactation and mental health support, culturally responsive care, screening for social determinants of health, and engagement of families in care and quality improvement. Beyond the NICU, broader structural and policy changes are essential, including equitable access to risk-appropriate care, paid family leave, comprehensive health insurance, and investments in community partnerships. Addressing these drivers of inequity through coordinated healthcare, policy, and community action can better support the mother-infant dyad and improve the well-being of all families.
2022年,美国婴儿死亡率20多年来首次上升,主要原因是孕产妇并发症和早产导致的死亡,这凸显了婴儿死亡率和发病率方面的严重种族/民族和社会经济不平等。这强调了孕产妇和婴儿健康结果之间的关系。本文提出了一个框架,利用社会生态模型的适应性来理解母婴二联体,并重点关注患者和家庭因素、提供者和医疗保健系统因素、社区因素以及政策和社会因素,这些因素使婴儿结局的不公平永恒化。新生儿重症监护病房(NICU)是不公平现象的推手,但也提供了关键的、但未得到充分利用的干预机会。促进母亲和婴儿身体、情感、社会和经济福祉的战略包括以新生儿重症监护室为基础的哺乳和心理健康支持、符合文化的护理、健康的社会决定因素筛查以及家庭参与护理和质量改进。除新生儿重症监护室外,还必须进行更广泛的结构和政策改革,包括公平获得适合风险的护理、带薪家事假、全面健康保险以及对社区伙伴关系的投资。通过协调的医疗保健、政策和社区行动来解决这些不平等的驱动因素,可以更好地支持母婴,改善所有家庭的福祉。
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引用次数: 0
Extending the Branches of Neonatal Neurocritical Care 扩展新生儿神经危重症护理的分支。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152131
Mark A. Petersen , Hannah C. Glass
Neonatal Neurocritical Care (NNCC) is transforming neonatal medicine through a brain-centered approach that reflects the complexity and rapid progression of early neurodevelopment. NNCC provides a comprehensive care model built on a foundation of real-time neuromonitoring, advanced neuroimaging, and multidisciplinary collaboration to deliver timely neurological support for newborns at risk of injury. This framework has evolved to bridge the full arc of early brain development, linking fetal evaluation, neonatal management, and post-discharge follow-up into a cohesive continuum. Recent technological advances in bedside monitoring, functional neuroimaging, machine learning, and rapid genomics are shifting NNCC toward a more proactive and personalized model of care. Emerging therapies are also expanding the clinical reach of NNCC, opening new frontiers for early intervention and neurorepair. As the field continues to advance, the central goal of NNCC remains to improve neurodevelopmental outcomes while ensuring widespread access to high-quality, family-centered neurological care. This review outlines the evolving landscape of NNCC and highlights its essential role in guiding brain-focused care from the earliest stages of development through childhood and beyond.
新生儿神经危重症护理(NNCC)正在通过以脑为中心的方法改变新生儿医学,反映了早期神经发育的复杂性和快速进展。NNCC提供了建立在实时神经监测、先进神经成像和多学科合作基础上的综合护理模式,为有损伤风险的新生儿提供及时的神经支持。这个框架已经发展到连接早期大脑发育的完整弧线,将胎儿评估、新生儿管理和出院后随访连接成一个有凝聚力的连续体。最近在床边监测、功能神经成像、机器学习和快速基因组学方面的技术进步正在将NNCC转向更主动和个性化的护理模式。新兴疗法也扩大了NNCC的临床范围,为早期干预和神经修复开辟了新的领域。随着该领域的不断发展,NNCC的中心目标仍然是改善神经发育结果,同时确保广泛获得高质量、以家庭为中心的神经学护理。这篇综述概述了NNCC的发展前景,并强调了它在指导从早期发展阶段到童年及以后的以大脑为中心的护理方面的重要作用。
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引用次数: 0
Quality improvement collaboratives: A neonatal perspective 质量改进协作:新生儿视角。
IF 3.2 3区 医学 Q1 OBSTETRICS & GYNECOLOGY Pub Date : 2025-11-01 DOI: 10.1016/j.semperi.2025.152152
Eugenia K. Pallotto , Michelle-Marie Peña , C. Briana Bertoni , Beverly S. Brozanski , Laurel B. Moyer , Anthony Piazza
Quality improvement collaborative (QIC) networks have been instrumental in improving care and outcomes across various populations, demonstrating a consistent track record of success, particularly within neonatal intensive care units on both national and international levels. Successful networks require many structural factors to be in place at both the collaborative and local level. Engagement and investment in QICs promote equitable care by decreasing variation and driving practice improvements. This review provides an overview of the historical context and a successful methodology in neonatology.
质量改进协作(QIC)网络在改善不同人群的护理和结果方面发挥了重要作用,展示了一致的成功记录,特别是在国家和国际一级的新生儿重症监护病房。成功的网络需要在协作和地方层面上具备许多结构性因素。质量保证中心的参与和投资通过减少差异和推动实践改进来促进公平护理。这篇综述提供了一个历史背景的概述和一个成功的方法在新生儿科。
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引用次数: 0
期刊
Seminars in perinatology
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