Little is known about the effectiveness of psychoeducational support groups on positive adaptation in parents and families after a child has been diagnosed with cerebral palsy. A systematic literature review adopting the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines was conducted to gain an understanding of the process of adaptation in parents with a child with cerebral palsy and the effects psychoeducational support programs have on this process. The databases searched were psychINFO, Taylor and Francis Online, PsychARTICLES, Medline and ProQuest. A total of 1083 papers were found and 19 of those papers were analysed. A narrative approach was used to synthesise the data extracted. A number of factors that influence adaption within a family after the diagnosis of cerebral palsy in a family member were identified in the review. These factors include, but are not limited to, providing appropriate and relevant information to parents and families, identifying community services and resources available to the family, assisting in the reduction of psychosocial distress, and encouraging the facilitation and collaboration of a strong parent-professional partnership throughout the process. Based on this information guidelines for psychoeducation programs for this client group were proposed.
在孩子被诊断为脑瘫后，心理教育支持小组对父母和家庭积极适应的有效性知之甚少。采用系统评价和荟萃分析(PRISMA)指南的首选报告项目进行了系统的文献综述，以了解脑瘫儿童父母的适应过程以及心理教育支持计划对这一过程的影响。检索的数据库包括psychINFO、Taylor and Francis Online、PsychARTICLES、Medline和ProQuest。共发现1083篇论文，并对其中19篇论文进行了分析。采用叙述方法综合提取的数据。在回顾中确定了一些影响家庭成员在诊断脑瘫后适应的因素。这些因素包括但不限于向父母和家庭提供适当和相关的信息，确定家庭可用的社区服务和资源，协助减少心理社会困扰，并鼓励在整个过程中促进和合作建立强有力的父母-专业伙伴关系。在此基础上，提出了针对这一群体的心理教育指导方针。
{"title":"Working Therapeutically with Parents after the Diagnosis of a Child's Cerebral Palsy: Issues and Practice Guidelines","authors":"J. Higginson, M. Matthewson","doi":"10.1017/jrc.2014.6","DOIUrl":"https://doi.org/10.1017/jrc.2014.6","url":null,"abstract":"Little is known about the effectiveness of psychoeducational support groups on positive adaptation in parents and families after a child has been diagnosed with cerebral palsy. A systematic literature review adopting the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines was conducted to gain an understanding of the process of adaptation in parents with a child with cerebral palsy and the effects psychoeducational support programs have on this process. The databases searched were psychINFO, Taylor and Francis Online, PsychARTICLES, Medline and ProQuest. A total of 1083 papers were found and 19 of those papers were analysed. A narrative approach was used to synthesise the data extracted. A number of factors that influence adaption within a family after the diagnosis of cerebral palsy in a family member were identified in the review. These factors include, but are not limited to, providing appropriate and relevant information to parents and families, identifying community services and resources available to the family, assisting in the reduction of psychosocial distress, and encouraging the facilitation and collaboration of a strong parent-professional partnership throughout the process. Based on this information guidelines for psychoeducation programs for this client group were proposed.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"40 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2014-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125337383","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"JRC volume 20 issue 1 Cover and Back matter","authors":"","doi":"10.1017/jrc.2014.8","DOIUrl":"https://doi.org/10.1017/jrc.2014.8","url":null,"abstract":"","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"25 1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2014-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132796151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"JRC volume 20 issue 1 Cover and Front matter","authors":"","doi":"10.1017/jrc.2014.7","DOIUrl":"https://doi.org/10.1017/jrc.2014.7","url":null,"abstract":"","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"11 suppl_1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2014-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132333768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
An online survey of adult women living in Australia with an acquired or congenital disability was conducted to explore the needs and challenges experienced by this population. Data for 116 respondents with a primary mobility (n = 92), sensory-related (n = 12), psychiatric (n = 6), or neurocognitive impairment (n = 6) were collected. Word clouds and content analysis were utilised to examine the data. Barriers to achieving vocational, health and relationship goals were identified, including systemic (e.g. financial resources, accessibility issues, societal attitudes), physical (e.g. medical sequalae), and psychological (e.g. self-concept, assertiveness) issues. Strategies to overcome these barriers included increased availability of peer support networks and opportunities for personal development. It follows that disability services require a multi-faceted approach, with a focus on biopsychosocial factors that include, but are not limited to, mobility, self-care and communication needs.
{"title":"Needs, Challenges and Goals of Australian Women With Disabilities: A Preliminary Survey","authors":"S. Copas, D. Dorstyn","doi":"10.1017/jrc.2014.3","DOIUrl":"https://doi.org/10.1017/jrc.2014.3","url":null,"abstract":"An online survey of adult women living in Australia with an acquired or congenital disability was conducted to explore the needs and challenges experienced by this population. Data for 116 respondents with a primary mobility (n = 92), sensory-related (n = 12), psychiatric (n = 6), or neurocognitive impairment (n = 6) were collected. Word clouds and content analysis were utilised to examine the data. Barriers to achieving vocational, health and relationship goals were identified, including systemic (e.g. financial resources, accessibility issues, societal attitudes), physical (e.g. medical sequalae), and psychological (e.g. self-concept, assertiveness) issues. Strategies to overcome these barriers included increased availability of peer support networks and opportunities for personal development. It follows that disability services require a multi-faceted approach, with a focus on biopsychosocial factors that include, but are not limited to, mobility, self-care and communication needs.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"30 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2014-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130381258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Often referred to as the ‘silent epidemic’, traumatic and other forms of acquired brain injury are now considered to represent a significant and growing public health problem worldwide. Beyond the direct impacts of acquired brain injury on injured persons, this disability likewise impacts families. While medical personnel and acute rehabilitation services deliver an incredible array of high quality and sophisticated techniques to treat acute injuries, a concomitant service delivery system to support the needs of families is lacking. This is especially unfortunate given the extensive array of instrumental and affective forms of care families provide to their injured family members, often resulting in high levels of caregiver burden, depression and anxiety.
{"title":"Introduction and Overview","authors":"C. E. Degeneffe","doi":"10.1017/jrc.2013.11","DOIUrl":"https://doi.org/10.1017/jrc.2013.11","url":null,"abstract":"Often referred to as the ‘silent epidemic’, traumatic and other forms of acquired brain injury are now considered to represent a significant and growing public health problem worldwide. Beyond the direct impacts of acquired brain injury on injured persons, this disability likewise impacts families. While medical personnel and acute rehabilitation services deliver an incredible array of high quality and sophisticated techniques to treat acute injuries, a concomitant service delivery system to support the needs of families is lacking. This is especially unfortunate given the extensive array of instrumental and affective forms of care families provide to their injured family members, often resulting in high levels of caregiver burden, depression and anxiety.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"477 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115874520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth C. Morriss, Suzanne Wright, Sharon Smith, Judy Roser, Melissa Kendall
Parenting following acquired brain injury (ABI) has received little empirical or clinical investigation. The current study aimed to explore the challenges facing fathers following ABI and identify their needs for support. Interviews were conducted with three men with ABI, two partners and three rehabilitation coordinators. Five themes emerged from the data and a preliminary model of parenting for fathers following injury was developed. The interactive effects of the ABI and associated impairment on family relationships/functioning, perceptions/identity of parenting role, parenting knowledge/skills and confidence/self efficacy are described. Interventions should be flexible, individualised and tailored to address the unique parenting needs of the father within each family.
{"title":"Parenting Challenges and Needs for Fathers Following Acquired Brain Injury (ABI) in Queensland, Australia: A Preliminary Model","authors":"Elizabeth C. Morriss, Suzanne Wright, Sharon Smith, Judy Roser, Melissa Kendall","doi":"10.1017/jrc.2013.15","DOIUrl":"https://doi.org/10.1017/jrc.2013.15","url":null,"abstract":"Parenting following acquired brain injury (ABI) has received little empirical or clinical investigation. The current study aimed to explore the challenges facing fathers following ABI and identify their needs for support. Interviews were conducted with three men with ABI, two partners and three rehabilitation coordinators. Five themes emerged from the data and a preliminary model of parenting for fathers following injury was developed. The interactive effects of the ABI and associated impairment on family relationships/functioning, perceptions/identity of parenting role, parenting knowledge/skills and confidence/self efficacy are described. Interventions should be flexible, individualised and tailored to address the unique parenting needs of the father within each family.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129973095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"JRC volume 19 issue 2 Cover and Front matter","authors":"","doi":"10.1017/jrc.2013.20","DOIUrl":"https://doi.org/10.1017/jrc.2013.20","url":null,"abstract":"","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"30 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121915640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elena López de Arroyabe, E. Calvete, C. L. Hayas, Anik Zubizarreta
Acquired brain injury (ABI) causes numerous problems, including cognitive and personality changes, which can be quite stressful for caregivers. In this study, we aimed to adapt an instrument to measure caregivers’ distress, the Relative Version of the Head Injury Behaviour Scale (HIBS; Godfrey et al., 2003) to the Spanish language and to determine whether the positive aspects of caregiving moderate the effects of the psychological problems of ABI on caregivers’ distress. Moderation analyses indicated that positive aspects of caregiving involving one's outlook on life reduced the association between psychological problems and caregivers’ distress. The findings suggest that although the caregiver role is a source of distress, this role can also become a source of satisfaction, actually contributing to reducing caregivers’ distress. The importance of promoting the positive aspects of caregiving in rehabilitation programmes is discussed.
获得性脑损伤(ABI)会导致许多问题，包括认知和性格变化，这对护理人员来说是相当大的压力。在这项研究中，我们的目的是采用一种工具来测量照顾者的痛苦，即相对版本的头部伤害行为量表(HIBS;Godfrey et al.， 2003)对西班牙语的研究，并确定护理的积极方面是否能缓解ABI心理问题对护理者痛苦的影响。适度分析表明，照顾的积极方面，包括一个人的人生观，减少了心理问题和照顾者痛苦之间的联系。研究结果表明，尽管照顾者的角色是痛苦的来源，但这个角色也可以成为满足的来源，实际上有助于减少照顾者的痛苦。讨论了在康复方案中促进护理的积极方面的重要性。
{"title":"Distress of the Caregiver in Acquired Brain Injury: Positive aspects of care to moderate the effects of psychological problems","authors":"Elena López de Arroyabe, E. Calvete, C. L. Hayas, Anik Zubizarreta","doi":"10.1017/jrc.2013.13","DOIUrl":"https://doi.org/10.1017/jrc.2013.13","url":null,"abstract":"Acquired brain injury (ABI) causes numerous problems, including cognitive and personality changes, which can be quite stressful for caregivers. In this study, we aimed to adapt an instrument to measure caregivers’ distress, the Relative Version of the Head Injury Behaviour Scale (HIBS; Godfrey et al., 2003) to the Spanish language and to determine whether the positive aspects of caregiving moderate the effects of the psychological problems of ABI on caregivers’ distress. Moderation analyses indicated that positive aspects of caregiving involving one's outlook on life reduced the association between psychological problems and caregivers’ distress. The findings suggest that although the caregiver role is a source of distress, this role can also become a source of satisfaction, actually contributing to reducing caregivers’ distress. The importance of promoting the positive aspects of caregiving in rehabilitation programmes is discussed.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129737081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
The objective of this study was to examine brain injury professionals’ perspectives on the future concerns of families of persons with brain injuries in the United States of America. A total of 28 persons in leadership positions with the Brain Injury Association of America (BIAA) participated. Through qualitative data analysis of an open-ended question in an electronic survey containing both qualitative and quantitative questions, participants identified future concerns related to future caregiving responsibilities, financial concerns, living arrangements, recovery, access to professional care, relationships and employment. The findings indicate that many families are unprepared to meet the future care and support needs of their injured family members.
{"title":"Future Concerns Among Families Following Brain Injury in the United States: Views from the Brain Injury Association of America State Affiliates","authors":"M. Tucker, C. E. Degeneffe","doi":"10.1017/jrc.2013.16","DOIUrl":"https://doi.org/10.1017/jrc.2013.16","url":null,"abstract":"The objective of this study was to examine brain injury professionals’ perspectives on the future concerns of families of persons with brain injuries in the United States of America. A total of 28 persons in leadership positions with the Brain Injury Association of America (BIAA) participated. Through qualitative data analysis of an open-ended question in an electronic survey containing both qualitative and quantitative questions, participants identified future concerns related to future caregiving responsibilities, financial concerns, living arrangements, recovery, access to professional care, relationships and employment. The findings indicate that many families are unprepared to meet the future care and support needs of their injured family members.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121674076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Norup, Daniel J. Snipes, Lars Siert, E. L. Mortensen, P. Perrin, J. Arango-Lasprilla
Scant research has examined health-related quality of life (HRQoL) in family members of patients with severe brain injury, even less has been done in Scandinavian countries, and none has examined this construct longitudinally. The current study therefore used multilevel modelling to investigate the trajectories of HRQoL in 94 Danish family members of patients with severe brain injury at five time points, beginning at the patient's stay in a neuro intensive care unit through one year after injury. The family members’ HRQoL scores significantly and strongly increased over time, and Role Limitations – Emotional scores were higher when patients had high Rancho Los Amigos Scale scores at admission to early intensive rehabilitation in hospital. These results suggest that the acute and sub-acute periods after brain injury are an extremely difficult time psychologically for many families, and family-based mental health interventions during the acute and sub-acute phases are critical, especially for families who have a patient with severe deficits.
很少有研究对严重脑损伤患者家庭成员的健康相关生活质量(HRQoL)进行研究，斯堪的纳维亚国家的研究更少，而且没有研究对这一结构进行纵向研究。因此，目前的研究使用多层模型来调查94名丹麦严重脑损伤患者家庭成员在五个时间点的HRQoL轨迹，从患者在神经重症监护病房住院到受伤后一年。随着时间的推移，家庭成员的HRQoL得分显著而强烈地增加，当患者在入院早期强化康复时，Rancho Los Amigos量表得分较高时，角色限制-情绪得分较高。这些结果表明，对于许多家庭来说，脑损伤后的急性和亚急性期是心理上极其困难的时期，在急性和亚急性期进行以家庭为基础的心理健康干预至关重要，特别是对于有严重缺陷患者的家庭。
{"title":"Longitudinal Trajectories of Health Related Quality of Life in Danish Family Members of Individuals with Severe Brain Injury","authors":"A. Norup, Daniel J. Snipes, Lars Siert, E. L. Mortensen, P. Perrin, J. Arango-Lasprilla","doi":"10.1017/jrc.2013.12","DOIUrl":"https://doi.org/10.1017/jrc.2013.12","url":null,"abstract":"Scant research has examined health-related quality of life (HRQoL) in family members of patients with severe brain injury, even less has been done in Scandinavian countries, and none has examined this construct longitudinally. The current study therefore used multilevel modelling to investigate the trajectories of HRQoL in 94 Danish family members of patients with severe brain injury at five time points, beginning at the patient's stay in a neuro intensive care unit through one year after injury. The family members’ HRQoL scores significantly and strongly increased over time, and Role Limitations – Emotional scores were higher when patients had high Rancho Los Amigos Scale scores at admission to early intensive rehabilitation in hospital. These results suggest that the acute and sub-acute periods after brain injury are an extremely difficult time psychologically for many families, and family-based mental health interventions during the acute and sub-acute phases are critical, especially for families who have a patient with severe deficits.","PeriodicalId":303913,"journal":{"name":"The Australian Journal of Rehabilitation Counselling","volume":"76 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2013-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131515151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
京公网安备 11010802042870号
京ICP备2023020795号-1
扫码关注我们
求助内容：
应助结果提醒方式：