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Back-to-School Screening for Children with Cancer and Hematologic Disorders: Bridging Healthcare and Education. 对患有癌症和血液疾病的儿童进行返校筛查:连接医疗保健和教育。
Q2 Social Sciences Pub Date : 2026-01-29 eCollection Date: 2026-01-01 DOI: 10.5334/cie.288
Michelle Fritsch, Ashley Matthews, Mashal Kara, Anastasia Deeter

Children with pediatric chronic illnesses, including cancer and hematologic disorders, face psychosocial challenges that disrupt development, academic progress, and social functioning. While healthcare providers often connect families to supportive resources, comprehensive approaches to school-related needs remain limited. The Back-to-School Screening Program, a practice-based intervention evaluated using a descriptive mixed-methods design, was developed to systematically identify the educational needs of children with cancer and blood disorders at the start of the academic year. The evaluation combined quantitative data from psychosocial screening surveys and service utilization metrics with qualitative feedback from families and interdisciplinary staff. Launched during the COVID-19 pandemic, the program assessed available psychosocial resources, identified barriers to school participation, and facilitated communication between healthcare and educational systems. Between 2020 and 2024, 1,193 families were screened. Results showed measurable improvements in educational preparedness, family satisfaction, and cross-sector collaboration. Outcomes included increased access to educational materials and technology, enhanced family understanding of school supports, and strengthened coordination among healthcare, school, and community partners. Findings highlight the value of embedding educational screening within pediatric psychosocial care to prevent academic disruption and promote resilience. The Back-to-School Screening Program provides a replicable model for integrating educational advocacy into routine care, informing both practice and policy to support the long-term wellbeing of children with chronic illness.

患有儿童慢性疾病(包括癌症和血液病)的儿童面临着破坏发育、学业进步和社会功能的社会心理挑战。虽然医疗保健提供者经常将家庭与支持性资源联系起来,但满足学校相关需求的综合方法仍然有限。返校筛查计划是一项基于实践的干预措施,采用描述性混合方法设计进行评估,旨在系统地确定学年开始时患有癌症和血液疾病的儿童的教育需求。评估结合了来自社会心理筛查调查和服务利用指标的定量数据,以及来自家庭和跨学科工作人员的定性反馈。该项目在2019冠状病毒病大流行期间启动,评估了现有的社会心理资源,确定了上学的障碍,并促进了医疗保健和教育系统之间的沟通。在2020年至2024年期间,1193个家庭接受了筛查。结果显示,在教育准备、家庭满意度和跨部门协作方面均有显著改善。结果包括增加了获得教育材料和技术的机会,增强了家庭对学校支持的了解,并加强了医疗保健、学校和社区合作伙伴之间的协调。研究结果强调了将教育筛查纳入儿科社会心理护理的价值,以防止学业中断并促进恢复力。返校筛查项目提供了一个可复制的模式,将教育宣传纳入日常护理,为实践和政策提供信息,以支持慢性病儿童的长期福祉。
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引用次数: 0
Educational Services and School Reintegration Supports for Youth After Acute Behavioral Health Unit Hospitalization. 青少年急性行为健康病房住院后的教育服务和重返学校支持。
Q2 Social Sciences Pub Date : 2025-10-29 eCollection Date: 2025-01-01 DOI: 10.5334/cie.178
Heather Ormiston, Polly Husmann, Kristin Wikel, Debra Reisinger, Michelle Curtin

Youth with mental health needs significant enough to warrant inpatient psychiatric hospitalization are on the rise. After inpatient hospitalization, youth transitioning back to their school of record need continued support to promote recovery. Little empirical work has been conducted to understand the educational experiences of youth hospitalized for mental health needs. Further, there is a need to document the services provided to youth upon discharge and return to their school of record. Thus, the purpose of this empirical study is to better understand the patient population (n = 264, mean age = 14.04 years old; 70.1% White, 73.2% female) of an acute behavioral health unit in a free-standing Midwestern children's hospital and the educational services (e.g., consultation, direct instruction, support for reentry, and educational advocacy services) provided by the Hospital-Based School program prior to, during, and post-hospitalization to those students. Significant differences in educational services were identified based on some student demographic characteristics such that older students were more likely to have a 504 plan at admission, and individuals with neurodevelopmental disorders, psychosis, and other mental disorders were found to be most likely to have special education services prior to admission. Implications for practice related to improved care coordination upon reentry between hospitals and schools and the role of schools in the provision of behavioral and mental health services, limitations of the current study, and directions for future research are discussed.

有心理健康需要的青少年人数正在上升,足以保证住院治疗。在住院治疗后,青少年回到他们的记录学校需要继续支持,以促进康复。对于青少年因心理健康需要而住院的教育经验,实证研究甚少。此外,有必要记录在青少年出院并返回他们的记录学校时向他们提供的服务。因此,本实证研究的目的是为了更好地了解中西部一家独立儿童医院急性行为健康部门的患者群体(n = 264,平均年龄= 14.04岁;70.1%白人,73.2%女性)以及医院为基础的学校项目在这些学生住院前、住院期间和住院后提供的教育服务(如咨询、直接指导、支持重返社会和教育宣传服务)。根据一些学生的人口统计学特征,发现了教育服务的显著差异,例如,年龄较大的学生更有可能在入学时接受504计划,而患有神经发育障碍、精神病和其他精神障碍的个体最有可能在入学前接受特殊教育服务。本文讨论了改善医院和学校之间再入后护理协调的实践意义,以及学校在提供行为和心理健康服务方面的作用,当前研究的局限性以及未来研究的方向。
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引用次数: 0
Integrating Robotics in Hospital and Home Education: A Systematic Review of Innovative Teaching Practices. 整合机器人在医院和家庭教育:创新教学实践的系统回顾。
Q2 Social Sciences Pub Date : 2025-09-01 eCollection Date: 2025-01-01 DOI: 10.5334/cie.156
Federica Pelizzari, Simone Rocco, Simona Ferrari

This paper presents a systematic literature review (SLR) on integration of robotics in hospitals and home-based educational settings. These schools provide essential educational environments that uphold children's right to education during prolonged illness. The review explores flexible didactic design, time adaptation, and personalized teaching approaches that are crucial in these contexts. It also examines how digital technologies-specifically coding and educational robotics-enhance pediatric educational experiences, reduce isolation, and improve psychological and social well-being. Coding promotes computational thinking and soft skills, while robotics fosters creativity and leadership, making hospital learning empowering and engaging. A comprehensive search, following the PRISMA framework, was conducted across Scopus, Web of Science, JSTOR, ERIC, and Google Scholar, to identify peer-reviewed studies published between 2010 and 2023. Inclusion criteria targeted studies on robotics in hospital or home education. Grey literature, non-peer-reviewed studies, and research unrelated to non-standard schooling contexts were excluded. Out of 1,500 articles, 30 met the inclusion criteria and were analyzed across four domains: research types and sample profiles, teaching methodologies, technological tools, and skill development. Findings showed that robotics supports educational continuity, fosters engagement, and develops critical skills such as problem-solving, creativity, and leadership. It also reduces social isolation and enhances emotional well-being through interactive, personalized learning. Despite promising results, however, gaps remain, particularly regarding adolescent needs and long-term impacts. This study offers a foundational synthesis for future research and practical applications, emphasizing robotics' transformative potential in inclusive, future-oriented learning for children in non-conventional settings. It deepens understanding of how robotics addresses educational challenges and provides a base for continued research.

本文提出了一个系统的文献综述(SLR)集成机器人在医院和家庭为基础的教育设置。这些学校提供必要的教育环境,维护儿童在长期患病期间受教育的权利。这篇综述探讨了灵活的教学设计、时间适应和个性化的教学方法在这些背景下是至关重要的。它还研究了数字技术-特别是编码和教育机器人-如何增强儿科教育体验,减少孤立,改善心理和社会福祉。编码促进了计算思维和软技能,而机器人则培养了创造力和领导力,使医院学习变得更加强大和引人入胜。根据PRISMA框架,我们在Scopus、Web of Science、JSTOR、ERIC和b谷歌Scholar上进行了全面的搜索,以确定2010年至2023年间发表的同行评议研究。纳入标准针对医院或家庭教育中的机器人研究。灰色文献、非同行评议的研究和与非标准学校背景无关的研究被排除在外。在1500篇文章中,有30篇符合纳入标准,并在四个领域进行了分析:研究类型和样本概况、教学方法、技术工具和技能发展。研究结果表明,机器人技术支持教育的连续性,促进参与,并发展关键技能,如解决问题,创造力和领导能力。它还通过互动、个性化的学习减少了社会孤立,增强了情感健康。然而,尽管取得了可喜的成果,差距仍然存在,特别是在青少年需求和长期影响方面。这项研究为未来的研究和实际应用提供了基础综合,强调了机器人在非传统环境中为儿童提供包容性、面向未来的学习方面的变革潜力。它加深了对机器人如何解决教育挑战的理解,并为继续研究提供了基础。
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引用次数: 0
When School Walls Meet Emotional Hurdles: A Cross-Sectional Study on Alexithymia and School Refusal in High Schools. 当学校围墙遇到情感障碍:高中述情障碍和学校拒绝的横断面研究。
Q2 Social Sciences Pub Date : 2025-08-01 eCollection Date: 2025-01-01 DOI: 10.5334/cie.169
Mohammad Jahanaray, Ali Jahanaray, Atena Pasha

Alexithymia, the difficulty in recognizing and expressing emotions, can create significant challenges for students, contributing to anxiety and stress that predict school-refusal behaviors. This study explored how alexithymia and school refusal behaviors impact high school students' academic performance (grade point average; GPA), considering how gender, school type, and academic major play a role. Utilizing snowball sampling, 265 students with a mean age of 16.41(SD = 1.7) participated in the study online, completing the Perth Alexithymia Questionnaire (PAQ) and the School Refusal Assessment Scale-Revised (SRAS-R). Through statistical analyses, including path analysis, quasi-Bayesian mediation, and Hayes moderation, we found that alexithymia and GPA were associated. Also, school refusal behaviors, like avoiding social interactions or seeking tangible rewards, did not mediate this relationship but school refusal due to avoiding negative emotions positively predicted GPA. Students in STEM (science, technology, engineering, math) fields, known for their rigorous and less emotive curricula, showed higher levels of alexithymia. In contrast, public school students were more likely to skip school for external rewards. Female students had lower alexithymia scores and higher GPAs than males. Path analysis, in turn, revealed that studying in gifted school and F2 (escaping evaluative situations) showed the largest effect sizes. School refusal findings highlight the importance of tailored interventions: public schools' high F4 needs mentorship, peer support, and extracurriculars to counter socioeconomic refusal drivers. Also, embedding emotional literacy workshops into the curriculum, offering flexible attendance options, and fostering supportive environments with peer mentoring or teacher check-ins can counteract emotional isolation and distress, proactively addressing alexithymia's roots and refusal triggers before they escalate.

述情障碍,即识别和表达情绪的困难,会给学生带来重大挑战,导致焦虑和压力,预示着拒绝入学的行为。摘要本研究探讨述情障碍和拒绝学校行为对高中生学业表现(平均绩点;GPA),考虑性别、学校类型和专业的影响。采用滚雪球抽样的方法,265名平均年龄为16.41岁(SD = 1.7)的学生在线参与了研究,完成了珀斯述情障碍问卷(PAQ)和学校拒绝评估量表-修订(SRAS-R)。通过通径分析、拟贝叶斯中介和Hayes调节等统计分析,我们发现述情障碍与GPA存在相关性。此外,拒绝学校的行为,如避免社交互动或寻求有形奖励,并没有调解这种关系,但由于避免负面情绪而拒绝学校对GPA有积极的预测作用。STEM(科学、技术、工程、数学)领域的学生表现出更高的述情障碍水平,这些领域以严格和较少情绪化的课程而闻名。相比之下,公立学校的学生更有可能为了外部奖励而逃学。女学生述情障碍得分低于男学生,而gpa高于男学生。通径分析显示,在资优学校和F2(逃避评估情境)学习显示出最大的效应值。拒学调查结果强调了量身定制的干预措施的重要性:公立学校的高F4需要指导、同伴支持和课外活动来对抗社会经济拒学驱动因素。此外,将情感素养研讨会纳入课程,提供灵活的出勤选择,并通过同伴指导或教师签到营造支持性环境,可以抵消情感孤立和痛苦,在述情障碍升级之前主动解决其根源和拒绝诱因。
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引用次数: 0
Short-Term Effects of Hospital Schooling on the Resilience of Hospitalised Children. 医院教育对住院儿童心理弹性的短期影响。
Q2 Social Sciences Pub Date : 2025-07-15 eCollection Date: 2025-01-01 DOI: 10.5334/cie.172
Ana Padillo-Andicoberry, Francisco de Asís Díaz-Beato, Encarnación Sánchez-Lissen, Clara Romero-Pérez

Stresses related to illness, hospitalisation, and the disruption of educational activities and daily routines often have a negative impact on children, with panic situations or anxiety states being the most frequent manifestations. This study explores whether participation in routine hospital school activities is associated with short-term changes in children's resilience during hospitalisation. The present study aimed to examine the resilience dimensions upon entering and leaving the hospital school and to analyse whether the curriculum-based activities and other parameters related to disease and hospitalisation could influence children's resilience evolution. A prospective study was conducted with 52 children (31 girls and 21 boys) aged nine to 14 years, who attended the hospital school. The average attendance was one week. The School Resilience Scale for children, which includes five dimensions, was used at admission to the hospital school and before hospital discharge. An adapted visual Likert scale was repeatedly applied after school provision to assess children's satisfaction with the curriculum-based activities. Upon admission, the resilience percentile was 50.19, improving to 63.40 before discharge (p = 0.022). This improvement was higher in children who attended more than three days of school (p = 0.014). Enjoyment of activities (p = 0.029) and the perception that school lessons helped the children not to worry about illness (p = 0.045) were the only variables associated with the SRS improvement. The observed results suggest that educational activities provided in the hospital school during the evaluated period can positively enhance resilience in hospitalised children.

与疾病、住院以及教育活动和日常生活中断有关的压力往往对儿童产生负面影响,最常见的表现是恐慌或焦虑状态。本研究探讨参与常规医院学校活动是否与住院期间儿童弹性的短期变化有关。本研究旨在检验进入和离开医院学校时的弹性维度,并分析基于课程的活动和与疾病和住院有关的其他参数是否会影响儿童的弹性进化。对在医院学校就读的52名9至14岁儿童(31名女孩和21名男孩)进行了一项前瞻性研究。平均出勤率是一周。儿童学校适应能力量表包括五个维度,在入院时和出院前使用。一个适应视觉李克特量表在学校提供后反复应用,以评估儿童对课程活动的满意度。入院时恢复百分位数为50.19,出院前恢复百分位数为63.40 (p = 0.022)。在上学超过三天的儿童中,这种改善更高(p = 0.014)。活动的乐趣(p = 0.029)和学校课程帮助孩子不担心疾病的认知(p = 0.045)是与SRS改善相关的唯一变量。观察结果表明,在评估期间,医院学校提供的教育活动对住院儿童的心理弹性有积极的促进作用。
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引用次数: 0
Strengthening Professional Collaboration and Expertise: Implementing and Sustaining a Hospital School Community of Practice. 加强专业合作和专业知识:实施和维持医院学校实践社区。
Q2 Social Sciences Pub Date : 2025-07-09 eCollection Date: 2025-01-01 DOI: 10.5334/cie.165
Miranda Field, Heather Lewis

This practice-based intervention paper describes the design and implementation of a Community of Practice (CoP) intervention for hospital school professionals across three hospital sites in Saskatchewan, Canada. The intervention consisted of four structured sessions per academic year, two mandatory and two optional, offered during school division professional development days. Each session included facilitated dialogue, guest speakers, collaborative planning, and resource sharing tailored to the realities of hospital-based and inclusive education. Structured using Wenger's theory of social learning and reported following the GREET (Guideline for Reporting Evidence-based practice educational interventions and Teaching) framework, the CoP was conducted from September 2016 through June 2021. It involved elementary and secondary teachers from hospital schools, complex needs programs, mainstream schools, and student teachers, totaling between 7 and 11 participants annually. The intervention aimed to address the unique professional development needs of hospital teachers, mitigate professional isolation, enhance interdisciplinary collaboration, and support evidence-informed practices tailored to students aged 5-17 with complex medical and mental health needs. Data were collected through attendance records, facilitator notes, participant feedback, and reflective forms. Analysis employed a thematic approach using deductive alignment with predefined learning objectives and inductive methods to identify themes. Results indicated the CoP effectively fostered relational trust, professional renewal, adaptable resource co-creation, and sustained engagement despite systemic and bureaucratic constraints. Knowledge translation efforts included podcast interviews, conference presentations, and field trips to showcase and disseminate the CoP model. Recommendations include integrating robust evaluation frameworks at the intervention outset. This intervention provides valuable insights for replicating CoP models, the intervention, within similar interdisciplinary education-healthcare contexts.

这篇基于实践的干预论文描述了加拿大萨斯喀彻温省三家医院的医院学校专业人员的实践社区(CoP)干预的设计和实施。干预包括每学年四次结构化会议,两次强制性和两次可选,在学校部门专业发展日提供。每次会议都包括促进对话、嘉宾演讲、协作规划和资源共享,以适应以医院为基础的全纳教育的现实。CoP采用温格的社会学习理论,并按照GREET(报告循证实践教育干预和教学指南)框架进行报告,于2016年9月至2021年6月进行。它涉及来自医院学校、复杂需求项目、主流学校和学生教师的中小学教师,每年总共有7到11名参与者。该干预措施旨在解决医院教师独特的专业发展需求,减轻专业隔离,加强跨学科合作,并支持针对具有复杂医疗和心理健康需求的5-17岁学生的循证实践。通过出勤记录、引导者笔记、参与者反馈和反思表格收集数据。分析采用主题方法,使用演绎对齐与预定义的学习目标和归纳方法来确定主题。结果表明,尽管受到体制和官僚主义的制约,CoP有效地促进了关系信任、专业更新、适应性资源共同创造和持续参与。知识翻译工作包括播客访谈、会议演讲和实地考察,以展示和传播CoP模型。建议包括在干预一开始就整合强有力的评价框架。该干预措施为在类似的跨学科教育-医疗保健环境中复制CoP模型(干预措施)提供了有价值的见解。
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引用次数: 0
A Comparative Analysis of the Protection of the Rights of Childhood Cancer Survivors to Education Under Special Education Law. 特殊教育法下儿童癌症幸存者受教育权保护之比较分析。
Q2 Social Sciences Pub Date : 2025-04-30 eCollection Date: 2025-01-01 DOI: 10.5334/cie.137
Margaret Flood, Lisa Carey

Access to equitable education for children treated for cancer is of growing international concern across education, medicine, and related fields. Neurocognitive late effects of childhood cancer and treatment are well established. This impact on cognition results in difficulties with thinking, learning, peer-relationships, and quality of life. Formalized In-School Supports (ISS) can ameliorate the negative impacts of neurocognitive late effects, yet the literature suggests that children treated for cancer often have difficulty accessing these services. This paper reviews the ISS legislation of eight countries regarding protections offered to children treated for cancer and evidence of access to ISS within the literature. The purpose of this review was to look for common barriers for children treated with cancer accessing educational support through ISS. This review identifies gaps between ISS student-focused disability legislation, and practice to inform positive policy change.

为接受癌症治疗的儿童提供公平的教育是教育、医学和相关领域日益受到国际关注的问题。儿童癌症的神经认知晚期效应和治疗已经得到了很好的证实。这种对认知的影响导致思考、学习、同伴关系和生活质量方面的困难。正式的校内支持(ISS)可以改善神经认知晚期效应的负面影响,但文献表明,接受癌症治疗的儿童往往难以获得这些服务。本文回顾了八个国家关于为接受癌症治疗的儿童提供保护的ISS立法以及文献中获得ISS的证据。本综述的目的是寻找通过ISS获得教育支持的癌症治疗儿童的常见障碍。本综述确定了ISS以学生为中心的残疾立法与实践之间的差距,以告知积极的政策变化。
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引用次数: 0
Growing Up with Haemophilia: Quality of Life and School Functioning of a Group of Mexican Adolescents. 成长与血友病:一组墨西哥青少年的生活质量和学校功能。
Q2 Social Sciences Pub Date : 2025-03-21 eCollection Date: 2025-01-01 DOI: 10.5334/cie.148
Maricela Osorio-Guzmán, Carlos Prado-Romero, Santa Parrello

Haemophilia, like many other chronic rare diseases, causes limitations to daily activities, stunting the growth and impairing the quality of life as well as the psychosocial functioning and education of those affected. However, these consequences are distributed differently among those affected depending on the available contextual resources. The aim of this study was to analyse the variables associated with the academic functioning and quality of life of a group of 57 Mexican adolescents ( x ¯ = 14,16 years old; SD = 1,91) suffering from haemophilia, in order to identify specific protective factors. Two tools were employed, an ad hoc questionnaire to collect general data and the Paediatric Quality of Life Questionnaire (PedsQL). The participants reported repercussions such as pain (75.4%), having difficulties walking (19.3%) and building relationships with other adolescents (17.5%), missed school days (78.9%), and/or having trouble keeping up with academic activities (38.6%). Adolescents with Type A Haemophilia displayed higher levels on the scales investigating social relations (t = 2,356; p < 0,05; δ = 1,44), academic functioning (t = 3,713; p < 0,01; δ = 2,27), psychosocial health (t = 2,561; p < 0,05; δ = 1,56), and total health-related quality of life (HRQoL) (t = 2,467; p < 0,05; δ = 1,49) than their peers with Type B. The results indicate that haemophilia has an impact on the adolescents' global development and their academic performance; however, this impact is reduced by the presence of some of contextual variables/resources.

血友病与许多其他慢性罕见疾病一样,对患者的日常活动造成限制,阻碍其生长,损害其生活质量以及心理社会功能和教育。然而,这些后果在受影响人群中的分布是不同的,这取决于可用的环境资源。本研究的目的是分析与57名墨西哥青少年(x¯= 14,16岁;SD = 1,91)的血友病患者,以确定特定的保护因素。采用了两种工具,一种是收集一般数据的特别问卷,另一种是儿科生活质量问卷(PedsQL)。参与者报告了诸如疼痛(75.4%)、行走困难(19.3%)和与其他青少年建立关系(17.5%)、缺课(78.9%)和/或跟不上学业活动(38.6%)等影响。患有A型血友病的青少年在调查社会关系的量表上表现出更高的水平(t = 2356;P < 0.05;δ = 1,44),学术功能(t = 3,713;P < 0.01;δ = 2,27)、心理健康(t = 2,561;P < 0.05;δ = 1,56)和总体健康相关生活质量(HRQoL) (t = 2,467;P < 0.05;δ = 1,49),结果表明血友病对青少年的整体发展和学业成绩有影响;但是,由于存在一些上下文变量/资源,这种影响会减少。
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引用次数: 0
Pathways to School Reentry for Children and Young People with a Medical or Mental Health Condition: An International Delphi Study. 有医疗或心理健康问题的儿童和青少年重返学校的途径:一项国际德尔菲研究。
Q2 Social Sciences Pub Date : 2025-03-05 eCollection Date: 2025-01-01 DOI: 10.5334/cie.159
Michele Capurso, Valentina Moracci, Simone Borsci

Prolonged school absences among children and young people hospitalized due to medical or mental health conditions can significantly disrupt their social and academic development. This study addresses the critical process of reintegrating these learners into their school environments and develops a comprehensive, consensus-based model to facilitate successful school reentry. Utilizing the Delphi method, the research collected insights from 56 experts across 18 countries, representing education, healthcare, and academia, over three rounds of consultation between 2022 and 2024. The findings identify key temporal phases and actions crucial for planning and executing reentry strategies. The resulting models (one for physical health conditions and another for mental health conditions) offer structured guidance, emphasizing multidisciplinary collaboration, context-specific adaptations, and the active participation of the students in the process. The study underscores the need for tailored interventions that address the unique challenges faced by each learner, emphasizing the importance of integrating educational, healthcare, and social support systems with the local culture and values of children and their families to foster resilience and successful reintegration.

由于医疗或精神健康状况住院的儿童和青年长期缺课可能严重破坏他们的社会和学业发展。本研究解决了这些学习者重新融入学校环境的关键过程,并开发了一个全面的、基于共识的模型,以促进成功的重返学校。该研究利用德尔菲法,在2022年至2024年的三轮咨询中收集了来自18个国家的56名专家的见解,这些专家代表了教育、医疗和学术界。调查结果确定了对规划和执行重返大气层战略至关重要的关键时间阶段和行动。由此产生的模型(一个用于身体健康状况,另一个用于精神健康状况)提供了结构化的指导,强调多学科合作、具体环境的适应以及学生在这一过程中的积极参与。该研究强调了针对每个学习者所面临的独特挑战采取量身定制的干预措施的必要性,强调了将教育、医疗保健和社会支持系统与儿童及其家庭的当地文化和价值观相结合的重要性,以培养他们的适应能力和成功的重返社会。
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引用次数: 0
Negotiating Access to Health and Wellbeing Support in Schools for Young People with Chronic Health Conditions in English Secondary Schools: A Qualitative Multi-Informant Study. 英国中学慢性健康问题青少年在学校获得健康和福利支持的谈判:一项多信息质性研究
Q2 Social Sciences Pub Date : 2025-02-17 eCollection Date: 2025-01-01 DOI: 10.5334/cie.149
Lauren Herlitz, Matthew Jay, Claire Powell, Ruth Gilbert, Ruth Blackburn

Background: Schools have a statutory duty to support pupils with medical conditions in England, but limited evidence exists on how support is managed in practice. This study explores young people's, caregivers', and school staff's experiences of access to health and wellbeing support in state secondary schools for pupils with chronic health conditions.

Method: We used an online qualitative survey design: one for young people or caregivers, and one for staff. Data was analysed using framework analysis, applying candidacy theory.

Results: Twelve young people, 33 caregivers, and 18 secondary school staff responded to the survey. Participants described highly varied offers of health and wellbeing support, with caregivers and young people often unaware of what support schools could feasibly provide. Participants highlighted communication gaps and a lack of collaborative work between primary or secondary healthcare and schools. Many caregivers and young people reported that staff had insufficient understanding of their condition(s), had not trusted or believed them when they had explained their health needs, or had left them out of conversations about support. School staff also noted communication difficulties with caregivers. Many caregivers and staff described aspects of the secondary school setting that prohibited inclusivity including insufficient staff time, high pupil numbers, a focus on national attainment measures, and attendance targets.

Conclusion: The support options that young people with chronic conditions can feasibly be offered should be clarified in government guidance. Further research is needed on the prevalence/utility of individual healthcare plans and on procedures to ensure that pupils with medical conditions are justly supported.

背景:在英格兰,学校有法定义务为有医疗条件的学生提供支持,但关于如何在实践中管理支持的证据有限。本研究探讨了年轻人、照顾者和学校工作人员在公立中学为患有慢性疾病的学生提供健康和福利支持方面的经验。方法:我们采用在线定性调查设计:一份针对年轻人或照顾者,一份针对工作人员。采用候选理论,采用框架分析法对数据进行分析。结果:12名青少年、33名护理人员和18名中学工作人员参与了调查。与会者描述了各种各样的健康和福利支持,照顾者和年轻人往往不知道学校可以切实提供什么支持。与会者强调了初级或中级保健与学校之间的沟通差距和缺乏协作工作。许多照护者和年轻人报告说,工作人员对他们的情况了解不足,当他们向他们解释自己的健康需求时,工作人员不相信或不相信他们,或者不让他们参与有关支持的谈话。学校工作人员还注意到与照顾者的沟通困难。许多护理人员和工作人员描述了中学环境中禁止包容性的方面,包括工作人员时间不足、学生人数过多、对国家成就措施的关注以及出勤目标。结论:应在政府指导中明确对青少年慢性病患者可行的支持选择。需要进一步研究个人保健计划的普及/效用,以及确保有医疗条件的学生得到公正支持的程序。
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Continuity in Education
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