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Sleeping Patterns in Children with Developmental Disabilities 发育障碍儿童的睡眠模式
Q4 Medicine Pub Date : 2021-10-01 DOI: 10.26407/jrtdd2021.1.42
Amra Saletovic, Arnela Pašalić, H. Memišević
ntroduction: Sleep is one of the most important components of overall health. Children with developmental disabilities are at a higher risk of having sleep problems. Purpose: The goal of the present study is to compare sleep patterns of children with developmental disabilities with those of typically developing children. In particular, we examined whether children with an intellectual disability (ID), children with an autism spectrum disorder (ASD) and typically developing children differ in sleep duration, number of night’s waking, screen time (time spent on smartphones, tablets, TV), and outdoor activities. Methods: The sample for this study consisted of 114 children (34 children with ASD, 40 children with ID and 40 typically developing children) aged 2 to 14 years (mean age= 6.4 years, SD = 3.0). Information on children’s sleep patterns was obtained through an online survey completed by the parents of the children. We also collected information regarding the strategies parents use to settle their children for sleep, as well as information regarding screen time and outdoor activities. Results: The results of this study indicate that sleep duration was shortest for children with ID and longest for children without developmental disabilities. Another finding in this study is that screen time and not the outdoor activities was associated with sleep duration. Children with ASD were more likely to use melatonin to fall asleep, while the children with ID were more likely to use medications. Conclusion: Children with ID have shorter sleep duration than children with ASD and typically developing children. Parents have several cognitive and behavioural strategies at their disposal to improve their children’s sleep.
睡眠是整体健康最重要的组成部分之一。有发育障碍的儿童有睡眠问题的风险更高。目的:本研究的目的是比较发育障碍儿童与正常发育儿童的睡眠模式。特别是,我们研究了智力障碍(ID)儿童、自闭症谱系障碍(ASD)儿童和正常发育儿童在睡眠时间、夜间醒着的次数、屏幕时间(花在智能手机、平板电脑、电视上的时间)和户外活动方面是否存在差异。方法:114例2 ~ 14岁儿童(平均年龄6.4岁,SD = 3.0),其中ASD儿童34例,ID儿童40例,典型发育儿童40例。有关儿童睡眠模式的信息是通过儿童父母完成的在线调查获得的。我们还收集了关于父母用来让孩子入睡的策略,以及关于屏幕时间和户外活动的信息。结果:本研究结果表明,有发育障碍儿童睡眠时间最短,无发育障碍儿童睡眠时间最长。这项研究的另一个发现是,与睡眠时间有关的是屏幕时间,而不是户外活动。患有自闭症谱系障碍的儿童更有可能使用褪黑激素入睡,而患有自闭症谱系障碍的儿童更有可能使用药物。结论:ID患儿睡眠时间短于ASD患儿和正常发育患儿。父母有几种认知和行为策略来改善孩子的睡眠。
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引用次数: 3
Impact of Physical Exercise on Psychological Well-being and Psychiatric Disorders 体育锻炼对心理健康和精神障碍的影响
Q4 Medicine Pub Date : 2020-12-25 DOI: 10.26407/2020jrtdd.1.39
E. Parra, A. Arone, S. Amadori, F. Mucci, Stefania Palemero, D. Marazziti
Background: Physical exercise is one of the major features of human health, as it is involved in several physiological processes and related to major benefits in reducing body fat, myocardial infarction, hypertension and insulin resistance risk. Physical exercise also plays a positive role in achieving psychological well-being that can be defined as a state of happiness and serenity, with low levels of distress, overall good physical and mental health and outlook and a good quality of life. Aim of the paper: To review the positive effects of physical activity on psychological well-being and its possible neurobiological underpinnings, as well as its impact on several neuropsychiatric disorders, such as depression, anxiety, eating disorders, obsessive-compulsive disorder, post-traumatic stress disorder, attention-deficit/hyperactivity disorder, autism spectrum disorders, schizophrenia and some neurodegenerative disorders such as Alzheimer’s and Parkinson’s disease. Methods: The PubMed, Scopus, Embase, PsycINFO and Google Scholar databases were searched for full text articles published in the latest thirty years on the benefits that physical activity exerts on psychological well-being. Results: An impressive amount of data support the positive role of physical activity on psychological well-being and a large amount of research has focused on its beneficial effects in improving the symptoms of the main neuropsychiatric disorders, while highlighting its usefulness as an adjuvant option to psychopharmacological treatments and psychotherapy. In particular, exercise would deeply affect CNS morphology and function, through heterogeneous mechanisms including, amongst the others, the production of hormones, neurotransmitters and neurotrophins, the promotion of angiogenesis and neuroplasticity, and the regulation of gene expression. Conclusion: Literature indicates that the promotion of physical activity may work like an adjunctive and/or augmentation strategy to enhance drugs or psychological treatments, or even as an alternative option in major depression.
背景:体育锻炼是人类健康的主要特征之一,因为它涉及几个生理过程,并在降低体脂、心肌梗死、高血压和胰岛素抵抗风险方面具有重要益处。体育锻炼在实现心理健康方面也发挥着积极作用,心理健康可以被定义为一种幸福和平静的状态,痛苦程度较低,身心健康和前景总体良好,生活质量良好。本文的目的:回顾体育活动对心理健康的积极影响及其可能的神经生物学基础,以及它对几种神经精神障碍的影响,如抑郁、焦虑、饮食障碍、强迫症、创伤后应激障碍、注意力缺陷/多动障碍、自闭症谱系障碍,精神分裂症和一些神经退行性疾病,如阿尔茨海默氏症和帕金森氏症。方法:检索PubMed、Scopus、Embase、PsycINFO和Google Scholar数据库中最近三十年发表的关于体育活动对心理健康的益处的全文文章。结果:大量数据支持体育活动对心理健康的积极作用,大量研究集中在其改善主要神经精神障碍症状的有益作用上,同时强调其作为心理药理学治疗和心理治疗的辅助选择的有用性。特别是,运动会通过多种机制深入影响中枢神经系统的形态和功能,其中包括激素、神经递质和神经营养因子的产生、血管生成和神经可塑性的促进以及基因表达的调节。结论:文献表明,促进身体活动可能是一种辅助和/或强化策略,以加强药物或心理治疗,甚至是抑郁症的一种替代选择。
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引用次数: 5
The relationship of executive functions with academic competency and social skills in adolescents with intellectual disability 智力残疾青少年执行功能与学业能力和社会技能的关系
Q4 Medicine Pub Date : 2020-12-25 DOI: 10.26407/2020jrtdd.1.34
H. Memišević, Inga Biscevic
Introduction: Adolescence is characterised as a period of further development and maturation of higher executive functions (EF). It is well established that EF play an important role in social skills and academic competence of typically developing adolescents. Purpose: The goal of this study was to examine the relationship between executive functions (EF) and academic competency and social skills in adolescents with a mild intellectual disability. In particular, we were interested to examine which EF have the greatest impact on social skills and academic competency. Methods: EF were measured with the Behaviour Rating Inventory of Executive Functions (BRIEF), and social and academic competences were measured with the Social Skills Rating System (SSRS). The sample for this study consisted of 44 adolescents with mild intellectual disability aged 15-18 years old (mean age 16.7 years, SD1.4). Results: The results of this study clearly pointed to the strong relationship between these constructs. Of all EF, planning had the strongest impact on academic success, and monitoring had the strongest impact on social skills. Conclusion: EF are susceptible to training effects, we thus propose early interventions in these domains in order to increase the social and academic competence of persons with an intellectual disability.
青春期是高级执行功能(EF)进一步发展和成熟的时期。EF在正常发育青少年的社交技能和学习能力方面发挥着重要的作用。目的:本研究旨在探讨轻度智力障碍青少年的执行功能与学业能力和社交技能的关系。我们特别感兴趣的是,哪些英孚教育对社交技能和学术能力的影响最大。方法:用执行功能行为评定量表(BRIEF)测量EF,用社会技能评定系统(SSRS)测量社交能力和学术能力。本研究的样本包括44名15-18岁的轻度智力障碍青少年(平均年龄16.7岁,SD1.4)。结果:本研究的结果清楚地指出了这些构念之间的密切关系。在所有EF中,计划对学业成功的影响最大,而监控对社交技能的影响最大。结论:EF容易受到训练效应的影响,因此我们建议在这些领域进行早期干预,以提高智力残疾者的社会和学术能力。
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引用次数: 0
Dual Diagnosis in Mental Health and the Assessment and Treatment for People with Intellectual Disabilities 心理健康的双重诊断与智力残疾者的评估与治疗
Q4 Medicine Pub Date : 2020-12-25 DOI: 10.26407/2020jrtdd.1.35
R. Lakhan
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引用次数: 0
Caregivers’ Perceptions of Family Quality of Life of Individuals with Developmental Disabilities Comorbid with Dementia: A Pilot Study 照顾者对发展性残疾伴痴呆患者家庭生活质量的认知:一项初步研究
Q4 Medicine Pub Date : 2020-12-25 DOI: 10.26407/2020jrtdd.1.38
C. Marsack-Topolewski, P. Samuel
Introduction: Although individuals with intellectual/ developmental disabilities (I/DD) are living longer than in the past, they also are exposed to age-related changes in health and well-being. They are prone to acquire dementia that often manifests earlier and more frequently than in the general population. However, there is sparse knowledge on the daily challenges that affect the quality of life of the individuals with I/DD and comorbid dementia and their family caregivers. Aim: This pilot study examined strengths and challenges of individuals with dual diagnoses of I/DD and dementia using the family quality of life (FQOL) framework. Method: Cross-sectional data was gathered from a convenience sample of family caregivers using a web-based electronic survey. Results: The variables of interest in this study were the levels of importance and satisfaction attributed to the nine FQOL domains, and overall FQOL. The mean level of importance was higher than the associated ratings of satisfaction in eight of the nine domains, with an overall importance mean of 4.15 and satisfaction mean of 3.28. Analysis of the open-ended comments indicated that the negative impact of social isolation, compound caregiving, and dynamically changing caregiving needs on overall FQOL was balanced by participants’ values and beliefs. Implications for Practice: The discrepancies in the FQOL domains pertaining to formal and informal services and social supports elucidate a need to empower families with high caregiving needs through research, practice and policy. Conclusions: Providers should be cognizant of the needs of individuals with I/DD and dementia comorbid, as well as the needs of their family caregivers.
引言:尽管智力/发育障碍(I/DD)患者的寿命比过去更长,但他们也面临着与年龄相关的健康和福祉变化。他们容易患上痴呆症,这种痴呆症通常比普通人群更早、更频繁地出现。然而,关于影响I/DD和共病痴呆患者及其家庭护理人员生活质量的日常挑战,知之甚少。目的:这项试点研究使用家庭生活质量(FQOL)框架检查了I/DD和痴呆双重诊断个体的优势和挑战。方法:使用基于网络的电子调查从家庭照顾者的方便样本中收集横断面数据。结果:本研究感兴趣的变量是九个FQOL领域的重要性和满意度,以及总体FQOL。在九个领域中,有八个领域的平均重要性水平高于相关的满意度评级,总体重要性平均值为4.15,满意度平均值为3.28。对开放式评论的分析表明,社会孤立、复合护理和动态变化的护理需求对整体FQOL的负面影响是由参与者的价值观和信念平衡的。对实践的影响:与正式和非正式服务和社会支持有关的FQOL领域的差异表明,有必要通过研究、实践和政策赋予有高度护理需求的家庭权力。结论:提供者应该认识到I/DD和痴呆合并症患者的需求,以及他们的家庭护理人员的需求。
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引用次数: 1
Reattach Therapy – its Efficacy in Treating Conduct Disorder – a Case Study 再连接疗法治疗品行障碍的疗效-个案研究
Q4 Medicine Pub Date : 2020-12-25 DOI: 10.26407/2020jrtdd.1.33
Ritu Chauhan
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引用次数: 0
Toward a Research Agenda on the Impact of Dementia upon Carers of Adults with Intellectual Disability 痴呆对智力残疾成人照护者影响的研究议程
Q4 Medicine Pub Date : 2019-09-08 DOI: 10.26407/2019jrtdd.1.18
M. Janicki, Nancy S. Jokenin, C. Marsack-Topolewski, S. Keller
The World Health Organization’s report, Dementia: A Public Health Priority, noted that the number of people affected by dementia will continue to increase and called for nations to address the impact of dementia upon their populations. This included considering the impact on carers providing for adults with intellectual disability affected by Alzheimer’s disease and related dementias. Within the context of the USA’s dementia plan, a national group has advocated that the needs and interests of adults with dementia and their carers be taken into account when dementia-related research is undertaken. In preparation for the second national summit on caregiving and dementia to be held in the USA in 2020, this article describes an effort undertaken by this national group to identify needed research related to carers of adults with intellectual disability. The group identified three focal areas for the summit to consider: the effect of behavioral and psychological symptoms of dementia on carers, challenges for carers of adults with intellectual disability when dementia becomes evident, and barriers that carers face when accessing supports. A list of recommended topics to be researched is provided.
世界卫生组织的报告《痴呆症:公共卫生优先事项》指出,受痴呆症影响的人数将继续增加,并呼吁各国解决痴呆症对其人口的影响。这包括考虑对照顾受阿尔茨海默病和相关痴呆影响的智力残疾成年人的护理人员的影响。在美国痴呆症计划的背景下,一个国家团体主张,在进行痴呆症相关研究时,应考虑痴呆症成年人及其护理人员的需求和利益。为筹备2020年在美国举行的第二届全国护理和痴呆症峰会,本文描述了该国家小组为确定与智障成年人护理人员相关的必要研究所做的努力。该小组确定了峰会需要考虑的三个重点领域:痴呆症的行为和心理症状对护理人员的影响,当痴呆症变得明显时,智障成年人的护理人员面临的挑战,以及护理人员在获得支持时面临的障碍。提供了一份待研究的推荐主题列表。
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引用次数: 1
How satisfaction and self-efficacy for inclusive education matter for Swedish special educators’ assessment practices of students with intellectual disability 全纳教育的满意度和自我效能感如何影响瑞典特殊教育者对智障学生的评估实践
Q4 Medicine Pub Date : 2019-09-08 DOI: 10.26407/2019jrtdd.1.17
M. Reichenberg, Kent Löfgren
Introduction: Assessment of learning outcomes is integral to both mainstream and special needs comprehensive schools for students with intellectual disabilities (ID). However, assessment of students with ID poses a challenge both to special educators and their cooperation with mainstream teachers in cases of fully included students with ID with an individualised curriculum. Objectives: We describe and predict the type of assessment practices Swedish special educators in special needs comprehensive schools use for assessment of students with ID. Methods: Swedish special educators (n = 148) were recruited using a non-random sample. To analyse our data, we used the item response model. In addition, we analysed special educators’ expected satisfaction with assessments using linear regression and logistic regression. Results: The study suggests that special educators had the greatest difficulty conducting multiple choice and written assessments. Moreover, the study suggests that satisfaction with assessment and self-efficacy for inclusion matters for predicting types of assessment practice. In addition, the study reports an interaction between job satisfaction for moderately experienced special educators that predicts both types of assessment practice and the special educators’ satisfaction with assessment. Conclusion: We demonstrate how assessment satisfaction, self-efficacy, job satisfaction, and experience matter for special educators’ assessment of students with ID.
简介:评估学习成果是为智障学生开设的主流和特殊需求综合学校不可或缺的一部分。然而,对ID学生的评估对特殊教育工作者以及他们与主流教师的合作都构成了挑战,因为在个性化课程中完全纳入了ID学生。目的:我们描述并预测特殊需求综合学校的瑞典特殊教育工作者用于评估ID学生的评估实践类型。方法:使用非随机样本招募瑞典特殊教育者(n=148)。为了分析我们的数据,我们使用了项目响应模型。此外,我们使用线性回归和逻辑回归分析了特殊教育者对评估的预期满意度。结果:研究表明,特殊教育者在进行多项选择和书面评估时难度最大。此外,该研究表明,对评估的满意度和包容性的自我效能感对预测评估实践的类型很重要。此外,该研究报告了经验丰富的特殊教育工作者的工作满意度与特殊教育工作者对评估的满意度之间的互动关系,该互动关系预测了两种类型的评估实践。结论:我们展示了评估满意度、自我效能感、工作满意度和经验对特殊教育者评估ID学生的影响。
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引用次数: 0
Environmental Barriers and Facilitators to Participation of People with Autism Spectrum Disorders: stakeholders’ perspective 自闭症谱系障碍患者参与的环境障碍和促进因素:利益相关者的观点
Q4 Medicine Pub Date : 2019-09-08 DOI: 10.26407/2019jrtdd.1.19
Ivana Vasilevska Petrovska, A. Giannakopoulou, A. Giannakopoulou, A. Winstanley, R. Miletto, Georgeta Constanţa Roşca, Biserka Ivanova, Vasiliki Kaisa, Vladimir Trajkovski
Introduction: Social participation is a vital construct in inclusive philosophies and practices across communities. People with Autism Spectrum Disorders have been facing autism-related and environmental participation restrictions, placing them at risk of social exclusion and institutionalization. A multinational project has been developed in order to identify vital facilitating factors and establish PCP system for persons with ASD and tools for facilitators, as well as a ‘master class’ course for facilitators in several south-eastern European countries. The aim of the study is to identify the most common barriers to participation faced by individuals with ASD and to highlight facilitating factors that can be utilised in development of an autism specific PCP approach. Methodology: a mixed methodology employing concurrent qualitative-quantitative triangulation design was used. The participants consisted of four groups of stakeholders: young people with ASD, parents & family members of children/young people with ASD, teachers, and professionals. The data was collected via interviews and questionnaires with participants from the mentioned groups, using closed-ended and open-ended questions. Results: thematic analysis of the information gathered from the interviews and questionnaires was detailed by topics. Each topic was viewed with regards to barriers and facilitators to social participation. Conclusions: people with ASD have unique support needs that are qualitatively different from other special needs and communities are lacking specific understanding and approaches in meeting those needs. Insights from key stakeholders’ view point represents indispensable considerations in Person-Centred support for overcoming barriers to social participation and promoting health, equity and well-being of persons with ASD.
社会参与是跨社区的包容性哲学和实践的重要组成部分。自闭症谱系障碍患者一直面临着与自闭症相关的环境参与限制,使他们面临社会排斥和机构化的风险。为确定重要的促进因素,为自闭症谱系障碍患者建立PCP系统,为调解员提供工具,制定了一个多国项目,并在几个东南欧国家为调解员开设了“大师班”课程。这项研究的目的是确定自闭症患者参与的最常见障碍,并强调可用于开发自闭症特异性PCP方法的促进因素。方法:采用混合方法,同时采用定性-定量三角测量设计。参与者由四组利益相关者组成:自闭症青少年、自闭症儿童/青少年的父母和家庭成员、教师和专业人士。数据是通过对上述群体的参与者进行访谈和问卷调查收集的,采用封闭式和开放式问题。结果:对访谈和问卷收集的信息进行专题分析,按主题进行详细分析。每个专题都从社会参与的障碍和促进因素方面进行了审议。结论:ASD患者有独特的支持需求,与其他特殊需求有质的不同,社区在满足这些需求方面缺乏具体的理解和方法。在以人为本的支持中,从关键利益攸关方的角度提出的见解是不可或缺的考虑因素,有助于克服社会参与障碍,促进自闭症谱系障碍患者的健康、公平和福祉。
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引用次数: 4
HOW TO TAILOR A TRANSDIAGNOSTIC INTERVENTION TO THE INDIVIDUAL STATE OF MIND OF INDIVIDUALS WITH ASD? 如何根据ASD患者的个体精神状态进行跨诊断干预?
Q4 Medicine Pub Date : 2019-02-16 DOI: 10.26407/2018JRTDD.1.14
P. Bartholomeus
INTRODUCTION: ReAttach is a trans-diagnostic tailored intervention based on a conceptualization model. The intervention includes arousal-regulation, multiple sensory processing, conceptualization, affective mentalization and associative memory formation (active learning). Autism Spectrum Disorder is a clinical diagnosis for a heterogeneous group of individuals who experience pervasive neurodevelopmental problems including perceiving the world in a fragmented way: the pre-conceptual state of mind. Tailored ReAttach sessions support individuals with ASD to develop a coherent sense of the self and the world. OBJECTIVE: The aim of this article is to describe how a to tailor a ReAttach session to the individual state of mind of individuals with ASD. METHOD: ReAttach-C.A.T. is a Computer Adaptive Tool, built to assist therapists to map the individual state of mind before the start of ReAttach sessions. The instrument is in its early stage of development. RESULTS: A group of 52 patients with complex developmental challenges were interviewed by their ReAttach therapist, using the inclusive ReAttach-C.A.T. Mapping the individual state of mind in co-creation with the individual with ASD, makes sense and is helpful for a variety of reasons. It also sheds a new light on the Forms of Vitality of the co-creators.
简介:ReAttach是一种基于概念化模型的跨诊断量身定制的干预措施。干预包括唤醒调节、多重感觉处理、概念化、情感心理化和联想记忆形成(主动学习)。自闭症谱系障碍是对一群经历普遍神经发育问题的异质性个体的临床诊断,包括以碎片化的方式感知世界:概念前的精神状态。量身定制的ReAttach课程支持自闭症谱系障碍患者培养连贯的自我意识和世界意识。目的:本文的目的是描述如何根据ASD患者的个人精神状态定制ReAttach会话。方法:重新连接C。A.T.是一种计算机自适应工具,旨在帮助治疗师在ReAttach会话开始前绘制个人心理状态图。该仪器处于开发的早期阶段。结果:一组52名有复杂发育挑战的患者接受了ReAttach治疗师的访谈,使用了包容性ReAttach-C。A.T.在与自闭症谱系障碍患者的共同创作中,绘制个人的心态图是有意义的,并且有助于多种原因。它还为共同创作者的活力形式提供了新的视角。
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引用次数: 0
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Journal for ReAttach Therapy and Developmental Diversities
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