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The impact of COVID-19 on parents of autistic children with a particular focus on access to respite care 新冠肺炎对自闭症儿童父母的影响,特别关注获得临时护理的机会
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-05-24 DOI: 10.1108/aia-07-2022-0036
E. Cooke, M. Brenner, V. Smith
PurposeThis study aims to explore how the COVID-19 pandemic has impacted parents of autistic children and their families in Ireland.Design/methodology/approachA qualitative thematic analysis methodology was applied using semi-structured interviews. A total of 12 parents (ten mothers, one father and one grandfather speaking on behalf of a mother) of autistic children were asked how the COVID-19 pandemic impacted them and their autistic child with a particular focus on how it has impacted their access to respite care. Interviews were completed remotely from July 2021 to October 2021.FindingsData analysis identified four themes that reflect an adverse pandemic impact. These were: world gone; alone and isolated; constantly fighting for help; and negative and positive impact of COVID-19 on child and family. Two parents reported positive outcomes of the pandemic such as social distance requirements. Five parents (42%) reported an increase in the amount of respite received. Three parents (25%) reported a decrease and four (33%) parents reported no change in their access to respite.Research limitations/implicationsCOVID-19 has turned a spotlight on mental health for politicians, policymakers and the public and provides an opportunity to make mental health a higher public health priority for autistic children and their families.Originality/valueThis study highlights the need for access to respite for autistic children and for respite services to be responsive to the ongoing needs, in particular, the mental health needs of autistic children and their family, particularly in a crisis situation.
目的本研究旨在探讨新冠肺炎大流行如何影响爱尔兰自闭症儿童的父母及其家庭。设计/方法论/方法采用半结构化访谈的定性主题分析方法。共有12名自闭症儿童的父母(10名母亲、1名父亲和1名祖父代表母亲发言)被问及新冠肺炎疫情对他们和他们的自闭症儿童产生了怎样的影响,特别关注它对他们获得临时护理的影响。访谈于2021年7月至2021年10月远程完成。FindingsData分析确定了四个主题,反映了疫情的不利影响。这些是:世界消失了;单独和孤立;不断地寻求帮助;新冠肺炎对儿童和家庭的负面和正面影响。两位家长报告了疫情的积极结果,如社交距离要求。五位家长(42%)报告说,获得的喘息时间有所增加。三名家长(25%)报告减少,四名家长(33%)报告他们获得喘息的机会没有变化。研究局限性/影响新冠肺炎使政治家、政策制定者和公众关注心理健康,并为自闭症儿童及其家人提供了将心理健康作为更高公共卫生优先事项的机会。独创性/价值这项研究强调了自闭症儿童获得喘息机会的必要性,以及喘息服务对持续需求的响应,特别是自闭症儿童及其家人的心理健康需求,特别是在危机情况下。
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引用次数: 0
Exploring intervention strategies to enhance face recognition abilities in adolescents with autism spectrum disorder: assessing the impact of verbalization and Navon tasks 探索提高自闭症谱系障碍青少年人脸识别能力的干预策略:评估言语化和Navon任务的影响
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-05-22 DOI: 10.1108/aia-03-2022-0011
Minje Kim, Kyong-Mee Chung, Eunsun Chung
PurposeThe purpose of this study is to examine the effectiveness of two intervention strategies – identifying the global letter of Navon letters and verbally describing a face – in improving face recognition abilities of adolescents with autism spectrum disorder (ASD).Design/methodology/approachA total of 15 adolescents with ASD and 15 typically developing (TD) adolescents participated in this study, which consisted of three experimental conditions: verbalization, Navon and control. Participants were presented with a target face for a short period of time, then completed a task specific to the condition in a counterbalanced order, followed by a face recognition task.FindingsThe results of this study showed no significant interaction effects between groups and conditions, either in accuracy or reaction time. However, TD adolescents performed better than ASD adolescents in terms of accuracy. In addition, the verbalization condition resulted in better performance with slower response times compared to the control condition.Originality/valueThese findings suggest that verbalization may be a useful strategy to enhance face recognition abilities in ASD and TD individuals.
目的本研究的目的是检验两种干预策略——识别Navon字母的全球字母和口头描述人脸——在提高自闭症谱系障碍(ASD)青少年的人脸识别能力方面的有效性本研究包括三个实验条件:言语化、Navon和对照。参与者在短时间内被呈现一张目标人脸,然后以平衡的顺序完成特定于该条件的任务,然后是人脸识别任务。结果这项研究的结果表明,无论是在准确性还是反应时间上,组和条件之间都没有显著的相互作用影响。然而,就准确性而言,TD青少年的表现要好于ASD青少年。此外,与控制条件相比,言语化条件具有更好的性能,响应时间较慢。原创性/价值这些发现表明,言语化可能是提高ASD和TD个体人脸识别能力的有用策略。
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引用次数: 0
Exploration of caregiver experience for children with ASD: an in-depth perspective 探究ASD儿童的照顾者体验:深度视角
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-05-22 DOI: 10.1108/aia-09-2022-0044
Neha Gupta, Manya Khanna, R. Garg, Vedantika Sethi, Shivangi Khattar, Purva Tekkar, Shwetha Maria, Muskan Gupta, Akash Saxena, Parul Gupta, Sara Ann Schuchert
PurposeThis study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are explored, including the feelings and thoughts of the parents/caregivers, such as the resilience experienced in their journey, how they coped with the challenges and also their positive experiences.Design/methodology/approachIn this study, these aspects of the caregiving experience are broadly probed using semi-structured interviews subjected to narrative analysis. Lastly, there is a focus on the role of therapist-led intervention, specifically, the Eye to I© intervention model and its contributions to the parent/caregiver experience.FindingsFindings from this study indicate that parents benefit from interventions that bridge gaps in skills and interpersonal communication which parents/caregivers feel they encounter in their day-to-day activities. Additionally, support groups for parents and caregivers could further address these issues.Originality/valueThis exploration reveals insights about the roles of societal structures and the caregiving journey.
目的探讨自闭症谱系障碍儿童照顾者的心理情绪和社会体验。本课程探讨了照顾经验的各个方面,包括父母/照顾者的感受和想法,例如他们在旅途中所经历的韧性,他们如何应对挑战以及他们的积极经历。设计/方法/方法在本研究中,使用半结构化访谈进行叙事分析,广泛探讨了护理经验的这些方面。最后,重点关注治疗师主导的干预的作用,特别是眼到我©干预模式及其对父母/照顾者体验的贡献。研究结果本研究的结果表明,父母可以从干预措施中受益,这些干预措施可以弥补父母/照顾者在日常活动中遇到的技能和人际沟通方面的差距。此外,父母和照顾者的支持小组可以进一步解决这些问题。原创性/价值这一探索揭示了社会结构和看护过程的作用。
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引用次数: 0
Autism and social media: a systematic review of the user experience 自闭症与社交媒体:对用户体验的系统回顾
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-05-17 DOI: 10.1108/aia-01-2023-0001
Nicholas Andrew Hudson, Jake M. Linnane, Kelly Rayner-Smith
PurposeSocial media use in autistic people has been identified as a potential avenue for less pressured social contact. Given shifts towards online socialisation, this study aims to systematically review the available literature on how autistic people experience and use social media.Design/methodology/approachA systematic review was carried out using the preferred reporting items for systematic reviews and meta-analyses system, with relevant literature reviewed and synthesised using a narrative approach. Inclusion criteria included adults and/or adolescents as the sole sample, a focus on autism and social media use as the sole/main topic.FindingsA total of 1,278 research studies were initially identified; following screening, 15 papers were reviewed. Studies demonstrated some support for the positive role social media can play and presented its use as a smart adaptation for the challenges of neurotypical socialising. For autistic people, social media may provide a balance between meeting the need to be connected to people without the pressure of managing aspects, such as tone of voice or body language.Research limitations/implicationsMost studies were questionnaire-based with substantial threats to validity. Samples were self-selecting, with autism status not always confirmed. Individual studies used a broad approach to the definition of social media, including online gaming and other online activities, precluding firm conclusions being made.Practical implicationsThere may be a Goldilocks “just right” level of social media contact that could maximise connectedness to others without impacting negatively on mental health, offline relationships and activities of daily living.Originality/valueThis paper presents a novel account of research from case studies and larger scale questionnaire studies.
目的自闭症患者使用社交媒体已被确定为减少压力的社交接触的潜在途径。鉴于向在线社交的转变,本研究旨在系统地回顾有关自闭症患者如何体验和使用社交媒体的现有文献。设计/方法/方法使用系统综述和荟萃分析系统的首选报告项目进行系统综述,并使用叙述方法对相关文献进行综述和综合。纳入标准包括成年人和/或青少年作为唯一样本,关注自闭症和社交媒体使用作为唯一/主要主题。发现最初共确定了1278项研究;筛选后,对15篇论文进行了综述。研究表明,社交媒体可以发挥积极作用,并将其作为应对神经正常社交挑战的一种聪明的适应手段。对于自闭症患者来说,社交媒体可以在满足与人联系的需求与管理方面(如语调或肢体语言)的压力之间提供平衡。研究局限性/含义大多数研究都是以问卷为基础的,有效性受到严重威胁。样本是自我选择的,自闭症状态并不总是得到证实。个别研究对社交媒体的定义采用了广泛的方法,包括在线游戏和其他在线活动,排除了得出确切结论的可能性。实际含义可能有一个“恰到好处”的社交媒体接触水平,可以最大限度地提高与他人的联系,而不会对心理健康、线下关系和日常生活活动产生负面影响。原创性/价值本文从案例研究和大规模问卷调查两个方面对研究进行了新颖的描述。
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引用次数: 1
Remote autism assessments – lessons learned from the Covid-19 pandemic: a service evaluation 远程自闭症评估——从Covid-19大流行中吸取的教训:一项服务评估
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-05-16 DOI: 10.1108/aia-08-2022-0043
John E. Hartley, J. Purrington, Gemma Hartley
PurposeThe COVID-19 pandemic has resulted in health services adapting the delivery of routine assessments, with many operating remotely. This paper aims to explore the lived experiences of individuals undertaking remote autism assessments during the COVID-19 pandemic.Design/methodology/approachA mixed-methods service evaluation was completed in an adult autism and neurodevelopmental service based in the north of England. A total of 24 participants, who had undergone remote autism assessments between March 2020 and July 2020, completed a questionnaire about their experiences. Thematic analysis was performed, and additional quantitative data were analysed descriptively to allow contextual information to be included.FindingsThe evaluation identified three main themes. The first, practical and sensory issues of remote assessment, indicated that internet connectivity problems were common and sometimes impeded a successful assessment. Additionally, participants identified some elements of the videocall impacted their sensory sensitivities. The second theme, emotional responses to remote assessment, demonstrated relief and exhaustion to be common following sessions. The ability to complete assessments from a safe space were favoured by most. The final theme, pros and cons of different assessment methods, highlighted the preference for video assessments above telephone and in person sessions.Originality/valueThis study provides an original contribution to the literature by gathering autistic adults’ perspectives on remote autism assessments. The findings suggest that video assessments were the most preferable, over face-to-face and then telephone. Services should offer video and face-to-face assessments while keeping telephone assessments to a minimum.
目的新冠肺炎大流行导致卫生服务部门调整了常规评估的提供,其中许多是远程操作的。本文旨在探索新冠肺炎大流行期间进行远程自闭症评估的个人的生活经历。设计/方法/方法在英格兰北部的一家成人自闭症和神经发育服务机构完成了混合方法服务评估。共有24名参与者在2020年3月至2020年7月期间接受了远程自闭症评估,他们完成了一份关于自己经历的问卷调查。进行了专题分析,并对额外的定量数据进行了描述性分析,以纳入上下文信息。评价确定了三个主要主题。第一,远程评估的实际和感官问题表明,互联网连接问题很常见,有时会阻碍评估的成功。此外,参与者发现视频通话中的一些因素影响了他们的感官敏感性。第二个主题,对远程评估的情绪反应,表明在会议之后,缓解和疲惫是常见的。在安全空间完成评估的能力受到大多数人的青睐。最后一个主题,不同评估方法的利弊,强调了在电话和面对面会议之外,更倾向于视频评估。独创性/价值这项研究通过收集自闭症成年人对远程自闭症评估的观点,为文献提供了独创性贡献。研究结果表明,视频评估比面对面和电话评估更可取。服务应提供视频和面对面的评估,同时尽量减少电话评估。
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引用次数: 0
Improvisers’ experiences across neurotypes of participating in improv comedy 不同神经类型的即兴表演者参与即兴喜剧的经验
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-05-12 DOI: 10.1108/aia-09-2022-0047
N. Keates, J. Beadle‐Brown
PurposePrevious studies have confirmed the potential benefits of participating in theatrical improvisation, including improved mental health, well-being, skills and strategy development. This study aims to explore the experiences of improv (a subset of theatrical improvisation) for autistic, non-autistic, yet neurodivergent and neurotypical people. In particular, it explores whether participants believe that there have been any benefits from participating in improv.Design/methodology/approachTwenty adult participants were recruited using snowball sampling. Semi-structured interviews were conducted and analysed using interpretative phenomenological analysis (IPA) and qualitative content analysis (QCA). IPA explored the autistic lived experience during improv participation, while QCA sought to identify the benefits gained.FindingsImplementing IPA allowed for the benefits of improv to be embedded into autistic lived experience. This was aggregated into two themes: “life beyond improv” and “social worlds negative impact”. Findings from QCA found five themes: “creativity and opportunities: the arts and workplace”; “acceptance, cognitive flexibility and rolling with it”; “interpersonal, social and communication skills and human connection”; “gains in mental health, quality of life and wellbeing”; and for just autistic participants, “‘I've gone full autistic’ (and can learn why neurotypicals are like they are)”.Originality/valueTo the best of the authors’ knowledge, this is a novel study area that has not been investigated previously.
目的先前的研究证实了参与戏剧即兴创作的潜在好处,包括改善心理健康、幸福感、技能和策略发展。本研究旨在探索自闭症、非自闭症、神经分化和神经正常人群的即兴表演(戏剧即兴表演的一个子集)体验。特别是,它探讨了参与者是否认为参与即兴表演有任何好处。设计/方法/方法采用滚雪球抽样法招募了20名成年参与者。采用解释性现象学分析(IPA)和定性内容分析(QCA)进行半结构化访谈并进行分析。IPA在即兴表演参与过程中探索了自闭症患者的生活体验,而QCA则试图确定所获得的好处。发现实施IPA可以将即兴表演的好处融入自闭症患者的生活体验中。这被归纳为两个主题:“即兴表演之外的生活”和“社会世界的负面影响”。QCA的调查结果发现了五个主题:“创造力和机会:艺术和工作场所”;“接受、认知灵活性和随波逐流”;“人际、社交和沟通技能以及人际关系”;“心理健康、生活质量和幸福感方面的收益”;对于自闭症参与者,“我已经完全自闭了”(并且可以了解为什么神经正常人是这样的)。独创性/价值据作者所知,这是一个以前没有调查过的新颖研究领域。
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引用次数: 0
Nothing for us, without us: a review of the clinical literature and discursive evidence of interpersonal trauma in autistic women 我们一无所有,没有我们:临床文献回顾和自闭症女性人际创伤的话语证据
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2023-04-17 DOI: 10.1108/aia-11-2021-0046
Alexandra Schnabel, Clem Bastow
PurposeFrom the authors’ personal and professional experiences, they have observed that autistic women are uniquely at risk of interpersonal trauma. Given the tendency for autistic women to be overlooked in research and practice, this study aims to rectify this by exploring the relevant literature and including the voices of autistic women throughout this paper.Design/methodology/approachThis study completed a literature review of quantitative and qualitative data relating to exposure to interpersonal trauma in autistic women. This study also reviewed relevant discursive evidence available on in memoirs and reports. This study also included dialogue between us as authors from an auto/“Autie”-ethnographic position.FindingsBoth clinical literature and discursive evidence support the idea that autistic women are uniquely at risk of interpersonal trauma, in particular, sexual victimisation. Explanatory factors are considered. Studies exploring rates of post-traumatic stress disorder (PTSD) were less consistent. Further evidence is required to better understand how autistic women experience and express PTSD and to inform assessment and treatment modifications.Originality/valueTo the best of the authors’ knowledge, this is the first paper to integrate clinical literature and discursive evidence on the topic of interpersonal trauma in autistic women. It provides useful insights into the experiences of autistic women in this space, directions for urgently needed future research and modifications to clinical practice.
目的从作者的个人和职业经历中,他们观察到自闭症女性有独特的人际创伤风险。鉴于自闭症女性在研究和实践中被忽视的趋势,本研究旨在通过探索相关文献并在本文中纳入自闭症女性的声音来纠正这一现象。设计/方法/方法本研究完成了对自闭症女性暴露于人际创伤的定量和定性数据的文献综述。本研究还回顾了回忆录和报告中的相关论述证据。这项研究还包括了我们作为作者从汽车/“自闭症”-民族志立场的对话。研究结果临床文献和文献证据都支持这样一种观点,即自闭症女性有独特的人际创伤风险,尤其是性伤害。考虑了解释因素。关于创伤后应激障碍(PTSD)发病率的研究不太一致。需要进一步的证据来更好地了解自闭症女性如何经历和表达创伤后应激障碍,并为评估和治疗修改提供信息。原创性/价值据作者所知,这是第一篇将临床文献和话语证据整合在自闭症女性人际创伤主题上的论文。它为自闭症女性在这一领域的经历提供了有用的见解,为急需的未来研究和临床实践的修改提供了方向。
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引用次数: 0
Increasing collaboration and knowledge in school communities to enhance outcomes for autistic students 增加学校社区的合作和知识,以提高自闭症学生的成绩
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2022-12-01 DOI: 10.1108/aia-03-2022-0014
A. Griffiths, Diana Baker, J. Brady, K. Kennedy, A. Valladolid, Rachel Wiegand, Raquel Delgado
PurposeThis paper describes a case study of a developmental program evaluation on the Autism Community Toolkit, a collaborative skills training program for parents and school professionals. The purpose of this study was to examine the influence of the training on participants’ knowledge, competence and perceived collaboration; and potential improvements to the training program.Design/methodology/approachThe program included multiple training sessions for families and school professionals, designed to educate participants on autism, evidence-based interventions and to increase home-school communication and collaboration. Data collection methods included pre- and post-measures and feedback forms.FindingsResults indicated that the training program was beneficial for participants overall. Pre- and posttest measures indicated growth in knowledge and competency in autism interventions. While there were no statistically significant differences in the quantitative measure of collaboration, qualitative results suggest that participants reported increased collaboration posttraining.Practical implicationsOverall, the training program was effective, and the ongoing implementation assessment was conducive to continuous improvement. The authors also discuss difficulties with implementation and recommendations for future intervention implementation.Originality/valueThis case study provides practical information about creating, evaluating and improving a unique intervention designed to support school–home collaboration.
目的本文描述了对自闭症社区工具包的发展项目评估的案例研究,该工具包是一个针对家长和学校专业人员的合作技能培训项目。本研究的目的是检验培训对参与者的知识、能力和感知协作的影响;以及培训计划的潜在改进。设计/方法/方法该计划包括为家庭和学校专业人员举办的多次培训课程,旨在教育参与者自闭症、循证干预措施,并加强家校沟通与合作。数据收集方法包括事前和事后测量以及反馈表格。调查结果表明,培训计划对参与者总体而言是有益的。测试前和测试后的测量结果表明,自闭症干预的知识和能力有所增长。虽然合作的定量测量没有统计学上的显著差异,但定性结果表明,参与者在训练后报告合作增加。实践意义总体而言,培训计划是有效的,正在进行的实施评估有助于持续改进。作者还讨论了实施中的困难以及对未来干预措施实施的建议。独创性/价值本案例研究提供了有关创建、评估和改进旨在支持学校-家庭合作的独特干预措施的实用信息。
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引用次数: 0
The psychometric properties of the Iranian version of Social Communication Questionnaire (SCQ) in children with autism spectrum disorder 伊朗版社会沟通问卷(SCQ)对自闭症谱系障碍儿童的心理测量特性
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2022-11-30 DOI: 10.1108/aia-12-2021-0048
E. Jenabi, N. Rabiei, Mahdieh Seyedi, Mohammad Rezaei, A. Soltanian, S. Bashirian, A. Salehi
PurposeThis study aims to investigate the psychometric properties of the social communication questionnaire (SCQ) in Iran by identifying children with autism spectrum disorder (ASD) who had Persian-speaking parents.Design/methodology/approachA case–control study was performed from June to August 2021 in Hamadan, Iran. The case group consisted of children who were examined by clinicians who used a coding scheme based on the DSM-V criteria for ASD by a psychiatrist. The control group consisted of non-ASD children who were asked to participate in the study. This study conducted the reliability, content and face validity to evaluate the psychometric properties of the tool. In the first step, Kaiser–Meyer–Olkin and Bartlett’s test were used to determine sampling adequacy and appropriateness of correlation matrix. In the second step, the exploratory factor analysis approach was used. The method of extracting the factors is done by using the varimax rotation method and selecting the number of factors using an eigenvalue and scree plot. Statistical analysis was performed using Software Package for Social Sciences 21 with the statistical significance set at level less than 0.05.FindingsThe quantitative content validity analysis revealed that the mean of content validity ratio and content validity index were 0.92 and 0.91, respectively. Mean score ± standard deviation in the two groups of ASD and control were 14.23 ± 3.84 and 7.83 ± 4.80, respectively. With cut-off point >12.5, sensitivity, specificity and misclassification error values were 73.33%, 80.0% and 23%, respectively.Research limitations/implicationsThe results showed that the internal consistency of the SCQ is desirable. Also, the internal consistency of its five subscales was obtained between 0.700 and 0.87. The findings showed that SCQ questionnaire is highly reliable in reciprocal social interaction (Factor 1) and the total score, while other factors were relatively reliable.Originality/valueTo the best of the authors’ knowledge, this is the first paper on psychometric properties of SCQ in ASD children in Iran.
目的通过对父母为波斯语的自闭症谱系障碍(ASD)儿童进行识别,探讨伊朗儿童社会交际问卷(SCQ)的心理测量特征。设计/方法学/方法2021年6月至8月在伊朗哈马丹进行了一项病例对照研究。病例组由临床医生检查的儿童组成,临床医生使用基于DSM-V标准的编码方案,由精神科医生检查ASD。对照组由非asd儿童组成,他们被要求参加这项研究。本研究通过信度、内容和面效度来评价该工具的心理测量特性。第一步采用Kaiser-Meyer-Olkin和Bartlett检验来确定相关矩阵的抽样充分性和适当性。第二步,采用探索性因子分析方法。提取因子的方法是采用最大变量旋转法,利用特征值和屏幕图选择因子个数。采用软件包for Social Sciences 21进行统计学分析,统计学显著性设为水平< 0.05。结果定量内容效度分析显示,内容效度比均值为0.92,内容效度指数均值为0.91。ASD组和对照组的平均评分±标准差分别为14.23±3.84和7.83±4.80。在截断点>12.5下,敏感性、特异性和误分类误差值分别为73.33%、80.0%和23%。研究局限/启示结果表明,SCQ的内部一致性是可取的。五个分量表的内部一致性在0.700 ~ 0.87之间。结果表明,SCQ问卷在互惠社会互动(因子1)和总分上具有较高的信度,而其他因子则相对可靠。原创性/价值据作者所知,这是第一篇关于伊朗ASD儿童SCQ心理测量特征的论文。
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引用次数: 1
Editorial 社论
IF 1.2 Q4 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2022-10-13 DOI: 10.1108/aia-10-2022-076
V. Chester, S. Tromans
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引用次数: 0
期刊
Advances in Autism
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